Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Hunger....


Rachel--24

Recommended Posts

Rachel--24 Collaborator

Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days. I'm eating alot more now than I was before my dx when I was just eating meat, veggies and fish (candida diet). I had this feeling a few times before I went on the candida diet..back when I was still eating gluten...but it went away until now. What could be causing it? I still have malabsorption...my stools are abnormally huge.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Danijela Contributor

I have enperiences the same thing. It usually happens to me right after I eat or after a period of fasting. I get this oerwhelming feeling that I need to eat right NOW!!! I get shaky and my mind gets kind of foggy. It makes sence to me that thats from malabsorbtion. A person feels hungry when they have burned off the calories or energy from their last meal. If your body is not absorbing nutrients properly that could be the reason.

Rachel--24 Collaborator

Thanks Danijela,

I just answered your topic question with pretty much the same response. He-He

Too bad we couldn't just condense the 2 topics since they are almost identical. :P

BTW....Welcome to the board! :D

jknnej Collaborator

I had this for the first two or three months after going gluten-free. It went away, though. I've been gluten-free for 9 months now and I no longer have this problem.

It was not a fun problem-I'm glad it's gone. How long have you been gluten-free?

Wandering Hermit Contributor

gluten-free since April and I feel the same way pretty much every day. Does not always coincide with a feeling of hunger, though.

I just keep hoping that someday this gluten-free diet is going to pay off and I will start feeling like a normal person again with no fatigue, dizziness, and bizzare stools. At least the d has stopped.

Rachel--24 Collaborator
I had this for the first two or three months after going gluten-free. It went away, though. I've been gluten-free for 9 months now and I no longer have this problem.

It was not a fun problem-I'm glad it's gone. How long have you been gluten-free?

<{POST_SNAPBACK}>

I was probably 95% gluten-free since April but only got dxd a couple weeks ago. I've swtiched all my products to gluten-free now but I've had a couple slip-ups already cuz of contamination. I'm wondering if maybe my body is starting to heal and the hunger attacks mean it wants more food/nutrients since its trying to heal? Just a guess..

Guest Viola

I think part of it is physiological. Before we were diagnosed we thought about food only when it was meal time, or time to cook. Now that we have been diagnosed we spend all our time and effort thinking of food in one way or another. Checking ingredients, calling companies, worrying about going out, thinking about what we can take out etc. In other words most of our lives is all of a sudden tied up with food. It's only natural that our stomach follows our brain waves sometimes. :lol:

I find if I am out doing something I don't have to eat at all ... as soon as I come in, or sit at the computer it keeps saying feed me, feed me, I know there's ice cream in the fridge. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
  I find if I am out doing something I don't have to eat at all ... as soon as I come in, or sit at the computer it keeps saying feed me, feed me, I know there's ice cream in the fridge.  :rolleyes:

<{POST_SNAPBACK}>

LOL...I think I'm actually the opposite in that I think about food alot LESS since getting dxd. I thought I'd had candida so I was constantly worried about "feeding" the candida or getting sick...paranoid everyday...but I never had these hunger attacks...I was eating way less also. Now I know all my food is gluten-free and I know the candida is not going to "get" me so I just stick to stuff I know is safe and I'm not too worried about food anymore. But my body is REALLY hungry.

mandigirl1 Enthusiast

HI!!!!

I have the same symptoms that you described. Ive had celiac disease for 6 yrs. Usually I get extreme hunger after having an attack from gluten. Its a killer BM, then I feel sooooo hungry, I eat everything in site (gluten-free of course).

To feel full, I think you need to eat more protein with carbs like potato or rice. I went to a top, high priced Manhattan nutritionist, and thats what he told me. Also told me to stay away from sugar (Avoid it like the plague, he used to say). Finally, take your vitamins. I never enjoyed better health in my life until I followed a strict regime of vitamins. I felt like I had the energy of a 10 yr old (Im 32).

BTW, what is "candida"??? Never heard of it before.

Good luck, and if you have questions, ask!!! I may be able to help!!

:):):):):):):)

Rachel--24 Collaborator
HI!!!!

I have the same symptoms that you described. Ive had celiac disease for 6 yrs. Usually I get extreme hunger after having an attack from gluten. Its a killer BM, then I feel sooooo hungry, I eat everything in site (gluten-free of course).

To feel full, I think you need to eat more protein with carbs like potato or rice. I went to a top, high priced Manhattan nutritionist, and thats what he told me. Also told me to stay away from sugar (Avoid it like the plague, he used to say). Finally, take your vitamins. I never enjoyed better health in my life until I followed a strict regime of vitamins. I felt like I had the energy of a 10 yr old (Im 32).

BTW, what is "candida"??? Never heard of it before.

Good luck, and if you have questions, ask!!!  I may be able to help!!

:)  :)  :)  :)  :)  :)  :)

<{POST_SNAPBACK}>

After I get glutened I'm NOT hungry at all for a few days. The attacks come about a week later when I start to feel a little better and my appetite is good. All of a sudden I'm starving and even though I've eaten I'll get a hunger attack. Come to think of it its usually after I've eaten something high in sugar. :blink: Why would that be? As soon as I eat something it goes away.

Candida is a yeast overgrowth in the intestines. Its a very controversial condition to say the least.

Oh yeah...what vitamins do you take? I'm not taking any right now cuz I wasnt sure if mine were making me feel worse. I'll try them one more time but if anything bad happens I'm done with them. They are a liquid gluten-free multivitamin.

mandigirl1 Enthusiast

I get my vitamins from Freeda Vitamins in NYC. You can look them up online to order or request a catalog. I think every single vitamin they make is gluten-free.....so you should be safe. I take the Multi Vitamin, calcium, b6/12/, folic acid, and a few others. Ive never gotten sick from them.

Sugar makes you hungry. Once Ive had sugar, Im on a sugar "high" and eat and eat and eat. Its best to avoid sugar, if you can.

Just curious, if you dont mind, is candida a female condition????

Rachel--24 Collaborator
Just curious, if you dont mind, is candida a female condition????

<{POST_SNAPBACK}>

Thanks for the info. on the vitamins. :)

Nope....Candida can affect anyone male or female. We all have candida in our guts...its a bacteria. We also have "good bacteria" as well. If there is an upset in the balance between good/bad bacteria (numerous things can cause this) the candida will grow and can sometimes cause problems. The *extent* of damage it can cause is what is debateable and controversial.

Carriefaith Enthusiast
Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days.
I also feel like that sometimes, it's really annoying and I don't know for sure what causes it. For me, it happened really bad after I started the gluten-free diet and now it happens about a week or so after I've been glutened. I get so hungrey that I feel like I am going to faint if I don't eat something. It may be that food isn't absorbing proporly (due to gluten) and the body reacts by telling itself that it needs more food. But that is just a guess.
thomas3000 Rookie

Candida is caused by chronic infection or overuse of antibiotics.

Rachel--24 Collaborator
I also feel like that sometimes, it's really annoying and I don't know for sure what causes it. For me, it happened really bad after I started the gluten-free diet and now it happens about a week or so after I've been glutened. I get so hungrey that I feel like I am going to faint if I don't eat something.  It may be that food isn't absorbing proporly (due to gluten) and the body reacts by telling itself that it needs more food. But that is just a guess.

<{POST_SNAPBACK}>

Yup Carrie...that is *exactly* whats happening to me. Its about 1 week after getting glutened. When it happens I feel a little faint and shaky. Once when it happened I was luckily near a Whole Foods so I stopped and got some Envirokidz bars and some blueberries. I worry what will happen if I'm somewhere where there is no gluten-free food I can eat. Will I pass out? :blink: Maybe I should just carry around snack bars in case. :)

tarnalberry Community Regular
Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days. I'm eating alot more now than I was before my dx when I was just eating meat, veggies and fish (candida diet). I had this feeling a few times before I went on the candida diet..back when I was still eating gluten...but it went away until now. What could be causing it? I still have malabsorption...my stools are abnormally huge.

<{POST_SNAPBACK}>

That sounds like a fairly standard hypoglycemic response. Have you been tested for that? (And I'm sorry if I already asked you this one... I feel like I might have, but I just can't remember.)

jknnej Collaborator

When I had this problem someone on this board told me that without gluten there is a massive change in stomach volume contents. Plus, our bodies go through gluten withdrawl.

Give it some time; what helped me out was eating every hour or so, just something small. Even today I eat very little at each meal so I can eat many times a day. It really does help.

It will go away and get better!

Rachel--24 Collaborator
That sounds like a fairly standard hypoglycemic response.  Have you been tested for that?  (And I'm sorry if I already asked you this one... I feel like I might have, but I just can't remember.)

<{POST_SNAPBACK}>

Nope...you never asked me. I'm sure I've been tested since in the beginning they ran a million tests. I know I got tested for diabetes 4 times in the first year! I'll be leaving my HMO soon so I'm requesting all my records. I'll be able to see all that was done....I'll ask my doc as well.

tarnalberry Community Regular
I'm sure I've been tested since in the beginning they ran a million tests. I know I got tested for diabetes 4 times in the first year!

<{POST_SNAPBACK}>

Meh... tests aren't that great. And I don't think the standard diabetes tests cover testing for hypoglycemia very well (but I could well be wrong about that). My tests all come out fine too, but my doctor noted that a lot of people she sees (particularly women) find that they are just more sensitive to the effects than what the lab tests say is "okay" and "not okay". The only way to know for sure is to try the treatment (a more balanced meal (at every meal) and significantly less in the way of refined, high-glycemic load carbs). I'm sure, however, there are other things that could be going on as well.

Rachel--24 Collaborator
  My tests all come out fine too, but my doctor noted that a lot of people she sees (particularly women) find that they are just more sensitive to the effects than what the lab tests say is "okay" and "not okay".

<{POST_SNAPBACK}>

I know this to be true with thyroid testing so I'm sure the same things goes for most tests. I think since it's only happening after a glutening it may just be something my body's going through as it tries to recover. If it continues to happen in the absence of gluten I may have to ask you for some meal advice. ;)

aikiducky Apprentice

This happens to me, too, and also about a week after being glutened. I try to always take some nuts and raisins or a banana with me, especially when I'm recovering from a glutening. And eat some protein at every meal. Gluten is a protein after all, if you leave it out, I figure something has to come in it's place.

Pauliina

Rachel--24 Collaborator

Thanks,

Well noones said I could pass out from one of these episodes so thats a relief. :D

I'll just keep munchies with me if I leave the house.

mandigirl1 Enthusiast

Where is the chronic infection in the body? Like having a whole body like flu or in a specific area???????

I also feel faint and dizzy and very hungry. I had that yesterday, during the day, and immediately devoured the closest thing to me, which happened to have been a bag of baked lays doritos !!!! Then a baskin robbins pistachio/mint choc. chip ice cream (and I never eat this way because I like to stay thin)

The idea that maybe youve been glutened and arent absorbing nutrients properly makes sense.

Best Advice: Just 'hang in there' like the rest of us Celiacs do!!!!!! ;)

mandigirl1 Enthusiast

Oh yeah, I just remembered, it always helps to keep a stash of gluten-free food, with you if you go out. I find that when I dont bring a snack I get ravenous, faint and very irritable!!!!

My boyfriend always makes sure wherever we go that I have my chocolate rice cakes on hand. This does help. He knows if I dont have something quick I get crazy.......as a matter of fact he calls it "crazy food". So if we go on a vacation, he'll ask, Hon, did u pack your crazy food?????? :lol:

Rachel--24 Collaborator
Where is the chronic infection in the body? Like having a whole body like flu or in a specific area???????

<{POST_SNAPBACK}>

Mandigirl,

He's talking about chronic conditions which may leave the immune system weakened and vulnerable to bacteria overgrowth. Any undiagnosed condition I suppose could lead to this. It would be most dangerous to a person with a very compromised immune system though...such as an AIDS patient.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.