Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Bone Density And Osteoperosis In Kids

mamaupupup

Recommended Posts

mamaupupup Contributor
mamaupupup
Posted

Hi All,

I learned some new things today from a follow up with our rockstar Ped GI:

Measuring bone density in Celiac kids:

- She tests all Celiac kids between ages 8 - 10 for bone density

- She uses a CT scan and scans multiple areas including legs and spine

- She compares the results to a database of children of the same age and ethnicity

Preventing bone loss/encouraging ample development between now (our kids are 5.5) and then:

- Have the kids involved in impact sports (running, soccer, karate, dancing, etc.). Note that swimming and biking are non-impact sports

- Have kids take a multivitamin with iron daily (she recommended Flintstones Complete tablet form) and says it's gluten-free also (I need to check the packaging).

I feel so much better knowing I can help my kiddos be healthier, despite some bad genes I've given them ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

Hi All,

I learned some new things today from a follow up with our rockstar Ped GI:

Measuring bone density in Celiac kids:

- She tests all Celiac kids between ages 8 - 10 for bone density

- She uses a CT scan and scans multiple areas including legs and spine

- She compares the results to a database of children of the same age and ethnicity

Preventing bone loss/encouraging ample development between now (our kids are 5.5) and then:

- Have the kids involved in impact sports (running, soccer, karate, dancing, etc.). Note that swimming and biking are non-impact sports

- Have kids take a multivitamin with iron daily (she recommended Flintstones Complete tablet form) and says it's gluten-free also (I need to check the packaging).

I feel so much better knowing I can help my kiddos be healthier, despite some bad genes I've given them ;)

You really don't have to worry about kids regaining bone density once diagnosed.

It just happens because they are young. It's when you get older that it's more of a struggle. Unless kids are complete couch potatoes, normal play and a good diet will correct any problems. You are fortunate that they have been diagnosed!

mamaupupup Contributor
mamaupupup
Posted
  • Author

:) Agreed--happy they are diagnosed and have the kids focus on being kids! It just feels good to "do" something!

I also am thankful the GI seems thorough!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,056
    • Most Online (within 30 mins)
      7,748
    Paul 777
    Newest Member
    Paul 777
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Oral thrush question

      By knitty kitty · Posted

      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Nutrient deficiencies despite normal MARSH and strict gluten-free diet

      By Scott Adams · Posted

      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
    • RMJ
      Blood results

      By RMJ · Posted

      When you say the endoscopy showed potential flattening and atrophic villi, Is that the visual result and you’re still waiting for the pathology report on the biopsies? It is quite possible to have the endoscopy look ok and the biopsies show celiac damage. That happened at my last endoscopy. It is also quite possible to only have damage in some areas. Hopefully her doctor took biopsies from the areas with potential flattening and atrophy. 
×
×
  • Create New...