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100 (or More) Things To Do When You Are Glutened


Guest BERNESES

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LLCoolJD Newbie

I'll throw in mine:

1) Pop an Immodium

2) Make sure nothing antisocial happens during class

3) Temporarily change diet to 'Berlin-defense mode', eating mainly meat, rice, potatoes, etc.

4) Eat a lot, to keep up weight and hopefully get gluten out of my system ASAP

5) Go to the gym anyway

6) Check this forum

7) Maybe get a little militant, agitated, self-pitying, etc. until symptoms pass.

I don't really have any "comfort" techniques. I just plug along.


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Guest BERNESES

We're up to 108! Woo-hoo!

101. Window shopping from home- Go on ebay and look at all the pretty gems and dresses (I LOVE THIS!). I look at kate Spade purses and dream vacations. God the Internet is great!

102) Pop an Immodium

103) Make sure nothing antisocial happens during class

104) Temporarily change diet to 'Berlin-defense mode', eating mainly meat, rice, potatoes, etc.

105) Eat a lot, to keep up weight and hopefully get gluten out of my system ASAP

106) Go to the gym anyway

107) Check this forum

108) Maybe get a little militant, agitated, self-pitying, etc. until symptoms pass.

LL CoolJD- I HAVE to ask about the anti-social thing happening in class because that is TOO funny. I'm a teacher and a grad student and mostly my students and classmates cheer me up but occasionally there's this one person in my class I just want to slug! Not one of my students but this guy who has been in my grade classes for a year and a half now. I'd LOVE to hear what happens to you!

NepalFreak Newbie

109. Get on with life, it's too short to be lying around having a pity party. (Sometimes easier said then done)

Having not had symptoms since I was 3 or 4, I'm 22 now, I forget what most of them are! From the looks of this list, I'm not looking forward to being glutened, which I'm afraid happens more often then I think.

Wow, that was one long run on sentence. Anyway, glad to be here and pick up some good advice from fellow celiac disease folks.

cornbread Explorer

109) Take 30mg of NADH.

I don't get gastric problems (except a little pot belly), so my healing process concentrates on lifting the fatigue and psychiatric effects of gluten/casein. After that has passed I try and sort out the annoying acne flair up that accompanied my glutening:

110) Sit in a nice hot bath with a face mask on.

And to build my strength back up:

111) Get as much sleep as possible.

112) Be EXTRA careful for a week (ie: eat every meal at home, don't try any new foods) until I'm 100% better.

FaithInScienceToo Contributor

109-112 is now actually 110-113 ;-)

I love the 'no pity parties' one AND the 'eat at home for a week' thing...but, if you cannot do that - take your own SAFE food with you when you need to during that week! (I guess that was obvious?) :-)

What is NADH, BTW?

114 anyone?

Oh...I have one....how about, look up some good jokes on the Net and then call a friend to tell a really great one to?..It takes the focus off yourself, brings joy to someone else, too...and any laughter you may get out of it may help expell the gas faster ;-)

OK....115, anyone?

Gina

toxemicfrog Rookie

115. Have my studly gorgeous hunk of a man rub my head...puts me to sleep every time....ahhhhhhhhhhhhh bliss. :D

116.again from my gorgeous man....cuddles, cuddles and more cuddles.

117. Raspberry or fennel tea....very soothing for the belly.

118. I go out and smell my roses...always a plesant experience.

119. Meditate (if i can relax enough...go back to 115..hehehe)

120. Read a great book

whooooo hoooooo 120 great ideas for feeling better :D (hope i did not doulble up on any ;) )

have a great day :)

cornbread Explorer
109-112 is now actually 110-113 ;-)

Oops. :)

What is NADH, BTW?

I posted about it here the other day: Open Original Shared Link . Great (natural) stuff for wiping out brain fog, fatigue and the grouchies. :) I urge anyone who gets major brain fog to try this stuff, it has absolutely changed my life.


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artmeg55 Newbie

73. Force fluids, and then force more fluids. My new favorite is Twining's lemon and ginger tea. Its' caffeine free too so it won't keep you awake. The lemon is perky and the ginger's good for the stomach.

Meg

debmidge Rising Star

Sometimes when glutened by husband takes out his photo albums, old and new and flips through them while on couch.

Or, he'll put on an old funny movie like Young Frankenstein or a Don Knotts one and get his mind off of his tummy.

Yesterday he was a trooper.. we had to go to mall to get a size larger autumn weight pants for him (he gained 7 lbs since Jan - he's now 134 at 5' 10"!! and his 32 inch pants are tight in waist). He went from 32 waist to 33! He was feeling tummy achy in mall while shopping, but he wanted to continue shopping so we went from Sears to Macy's to Lord and Taylor and he tried on as many 33s as he could find (it's a difficult size to find). (34s are too big in behind and legs as he's so thin).

  • 1 month later...
bknutson Apprentice

Is there such a thing as having celiac disease really bad or not so bad. or if you have it, you have it, plain and simple like aids or something?? Does anyone know. If anyone has any lists of gluten free products like soaps lotions etc would you email them or put them on here. I am so overwhelmed with all this. bknutson@wirelessbeehive.com

thankyou so much for you support on here. I am so thankfull I finially found this

Guest BERNESES

Welcome bknutson- you've come to a great place. As far as having Celiac's bad versus not so bad I guess that the answer is kind of complicated. Have you been diagnosed? If you have definitely been diagnosed, then no matter what, like AIDS, you have it. And to prevent any further damage, you have to remove all the gluten from your diet.

BUT with that said, there are varying degrees depending on how much damage you have. If you've had it for a long time and a lot of damage has been done, you may feel very sick and it may take longer for the gluten free diet to heal you. If you don't have Celiac's but are gluten intolerant, there are varying degrees at which a person will have a reaction to gluten. For example, some people with Celiac's can ingest gluten and have no symptoms at all (BUT they are still damaging their bodies) whereas others like me get very, very sick from very small amounts.

I'm in a doctoral program in Education, and I'll tell you, learning about this disease has been harder than my coursework! But this board is the BEST place you can be.

Did you get the emails I sent you? Beverly

darkangel Rookie

Not sure what number we're on now, but here are my suggestions:

- Read the Mitford Years books by Jan Karon. Even at my sickest, I found these books so comforting and laugh-out-loud funny in spots.

- Create a comfy bed. There's nothing more soothing than curling up on a soft bed with lots of pillows when you feel bad. I have soft T-shirt sheets for spring and summer; cozy flannel for fall and winter. Add electric blanket, home-made afghans... whatever says comfort to you.

- Gentle exercise. Take a walk, if the weather's nice. Do some yoga or stretching. Helps keep things moving.

- Drink plenty of fluids and eat your safest foods. Lots of fluids will help flush out toxins. Safe foods reassure you won't eat something to make the problem worse.

-Spoon with your significant other. Nothing more comforting to me... and if your S.O. has warm hands, they can help relieve abdominal cramping.

gabby Enthusiast

I pull out my collection of Erma Bombeck books and re-read them again and again, laughing and crying the whole way.

Matilda Enthusiast

..

  • 3 years later...
Arlek Apprentice

This is kind of off topic, but …

59. Call a friend who doesn't have Celiac's and makes you laugh. I talk to my friend Niki who also has an auto-immune disorder, and she refers to it as "Celeriac's" and we joke about how I wish it was a celery intolerance because I HATE celery.

I think I might actually have a celery intolerance (at least with the seeds), although that's in addition to gluten issues, I fear. I think I'll go find out (although maybe that's not such a great idea). I don't have anywhere I have to be for the rest of the day, though.

All I know is something in a gluten-free (also dairy-free, nut-free, egg-free, soy-free and all that) concoction I made caused me to be nauseous and later gave me really bad diarrhea without warning (no gas or anything beforehand)—diarrhea seems to be quite rare for me (and I don't seem to get it from eating gluten), unless I drink bad milk or something. I thought it was the bean flour at first (since it was the first time I had used bean flour), but now I'm not so sure, after having read up on celery issues (I used celery salt in the dish, probably the first time I've used it much, which salt is made from the seeds—the strongest reactions come from the seeds, they say). I only began to suspect the celery salt when I had some plain celery today, by itself, and I sensed some mild nausea (very mild, but I still noticed it—perhaps it's just way stronger in the seeds). Plus, the celery smelled different than usual—kind of like stringent, bad citrus. I don't think the celery actually was different, though—I think I was just more sensitive to something about it this time. Plus, I think I can often smell things that don't agree with me, strangely enough (this includes personal care products, food and such; the citrus smell was like the citrus smell in shampoo that doesn't agree with me, after it started not agreeing with me that is; it didn't smell like that before).

I actually hope it's the celery (as long as it doesn't get worse). I love to use beans, but I don't have occasion to use celery much. Of course, it's possible it was both the celery and the beans together (and I don't hope for that). I know I had a hard time getting myself to beans as a child (at least if they didn't have much meat with them). Beans don't normally give me diarrhea, though (they just perhaps give me a certain feeling related to energy, as if I wasn't metabolizing them properly, if I ate large amounts of them, but that may not have been the beans, I suppose)—I just figured maybe in flour form beans might affect me differently (seeing as the particles are probably separated much more than in something like mashed refried beans—and I did grind them with a WonderMill, which pretty much obliterates the beans).

mysecretcurse Contributor

1) Make healthy gluten free food. Whenever I get glutened, I always tell myself (with each safe meal, I'll heal a little bit more.. and in like.. 90 meals it'll be like it never happened.

2)watch a movie to get my mind off it

3)throw myself into my work and stay there for as long as I can (I'm a writer)

4)Smoke a bowl and relax under the stars. I really believe in medical marijuana and it has helped me a lot with glutenings in the past. Plus I just like it. :P And looking at the stars always reminds me that the universe is big and I am a spiritual being, only borrowing this body from mother earth, and that one day I will be free of it's limits. :)

txplowgirl Enthusiast

Get on the internet and do family history research. I can do this all day and forget where i am, who i am and what's wrong with me. :P yep, I'm addicted to genealogy :D Vicky

109-112 is now actually 110-113 ;-)

I love the 'no pity parties' one AND the 'eat at home for a week' thing...but, if you cannot do that - take your own SAFE food with you when you need to during that week! (I guess that was obvious?) :-)

What is NADH, BTW?

114 anyone?

Oh...I have one....how about, look up some good jokes on the Net and then call a friend to tell a really great one to?..It takes the focus off yourself, brings joy to someone else, too...and any laughter you may get out of it may help expell the gas faster ;-)

OK....115, anyone?

Gina

Lisa16 Collaborator

Fabulous topic!

-take a bunch of slippery elm, papain enzyme, bromeliad, glutenzyme, vitamins and teas

-eat whole cloves to control spastic burping, GAS-EX FOR SPASTIC OTHER EMISIONS

-look at garden books or house decorating books and dream of future plans

-paint or draw a picture of your pain

-take a long, hot bath with bath bombs or bubbles or salts

-give yourself a mani-pedi, facial and hair treatment

-have a movie marathon (hit the local video rental store)-- thank god for the pause button!

-bake yourself a gluten-free cake or brownies and eat some

-feed the squirrels whatever got you and watch them fight over it. Laugh maniacally.

-spoon with the person you love

-call it a day, even if it's only 6 am

stillclueless Newbie

Apparently this list started four years ago and I just found it tonight. It's fabulous. Thanks to everyone for validating my choices. It really, really helps to know I'm not alone. May God bless.

  • 1 year later...
healinginprogress Enthusiast

Apparently this list started four years ago and I just found it tonight. It's fabulous. Thanks to everyone for validating my choices. It really, really helps to know I'm not alone. May God bless.

This is definitely a good thread to go through...I'm glutened right now and very very frustrated because I don't know what is glutening me :( But this list itself lifted my spirits a bit. I'm bookmarking it and going to spoon with my honey.

dbhickma Rookie

73. Sleep in a separate room so you don't feel guilty about "gassing" anyone.

74. Catch up on seasons of shows you missed or always wanted to watch.

75. Take naps in the darkest, coldest room in the house.

76. Wear the most comfortable clothes you own. You're going for comfort not speed!

77. Make a HUGE pot of REAL chicken stock and white rice.

78. Just slow down and relax. Spend time with family. Life can get so crazy we forget to some times. Sad we have to get sick to be able to justify JUST SITTING.

79. Snuggle under a thick blanket and eat smoothies : )

80. Let your loved one's take care of you. You always take care of them and they in turn like taking care of you.

compucajun Rookie

73. Hang out with your grandchildren - or borrow some kids. They think it is funny if you fart

Terri O Rookie

73--take a walk

74--horseback riding is GOOD

75--if you are feeling well enough, clean the barn with LOUD music!

76--sit and talk to chickens. They always listen!

77--have a glass of Sherry!

78--do some crosstitch or scrapbooking

79--teach the parrot some new words

80--mix up some gluten-free flours and think about what you can make when you feel better

81--got to Borders or B&N and look at the cookbooks--then sit down and have a cuppa and read a book! (then buy it too)

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    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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