Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Done With Wheat.


Mateto

Recommended Posts

Mateto Enthusiast

So, these past few days I've been feeling absolutely HORRIBLE! Today, I finally did it and bought me a loaf of Genius bread, and tomorrow I'm stocking up on gluten-free foodstuff.

Though I'm not diagnosed officially yet - I'm just so tired and sick of being tired, and tired of being sick! I am just going to try and see what happens. If I need a biopsy -- I'll start gluten again.

So I have another question. When you first switched to a necessary gluten-free diet, were you paranoid about cross-contamination? I am fortunate to live not far from a gluten-free bakery, and 4 stores with a WIDE variety of gluten-free/free-from foods. But, it is when I am preparing them -- that I am paranoid. Maybe there's flour on the counter I never cleaned off good enough? Maybe the butter is full of wheat crumbs?

Also, how do I cope with withdrawel? Thanks for your answers!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Ypou could save yourself some heartache by getting tested first....It is really hard to go back to gluten once you see how good it feels without the poison!!!!That would be the hardest thing for me...

Yes, you need to clean counters,cupboards where gluten has been stored,no using jars that had a gluten knife in.. Get new....Check pot & pans , utensils, strainers, toaster, cutting board anything that is porous that can hold a tiny crumb of gluten..any scratched ???If so they need to be replaced...

Accidents do happen ... Do you understand the CC as to avoid it as much as possible...

Its wonderfulyou have so many choices for gluten-free shopping. Most of us don't have that !!!! I'm jealous....

Are you scheduled for a biospy yet? I'm not against adults not getting tested if you can live with the not positive for sure thing!!! Some truly need that dx's to make them want to stay with the gluten-free lifestyle..Others it doesn't matter...if you are close to being dx'd I would hang in there for the dx's...It just makes things easier, on the job, with family members & friends....then again ou may not care about what others think...

You must decide what is best for you...blessings

mamaw

TeknoLen Rookie

Cross contamination is ALWAYS a risk. Best way I have found to manage the risk is to cook for myself, avoid eating out, and discontinue ALL grains. I now adhere to a strict paleo diet and rarely worry about cc since most paleo foods are low cc risk.

Gluten withdrawal sucks, no way around it, but eventually the good days start to outnumber the bad ones...

Good luck.

raea2002 Apprentice

You sound like me! If you need the diagnosis don't stop eating gluten just get all testing done and then immediately start Gluten-Free. That's what I did. I did a lot of yo-yo-ing in the end it wasn't worth it. Just do what your head and heart needs. I say if you know how you feel just do the Gluten-Free.

lovegrov Collaborator

IMO, there's really no reason to quit ALL grains. If you're paranoid about CC of grains, there are types and brands that are safer than others. But you definitely need to get rid of any condiments and such that might have crumbs in them.

Also, there's no certainty that you'll have gluten withdrawal. You might, and you might not. I never did. I wouldn't spend a lot of time worrying about it.

richard

sa1937 Community Regular

I really don't worry about cross contamination in my own kitchen...this is the one place I feel totally safe. I don't buy much in the way of gluten-free processed foods though. I took a lot of precautions that mamaw already mentioned, gave my kitchen a good cleaning and got rid of anything that was not gluten-free.

I did not give up all grains, not that there's anything wrong with paleo if that's the direction someone wants to go. Nor did I suffer from withdrawal that many do experience. And I went gluten-free cold turkey the day of my endoscopy.

BethM55 Enthusiast

So, these past few days I've been feeling absolutely HORRIBLE! Today, I finally did it and bought me a loaf of Genius bread, and tomorrow I'm stocking up on gluten-free foodstuff.

Though I'm not diagnosed officially yet - I'm just so tired and sick of being tired, and tired of being sick! I am just going to try and see what happens. If I need a biopsy -- I'll start gluten again.

So I have another question. When you first switched to a necessary gluten-free diet, were you paranoid about cross-contamination? I am fortunate to live not far from a gluten-free bakery, and 4 stores with a WIDE variety of gluten-free/free-from foods. But, it is when I am preparing them -- that I am paranoid. Maybe there's flour on the counter I never cleaned off good enough? Maybe the butter is full of wheat crumbs?

Also, how do I cope with withdrawel? Thanks for your answers!

To avoid cross contamination in my kitchen, I never put a utensil or anything that might go in my food or my mouth directly onto a countertop or on the stove. I use a plate, or a sheet of waxed paper, or sometimes a clean dish towel. My kitchen is not 100% gluten free, and this has worked well for me so far. Also, if I am measuring out gluten free flours, or expensive almond flour or something like that, I can recapture whatever I spill, without fear of CC. It's an extra step, but it has worked well for me.

I can't answer your question about gluten withdrawal, as I don't remember much of a problem with it. But that was nearly 3 years ago, and I've slept since then, so I may not be remembering much, either... :lol:

Hang in, keep posting here, and remember there are no silly questions. On this site there are sometimes silly answers, but those are usually accompanied by excellent information.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    5. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.