Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What About Oats?

1974girl

By 1974girl
in Coping with Celiac Disease

Recommended Posts

1974girl Enthusiast
1974girl
Posted

What do you guys do? I have read such mixed opinions about it. I just ate the best Nature's Valley Granola Bar and realized it was gluten free if she could have the oats. Do you guys eat them? My nutricionist told me that we could eat them if they were organic. Is there really that much cross contamination? I have read here that some of you can eat Quaker with no reaction. My DD doesn't react to gluten so I won't know if it bothers her or not. Do you steer clear of oats?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mom23boys Contributor
Mom23boys
Posted

I ate them until I found out I was allergic to them. My wheat free little guy just followed me since that is just easier in this house and his rash cleared up.

Takala Enthusiast
Takala
Posted

Your "nutritionist" is wrong.

There is nothing safer about "organic" oats than with regular oats, for a celiac. Organic doesn't mean diddly squat other than it may have not been sprayed with pesticides or herbicides or had certain fertilizers used.

Oats must be grown, harvested, processed, tested and stored in a carefully gluten free manner at all points, to be "gluten free." Regular oats are cross contaminated with wheat and barley, from the fields, combines, storage bins, and milling lines.

Some celiacs can eat certified, gluten free, uncontaminated oats. Other celiacs and gluten intolerants can not.

mamaw Community Regular
mamaw
Posted

Just because a product is organic does not mean it is safe for celiac people.. The only oats that are safe are the certified gluten free oats... ie: Laura's gluten-free oats,Bob's Red MIll. Pure gluten-free oats & so on..

Plus if a person is just starting out on the gluten-free lifestyle it is not good to use oats until the intestinal tract has time to heal... Oats are hard to digest esp. when one is trying to heal intestinal damage ..Many cannot do oats even after being gluten-free for a long period of time....just to hard on the system....

I eat oats, been gluten-free for a LONG TIME -- I eat only gluten-free certified & can only eat 1/2 cup maybe twice a week...

Your nutritionist is wrong by telling you because they are organic they are okay for celiac use...this person is not giving out correct info...you are paying them for wrong info...

1974girl Enthusiast
1974girl
Posted
  • Author

Ya know...I may have misunderstood her. I was in a different city for the scoping. The doctor came out and immediatly told me to see the nutritionist down the hall before I drove back the 4 hours to home. This nutritionist had celiac so he wanted us to see her specifically. My daughter was still asleep when they set up the appointment. I was sitting in the nutritionist office when my husband called me and said "COME TO THE CAFETERIA, SHE IS THROWING UP!" (Normally, he is the one who handles that better but it had been a stressful day) So I had to leave and come back. (We also found out she had eosinophilic esophagitus and ulcers) We were both stunned and all of this and I may have misunderstood on the oats. In fact, I am pretty sure I did if she had celiac herself. SHe'd know what was safe. I haven't given them to my dd anyway so I haven't messed up! Thanks for clearing that up! Glad I have you guys!

deb445 Rookie
deb445
Posted

I wonder if perhaps it depends on how sensitive you are.

From what I have come to understand, the chemical makeup

of oats includes gluten. Avena sativa.

So, even if you buy/use oats from a dedicated mill, who

sources their oats from a dedicated field, etc., etc., you

may still react.

If my memory serves me correctly, The Australian celiac

website recommends avoiding oats.

From experience with pure oats - guaranteed to be gluten

free - I reacted, my son started vomiting and couldn't

hold down food for days while his stomach healed, and my

sister reacts severely too.

Good luck. I sure miss good old fashioned date squares!

PadmeMaster Apprentice
PadmeMaster
Posted

I learned the hard way. Someone had told me that some are sensitive to the protein in oats that is similar to wheat gluten, so I was steering clear.. My little brother picked up a box of cookies that said "Gluten Free" and they had oats.. I had a reaction.

I'd say just steer clear!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

What do you guys do? I have read such mixed opinions about it. I just ate the best Nature's Valley Granola Bar and realized it was gluten free if she could have the oats. Do you guys eat them? My nutricionist told me that we could eat them if they were organic. Is there really that much cross contamination? I have read here that some of you can eat Quaker with no reaction. My DD doesn't react to gluten so I won't know if it bothers her or not. Do you steer clear of oats?

You will never know if you react to oats until you try them. Many Celiacs can tolerate oats just fine, including myself, and I am a diagnosed, extremely sensitive Celiac. I use Gifts of Nature oats, which I buy on-line.

Oats are also a big source of fiber and many people have trouble with fiber. It can cause the same reaction as a gluten reaction. Gas, bloating, etc. Were oats in your diet before diagnosis?

I always tell people to give it a try because you won't know until you do. Make sure they are certified gluten-free and do not use Quaker. The notion that all Celiacs should steer clear of oats is out dated.

dilettantesteph Collaborator
dilettantesteph
Posted

If you decide to try oats, try a small amount the first time. I am sensitive to oats and I found out by having half a bowl the first time. I got very sick and didn't feel right again for 2 months.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what...
    2. cristiana
      - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
    3. trents
      - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods". Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy...
    4. Dizzyma
      - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her on a full gluten free diet. my concerns are that she wasn’t actually physically s...
    5. Scott Adams
      0

      Better-Than-Takeout Gluten-Free Chicken Fried Rice

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,924
    • Most Online (within 30 mins)
      7,748
    Jimlock
    Newest Member
    Jimlock
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • TheDHhurts
      Prana Organics no longer GFCO-certified

      By TheDHhurts · Posted

      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.