Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated, Upset, Concerned...


Ninja

Recommended Posts

Ninja Contributor

I've not been feeling good for the past couple of weeks and it's really starting to make me doubt whether I'm on the right path. It seemed to start with a trip I took a month ago when I was cc'd over and over. Well then I pet-sat and received glutteny kisses from 2 dogs as they were still chewing their treats. Then it was my conditioner, then it was the dog shampoo and eating with my hands directly after ( :blink: ) and then the grapes last night (no gluten, just high salicylates). I've been trying to go low sals to see if that helps at all given the array of foods that don't seem to agree with me. It's the only thing that makes sense because my reactions seem to follow no pattern (except that I react to higher sals foods) and sals are cumulative, I've learned. I'm having a really difficult time giving up fruit. If there's one food group I would never want to give up, it would be fruit.

I've been supplementing with vitamin D, B12 and a multivitamin, taking probiotics and digestive enzymes. I'm worried that I'm creating more issues by doing this. I should be feeling better not worse, right?! Some days are fantastic – like amazing... and then this happens. I know I need to give myself time to heal, but I'm worried that I'm doing more harm than good here. It's so frustrating. On top of that my mom is so concerned about all of this and how I'm feeling. It breaks my heart when she asks how I am feeling and I can't tell her that I'm happy, or that what we are doing is working... My dad (who is the gluten eater) went away for a week and I noticed an improvement with my symptoms. Maybe it was just coincidence? I know I could be more careful in the kitchen... :unsure:

I just want to feel better and I don't want to do the wrong things. I feel so clueless about it all.

Thanks for listening.

~Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

I had some apple cider over the weekend (very high in sals) and I feel glutened from it. If you have a problem with sals, this could be it. I am struggling with the same thing as you right now. Check out the sals thread in the DH forum. There is a lot of great info there.

BTW, your dog is adorable!!! Whats his/her name?

Ninja Contributor

I'm sorry you're feeling so crappy. :( I've been following some of those threads

GFreeMO Proficient

I'm sorry you're feeling so crappy. :( I've been following some of those threads – I don't think I would have figured it out otherwise!

The dog in the avatar is named Honey and the one in my profile picture is Ally – they are mother and daughter. :)

Sweet babies! I love their names.

Hopefully we will both be feeling good soon! Hang in there.

BTW, I can not go near grapes. They leave me feeling glutened from the sals. I find that I can tolerate red apples and strawberries and pears. LIke you said, they add up over time though so I try to limit it to one fruit a day and try to stay away from the high sals ones. (although, I drank liquid sals on sat. in the apple cider) and I can def. feel it.

Ninja Contributor

I learned my lesson – stay with known safe foods! I seem to be able to tolerate those, too (yay!). Bananas have definitely been a staple.

Very complicated. :huh:

Thanks – you too! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

    3. - Jmartes71 replied to annamarie6655's topic in Super Sensitive People
      4

      Airborne Gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,132
    • Most Online (within 30 mins)
      7,748

    Laura Lewis
    Newest Member
    Laura Lewis
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
    • Jmartes71
    • Wheatwacked
      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.