Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It Was Frightening Last Night...


lorka150

Recommended Posts

lorka150 Collaborator

<_<

So last night for dinner, I made something new for the first time since being gluten free (for about one month). I bought one of those cedar planks and grilled salmon on the bbq. Everything I had on the salmon and side dishes were similar to what I always eat. The only thing new was the plank.

Well, maybe the plank was somehow contaminated.

Three minutes into my meal, I got that familiar brain fog. I couldn't see, got really dizzy, and stomach cramps. Ten minutes later, on the toilet. Stomach pain and dizzyness lasted for the rest of the night.

Then the insomnia hit. At about 3am, there was a party in my stomach - it was so loud it was ALMOST funny. But irritating. You see, I wasn't invited to this party, I was an irritated, tired outsider who wanted to get to bed!

5am, I lay in bed. My chest started to hurt. I started to drift off to sleep and my breathing got really shallow. I had to concentrate to breathe. I tried to take my pulse, but I couldn't concentrate to get through a minute. When I finally did, my heart rate was 38.

About an hour later, I was in intense pain. I could hardly breathe or move. I wanted to get someone, but it just hurt too much. The pain ran from my chest and my whole stomach.

I don't remember how long this lasted. Somewhere at around 6am I drifted off to sleep til around 7.

I'm awake now (was here and there from about 7-8), but man... I'm glad THAT is over. Has anyone ever had anything like that? The longer you are gluten free, does the 'glutening' get worse?

Anyone else think it was the plank? (I don't know what else it could have been?)

Also, at around 8:30 I ran back to the bathroom with a huge poop, and right now, I feel like if I open my mouth (even to say good morning), I would throw up. The only thing I can fathom consuming is a milkshake, which I think I am just craving for some reason becasue I don't eat dairy and haven't had one for about 5 years :lol:

Any ideas?

I'm glad it's over.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

Sorry you had to go through that :(

Has anyone ever had anything like that? The longer you are gluten free, does the 'glutening' get worse?
I have had gluten reactions similar to what you explained. I also get dizzy, brain fog, insomnia (sometimes), nausea, diarrhea, mild-severe stomach pain (sometimes to the point where I cannot move because it hurts so bad), and I feel like I have the flu. I have never had any real problems with breathing but I can get intense heart palpitations. You may actually have a wheat allergy in addition to celiac, which may cause the breathing problems.

I think gluten reations do get worse after being gluten free, at least for me they do. I actually got a few reactions that I didn't have before going gluten-free. Like chicken pox-like bumps on the skin, heart palpitations, and intense stomach pain.

Anyone else think it was the plank? (I don't know what else it could have been?)
If the plank was just cedar, than it is unlikely. But really anything you ate or anything that touched your food could have been contaminated. I have been getting mysterious gluten contaminations off and on for about two months now. I have narrowed down two possibles sources; contaminated gluten-free maple leaf hot dogs, and possible cross contamination at a place that cooks gluten-free.
tarnalberry Community Regular

Yep, that reaction sounds like mine, though more severe. Brain fog, noisy stomach, pain in the abdomen are all glutening signs for me. I hope it passes quickly for you.

Rachel--24 Collaborator

I feel bad after I eat salmon that has color added. Its like poison to me.

Guest nini

oh yes that sounds exactly like my worst gluten reactions... terribly frightening.

Was the salmon fresh or frozen? Some brands of frozen salmon or fish in general, will dust them with flour before wrapping them...

doubt seriously it was the plank... had the grill been used for gluten stuff before and maybe not cleaned thoroughly enough?

I'm so sorry you feel bad...hope you feel better soon.

JoeB Apprentice

This is pretty timely from my perspective. Prior to being diagnosed in April, I used to get sick every time we cooked on the grill. Since being diagnosed, we've been cooking my food on a separate teflon tray on the grill. That stopped me from getting sick, but it was getting complicated trying to cook food containing gluten at the same time as gluten-free.

Yesterday, I put a wire brush on my electric drill and cleaned every bit of gunk off the grates. After that, I used brillo. I declared the grill "gluten-free" and so far after two meals, I haven't had a problem.

Don't relay on just scraping the grill and burning off the residue. It doesn't work.

mandigirl1 Enthusiast
I feel bad after I eat salmon that has color added. Its like poison to me.

<{POST_SNAPBACK}>

How so??????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

There is something toxic about farm-raised salmon with color added. I haven't done any research on it but I work in a grocery store and I know by law they have to put those little "color added" stickers on the package now. I kept buying salmon and everytime I ate it I felt worse...I always felt bad anyway so it took awhile to figure out the salmon wasnt helping. Somebody recently mentioned to me about the "dangers" of eating farm-raised salmon. That was enough for me....I haven't eaten it since. Maybe someone else is more up to date on the subject.

ianm Apprentice

Food colorings can produce reactions in some people. I used to have a neighbor that would get a really bad rash if it had a certain type of red food dye in it. I don't remember what it was exactly but it was used mostly in candy. You are probably reacting to the dye put into farm raised fish.

Guest BERNESES

Yikes! That sounds like my night last night. Ugh! I don't know about the salmon or the plank, although thyose are certainly possibilities, but when I grill, I grill ALL my stuff on tinfoil. It's not the same but it has kept me safe so far.

Carriefaith Enthusiast
but when I grill, I grill ALL my stuff on tinfoil.
same here, until I get my very own BBQ ;)
pixiegirl Enthusiast

In my opinion there is something toxic about all farm raised salmon, just just the coloring. I only eat wild salmon, yes its hugely expensive, but I eat way smaller amounts.

Susan

nettiebeads Apprentice
Food colorings can produce reactions in some people. I used to have a neighbor that would get a really bad rash if it had a certain type of red food dye in it. I don't remember what it was exactly but it was used mostly in candy. You are probably reacting to the dye put into farm raised fish.

<{POST_SNAPBACK}>

When I was a kid my mom used to buy IGA hot dogs which I loved, but I would get severe migraines after eating them. I figured out it was the red dye that was used.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

    5. - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,145
    • Most Online (within 30 mins)
      7,748

    Kundrey
    Newest Member
    Kundrey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.