Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Roommate Has Celiac


kristen93

Recommended Posts

kristen93 Newbie

I am moving in with a new roommate in July and she was just diagnosed with Celiac disease this month. I have tried to help her out by baking some gluten free cupcakes (I cleaned everything I used very thoroughly and used muffin cups in case the pan had traces in it) and helping her find gluten-free snacks/options for eating out, etc. I told her that I would try to be gluten-free as well once we move in together, but I guess I just want to make sure that it is okay for me healthwise to do that. Just wondering if anyone else has done this? I am assuming it is fine for me to go gluten-free as long as I make sure I get a well-balanced diet, but I'm just wondering if I would have problems going back to a gluten diet after next year. Also, I have read that if I am careful I can still eat gluten/have gluten foods in our apartment, but I'm not sure if that is fair to her... At least not while she is still adjusting to being gluten-free. I already have planned to keep my pans separate from hers, she is going to have her own toaster, etc. We already both have sets of dishes and other utensils. But is it okay for us to share pans, etc if we make sure they are cleaned thoroughly? Any advice would be helpful!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaupupup Contributor

Hi Kristen,

What a great roommate you'll be! I'm a relative newbie, so stay tuned for more answers...here's what I can offer...

Yes, you'll likely be fine nutritionally:

I'm a Mom of twin 5 year olds newly diagnosed with Celiac Disease. My husband and I don't seem to be affected, according to current bloodwork, so just the kids need to be gluten-free (gluten free). However, we also felt out of respect to the kids (and to avoid making them feel deprived) we would create a gluten free household. At our appointment with the kids' doctor this week she was supportive of a gluten-free home and said, "None of us NEED gluten in our diets from a nutritional standpoint." She added, "A gluten-free diet is probably healthier for everyone."

Possibly test before reducing gluten in your diet:

That said, I encourage you to actually have a look at the list of symptoms of Celiac Disease and really ask yourself if there is any chance you too could have celiac disease. If you have any question in your mind, have the Celiac bloodwork done BEFORE you reduce your gluten intake (it costs a whopping $28 without insurance--it cost us $2.80 out of pocket). Also, celiac disease can be silent (you may not have any symptoms you notice). 1 in 100 (or 133) depending on the stats have celiac disease and 97% of all people with celiac disease are UNdiagnosed. If you reduce your gluten intake substantially before you test you will not get reliable results.

If you're ok with gluten:

You can always eat gluten outside your apartment, at restaurants, at work, etc. This is what my husband does! He is the official family garbage can (he eats anything set in front of him) and he is NOT celiac, doesn't have the gene pair, etc. So it's safe for him (although in some people's opinions-mine-gluten is evil for everyone).

My running incident:

We took one of our kiddos off gluten and I went gluten-free with her so she wouldn't feel alone (but I wasn't strict about my diet). One day before a run I grabbed a piece of toast and headed out. Mile 4 I knew there was something VERY wrong and I did my best to get home...I made it to 50 yards from our house before I had explosive D. The grossest thing ever... So, I either became more sensitive to gluten or discovered I had an issue with gluten... Needless to say, I now eat a banana before I run! ...No wonder I think gluten is evil.

Is it ok to share pans, etc:

Likely. It depends how sensitive your roommate is.

You're going to be a great roommate! All my best!

sa1937 Community Regular

Welcome, Kristen! What a thoughtful roommate you will be!!!

If you have no problem with gluten, you should be able to go back and forth between it and gluten-free with no problem. And if you check some of the recipe threads on this forum, you'll know we are not exactly deprived. A gluten-free diet can be very healthy with lots of fruits, veggies, meats, etc. And there are a lot of normal supermarket foods and snacks that should be safe for both of you.

There are a number of members here who do not have gluten-free kitchens and do just fine. I'd avoid baking with regular flour as it can stay airborne and contaminate surfaces in your kitchen. If you have regular bread, etc. you should have a designated area for it as well as having separate condiments so she's not glutened through cross contamination.

My daughter, also celiac, has a shared kitchen as my son-in-law and granddaughter do have regular bread for sandwiches. But all dinners are gluten-free...it just makes it easier.

Your roommate should definitely have her own cutting board, wooden spoons, colander and toaster (which she already has). I replaced a lot of kitchen equipment as mine were ancient but if your pans are not scratched and are well cleaned, they should be fine.

Hope this helps a bit.

  • 2 weeks later...
1974girl Enthusiast

You are very sweet and thoughtful. Your roommate is lucky to have you!

I only have one daughter who is gluten free. We are not a gluten free house because well, it is too expensive to be gluten free. We have our cheap bread and she has her expensive bread. We do have seperate toasters though! I have 2 bins in the cabinet labeled with my kids names for their snacks. One has some reg. granola bars and the other has the $5 box of gluten free granola bars.

GlutenFreeAustinite Contributor

I hope my roommates in August will be as thoughtful as you, Kristen!

As someone living in a house with four gluten-eaters, it's entirely possible to be safe. My family cooks only gluten-free when I'm at home, and we always pick gluten-friendly places to eat out. Of course, there's no 100% guarantee of safety, but as long as you wipe up crumbs, wash pans thoroughly, and try to avoid wheat flour (airborne particles) in the apartment, you should be okay.

Skylark Collaborator

Wow, you're going to be a great roommate for her! Keeping from eating gluten in front of her while she is still adjusting is a really considerate thing to do and it will help her get over the shock of a lifelong diet change.

As others have said, there are no issues not eating gluten for a little while. (Unless you discover that you are gluten-sensitive yourself! ;) It's been known to happen.) Just be careful of your portion sizes when you eat gluten-free baked goods. They are a bit more starchy than wheat and can have a few more calories. Some people also find the xanthan gum in some gluten-free breads doesn't agree with them. Rice, potatoes, and sweet potatoes are great foods for people with celiac.

You can share anything you can scrub, or that cleans off completely like unscratched teflon. Dishes, glasses, and silverware are usually fine to share since you wash them thoroughly and they have hard surfaces that food won't cling to. Things that are porous or hard-to-clean like wooden spoons, cutting boards, or a colander will hold gluten and you need separate. Seasoned cast iron will also hold onto gluten, since you never scrub the seasoning off. If the baking sheets and cupcake tins aren't scrubbing perfectly clean, help your roommate remember to keep paper cupcake cups, foil, and baking parchment around so she can easily get a safe cooking surface.

If you start buying wheat breads, keep separate condiments for you and your roommate, or use squeeze bottles. Crumbs in the butter, jelly, peanut butter, or mayo are not much fun if you're celiac. A lot of families use colored tape to mark the gluten-free bottles.

The one thing you might not have thought of and I'd really suggest for your roommate is to avoid using flour or normal baking mixes as much as you can. Flour is so fine it gets into the air and traces of it end up everywhere. It's not too hard to clean up crumbs if you buy bread or a cake, but it's hard to clean up a fine dusting of flour everywhere. If she walks into the kitchen while you're baking she will even inhale any flour in the air, and you eventually swallow things you inhale. It might work OK measuring flour and adding wet ingredients outdoors, then bring the batter back inside.

Hope this helps and I wish everyone with celiac had a roommate as considerate as you are!

anabananakins Explorer

Everyone else has suggested useful tips but I just wanted to stop by and say how touched I was by your thoughtfulness to your future room mate. You are being the sweetest friend to her and I hope you both have lots of fun living together.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
~**caselynn**~ Enthusiast

Aww!! This is just awesome! You'll be an amazing roommate, of only we all had roomies like you! I think you'll find that once you both get settled in you'll find a routine that works well for you both food wise. I'm the only one in my family that's Celiac, and we make it work! Good luck to you both!! ?

  • 3 weeks later...
veruca Newbie

You are the best roomie ever!!

My boyfriend and I keep our apartment gluten free. He does not have celiacs, but he is really supportive. When I met with the dietician after my diagnosis one year ago she encouraged him to keep eating gluten outside of our place. She felt it may be possible to develop a gluten sensitivity.

My boyfriend eats pizza once a week and maybe a few other things at lunchtime, but he has cut back drastically. He says he feels better now too!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Seeking advice on potential gluten challenge

    2. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    3. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    4. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Seeking advice on potential gluten challenge

    5. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,153
    • Most Online (within 30 mins)
      7,748

    Jenn18
    Newest Member
    Jenn18
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.