Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Trouble With Probiotics?

nursenation2

Recommended Posts

nursenation2 Rookie
nursenation2
Posted

So as some of you know I have been having trouble again after 2 years gluten free, but had got cc'd several times in a row. So started (after this big flare up) on probiotics and back on nexium and then later gastric enzymes. So then I was still having problems so tried grain and dairy free for a few days. Nothing was helping. I felt like I was taking more and more pills so I stopped everything. And then things got better. I added back nexium ,that is ok. I suspect the probiotics. Can that be possible? Was taking culturelle and acidophilous. I was to the point with bloating that I couldn't even sleep. Since I stopped taking them that is so much better. I know that can be a common reaction in the first few days of starting probiotics but was on them about 3 weeks. Tried dairy again today and did fine. Could this be? What should I do??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


raea2002 Apprentice
raea2002
Posted

I started taking Raw women's multivitamin, it has probiotics in it. I havent had a problem with them.

Lisa Mentor
Lisa
Posted

When first diagnosed, I tried probiotic and it did not settle with me well.

My pro biotics had dairy. I stopped it for a month and found one which did not contain dairy and continued with no issue.

I assume you have checked you meds. Even generics change frequently.

But, as we all know, not all roads lead to gluten. ;)

mamajchis Newbie
mamajchis
Posted

When first diagnosed, I tried probiotic and it did not settle with me well.

My pro biotics had dairy. I stopped it for a month and found one which did not contain dairy and continued with no issue.

I assume you have checked you meds. Even generics change frequently.

But, as we all know, not all roads lead to gluten. ;)

I started using align. Started having setbacks about the same time with no change in diet. I quit eating gluten March 12 2012 so still fairly new to this. I have most of the GI problems which are taking longer to improve on than I had hoped.

tom Contributor
tom
Posted

I had to switch to a 'vegan formula' one because I was getting dairy symptoms from regular ones.

So I use the green-topped PB8 from WhFds. Blue top is regular.

dilettantesteph Collaborator
dilettantesteph
Posted

What brand of probiotics was it? Could there be cc problems?

tom Contributor
tom
Posted

If that's for me it was multiple brands & my dairy symptoms are easily distinguishable from gluten symptoms.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mom23boys Contributor
Mom23boys
Posted

Is your diet high in sugars or the processed gluten-free subs? This will "feed" the bad bacteria that the probiotics are trying to get rid of which will make a little "war" in your digestive system.

nursenation2 Rookie
nursenation2
Posted
  • Author

Don't eat a lot of sugar unless you count natural sugars as in fruit. I eat the occasional schar chibata roll. None this week even. I don't like most of the gluten-free subs and never liked sweets. See the doc next week I'm hoping we can figure something out.

beachbirdie Contributor
beachbirdie
Posted

So as some of you know I have been having trouble again after 2 years gluten free, but had got cc'd several times in a row. So started (after this big flare up) on probiotics and back on nexium and then later gastric enzymes. So then I was still having problems so tried grain and dairy free for a few days. Nothing was helping. I felt like I was taking more and more pills so I stopped everything. And then things got better. I added back nexium ,that is ok. I suspect the probiotics. Can that be possible? Was taking culturelle and acidophilous. I was to the point with bloating that I couldn't even sleep. Since I stopped taking them that is so much better. I know that can be a common reaction in the first few days of starting probiotics but was on them about 3 weeks. Tried dairy again today and did fine. Could this be? What should I do??

I cannot take probiotics with FOS (fructo-oligosaccharides) in them, I get a lot of gut pain.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,037
    • Most Online (within 30 mins)
      7,748
    cbattiato
    Newest Member
    cbattiato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Is this celiac?

      By Beverage · Posted

      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.