Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Photos Of Mild Dh

lizk

By lizk
in Dermatitis Herpetiformis

Recommended Posts

lizk Rookie
lizk
Posted

I found this link of what I would consider "mild" DH (except maybe the back photo, that looks kind of severe) and thought I would post because I've had a hard time finding photos that don't look pretty severe. Most photos of DH don't look like what I have (and I'm still not sure if I have DH), but these look very similar to what I have - especially the first photo. Anyway, just thought I'd post in case it helps anyone.

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I found this link of what I would consider "mild" DH (except maybe the back photo, that looks kind of severe) and thought I would post because I've had a hard time finding photos that don't look pretty severe. Most photos of DH don't look like what I have (and I'm still not sure if I have DH), but these look very similar to what I have - especially the first photo. Anyway, just thought I'd post in case it helps anyone.

Open Original Shared Link

Excellent link. This will help people. Almost all of the photos you find on the net are so severe that they are quite hard to even look at & people with less severe dh than those photos can be easily confused.

gulfcoastnana Newbie
gulfcoastnana
Posted

Thank you for posting this... I wish that I would have taken photos when my rash was at its worst...

at first i was told i had shingles... then after taking a course of steriods...it came back with a vengence... dr said its a food allergy..

before i made it to a allergy dr i found some photos of wheat rash...(DH) and it looked like what i had went gluten free... started clearing up...

so now while the dr's may not agree with me i know the only way to keep the itchy skin away is staying gluten free

Di2011 Enthusiast
Di2011
Posted

I think the definition of "mild" DH is so much up for debate.

I've been watching my 9 year olds DH develop over the past year.

My DH went full blown a year ago.. when I went to work in a bakery. I'd always been gluten lite without a thought. Didn't like breakfast, pasta, pizza etc. Was always itchy/scratchy and had "ingrown hairs" and 'adult pimples' etc etc. I think there is definitely 'mild' DH which in my definition is just itchy. Medium is definitive lesions ("mosquito bites"). This is where my son is at.

The full blown DH though is extreme, ugly, and mentally challenging. Just ask me what I've been through.

DH needs to be scientifically researched as a skin condition with a range of presentations.

It presents differently in different areas of my body. There is no 'normal'.

If you feel like mosquitos are biting (in winter) or acid is being sprayed on your skin then DH is a probability.

lizk Rookie
lizk
Posted
  • Author

I think the definition of "mild" DH is so much up for debate.

I've been watching my 9 year olds DH develop over the past year.

My DH went full blown a year ago.. when I went to work in a bakery. I'd always been gluten lite without a thought. Didn't like breakfast, pasta, pizza etc. Was always itchy/scratchy and had "ingrown hairs" and 'adult pimples' etc etc. I think there is definitely 'mild' DH which in my definition is just itchy. Medium is definitive lesions ("mosquito bites"). This is where my son is at.

The full blown DH though is extreme, ugly, and mentally challenging. Just ask me what I've been through.

DH needs to be scientifically researched as a skin condition with a range of presentations.

It presents differently in different areas of my body. There is no 'normal'.

If you feel like mosquitos are biting (in winter) or acid is being sprayed on your skin then DH is a probability.

I'm sorry you had such a tough time of it. Does your son have multiple "mosquito bite" looking lesions in one place? Or is it one here or there? I had some that were very tiny blistery looking things and lately I have had larger "bug bite" looking ones that are usually (not always) on matching sides of my body. They usually just present as one, but for example on my ankle last week I had 3 or 4 in a cluster. And yes sometimes the skin just burns or sort of generally itches and then a tiny bump will appear.

lizk Rookie
lizk
Posted
  • Author

Oh and I would say for the past 6 months I have been "itchy/scratchy" as well and have bumps on the back of my thighs that itch that I thought were ingrown hairs or something. The burning sensation you mention I don't think I've heard before and is what I feel sometimes because I have described it as almost feeling having a sunburn when it gets itchy.

Thank you for your replies!

gulfcoastnana Newbie
gulfcoastnana
Posted

I have always had back bumps...(pimples) and under the bra line rash( thought it was heat rash) thighs chalked it up to many things ingrown hairs ect.... but now i must say i the only way to describe the warning that a break out is coming is a burning like being sunburnt and having a jellyfish tossed on your skin....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Mine starts itching and feels like an abrasion - then it comes on fast.

In retrospect I've had a dozen or so different types of lesions. Would be funny if it wasn't sad - so many that were probably DH but I wrote off as something else.

And I have a sneaking suspicion the herpes Whitlow on my hand as a child wasn't - yep, I'm betting that was my first DH.

itchy Rookie
itchy
Posted

I concur with above.

Especially the comment about photographing the lesions when they are bad. Mine are almost cleared up and it will be difficult to persuade future physicians that I am coeliac, or how bad the rash really was. I have met complete scepticism from the medical community for fifteen years, and when I had the best evidence of coeliac I failed to record it!

I frequently get burning or itching sensations in the areas where former outbreaks occurred. Lately nothing materialises from these. Am I just below the threshhold for an outbreak? Is it just a bodily reaction to the factors that are still in my skin? Hard to say.

dani nero Community Regular
dani nero
Posted

Those don't look so mild to me.. Mine are ant-bite size, and they only scar if I break the skin.

Di2011 Enthusiast
Di2011
Posted

Hi Dani,

I think you are probably lucky you discovered your gluten/DH condition whilst younger than many of us. I was always itchy/scratchy, 'ingrown hairs' type and avoided gluten full foods without making the connection. I went to work in a bakery about 18months ago and 9 months later I broke out in full blown head to toe DH. All in one 6 hour shift. Out of necessity I have had to be extremely strict with diet and bathroom/cleaning etc. I never eat out. Black tea is the only thing I've ordered in the past 12 months :(

Be sure you keep strict. You young ones would really want to avoid skin like mine!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.