Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Would You Handle This Situation?


Calmom

Recommended Posts

Calmom Apprentice

A friend recently invited me over and went out of their way to make me something gluten free and I had to turn it down and hurt their feeling, because it had rye. In their defense they only remembered the word wheat. Although cross contamination was a huge fear in my mind had it not contained rye. I felt so awful. I had no idea they were planning on making me something to eat, and they were so excited about making me something gluten free. Sometimes it is just so awkward trying to explain to people that you can't really trust eating away from home with out sounding ungrateful or hurting someones feelings.

What do you guys do in these situations?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom23boys Contributor

I've been milk free much longer than wheat free. I cannot tell you how many people do not make the connection that cheese and butter are a milk product. I just have to go on about how appreciative I am, thank them but let them know that cheese and butter are milk products. I have also changed my language to "all milk products" instead of "milk". That helps.

Let them know that you appreciate the work they went to. Next time instead of just saying "wheat", say "all wheat/gluten related products". They still may not know what you are talking about but it takes the focus off of "just wheat". HTH.

codetalker Contributor

I have adopted a

Takala Enthusiast

I tell them the truth that I am allergic to one of the other ingredients.

Well, maybe, maybe not, but I'm carrying an inhaler and antihistamines, and don't want to use it. Most people are scared of that inhaler ! A couple of times I've pulled it out to use it as a preventive measure when I was going to exert myself hard when we've had forest fire smoke (living in CA, this can be a seasonal problem that goes on for days/weeks and even normal people have trouble breathing, let alone those of us w/ asthma ) and I notice that people are always suddenly very aware of what I'm doing.

Since it is true that I can be more sensitive when in a state of being glutened, this technically is not a fib, it's just sort of a face- saver. ;) It is easy, also, with gluten free stuff because chances are, they really would have used something that would wreck me. See, these reactions to things like flax can be really, really handy sometimes.

The other thing I do is I take food with me whenever I go somewhere, so other people are used to that. I also will bring things I have made that can be for other people.

Cara in Boston Enthusiast

Even though I've told our extended family over and over that my son and I cannot eat anything prepared in a kitchen that is not 100% gluten free, they still kept trying. I know they were trying hard to make us feel included, but it was really just a waste of time and money.

When my son's 6 month blood test came back higher than the doctor wanted, she told us to "step it up" and come back in three months for more tests. While this wasn't great news, it DID help a lot with our problem. Now I could say that the DOCTOR has given us strict instructions about how careful we must be for Joe and they finally listened. We can only eat things at the homes of other people if they are gluten free and still in the package - even then, I take out our servings first and keep them separate. We always bring our own food and a gluten-free dish to share. "Blaming" it on "doctor's orders" and blood test results seemed to be the trick - I guess before they just thought I was being an overprotective mother.

At his 1 year check-up, his levels are finally down (but I didn't share that information with the rest of the family)

Cara

Adalaide Mentor

After just a few months I'm already aware that I have to steer clear of anything made in a shared facility. I get to be super sensitive, I'm so lucky. <_< I'm surprised at this point that I don't get sick when the word gluten passes my lips. :lol: Last month, for the first time, I had friends over and made dinner. I'm banking on the fact that the couple has a baby due at the end of this month to keep them from deciding she has the time or energy to invite us over. When the inevitable happens though I'll simply have some salad, pray, and enjoy their company. They do know I have celiac but don't understand it well, and with 2.8 kids in the house I don't really expect them to take the time to learn. If push comes to shove I'm prepared with a statement about how celiacs who don't stay 100% gluten free double our chances of certain types of cancer. Nope, not above telling them I'll die of cancer from eating their food, because at least that is serious enough for them to take me seriously, and should end the discussion about it permanently.

ncallier Newbie

After just a few months I'm already aware that I have to steer clear of anything made in a shared facility. I get to be super sensitive, I'm so lucky. <_< I'm surprised at this point that I don't get sick when the word gluten passes my lips. :lol: Last month, for the first time, I had friends over and made dinner. I'm banking on the fact that the couple has a baby due at the end of this month to keep them from deciding she has the time or energy to invite us over. When the inevitable happens though I'll simply have some salad, pray, and enjoy their company. They do know I have celiac but don't understand it well, and with 2.8 kids in the house I don't really expect them to take the time to learn. If push comes to shove I'm prepared with a statement about how celiacs who don't stay 100% gluten free double our chances of certain types of cancer. Nope, not above telling them I'll die of cancer from eating their food, because at least that is serious enough for them to take me seriously, and should end the discussion about it permanently.

How do you "steer clear of anything mad in a shared facility"? My husband and 2 sons do not have celiac disease and have no desire to share my gluten free lifestyle. I keep my food separate from theirs and try to make most of our shared food things that all of us can enjoy. I can sometimes trick them with gluten free pasta, but they refuse to give up their breads and other gluten-filled foods. I am already struggling with my symptoms and all the stress of managing them; I do not think I could also manage the stress of fighting with them over their food.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I wish I could get my husband gluten free, but the odds of that happening are about the same as the odds of a zombie apocalypse. I won't buy anything from a shared facility and at home I mildly worse than insane about the kitchen and my stuff. No one ever even touches any of my dishes. When I cook or even wash I'll clean everything with a new clean rag, twice, then get a third clean rag to wash my dishes with. I share nothing, other than stove burners and counter space and I don't think I could bring myself to eat anything that touched the counter even if I knew it was clean. I keep my stuff separate in the pantry and the refrigerator. I've tried several times to eat something with a warning on the label that it's from a facility that handles wheat and every time I get sick so I'm done messing around. Barring the one friend at church with a family that suffers from severe food allergies I trust no one to prepare my food for me but me.

dani nero Community Regular

A friend recently invited me over and went out of their way to make me something gluten free and I had to turn it down and hurt their feeling, because it had rye. In their defense they only remembered the word wheat. Although cross contamination was a huge fear in my mind had it not contained rye. I felt so awful. I had no idea they were planning on making me something to eat, and they were so excited about making me something gluten free. Sometimes it is just so awkward trying to explain to people that you can't really trust eating away from home with out sounding ungrateful or hurting someones feelings.

What do you guys do in these situations?

I would call them in advance and explain the situation.

If their feelings really did get hurt, I would tell them to grow up.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,967
    • Most Online (within 30 mins)
      7,748

    WellspringofLife
    Newest Member
    WellspringofLife
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Hello @CeliacNew, If you are Vegan to help you feel better, reconsider returning to omnivore.  Actually, since you are already on a very restrictive diet, transitioning to gluten free might be easier for you.  Read the ingredient labels, Particularly vitamin D and Choline require supplements for vegan diet because our primary source is sun, eggs and beef.  B12 also.
    • Wheatwacked
      Once you've completed testing and still don't have improvement, start a trial gluten free diet.  Looking for imprvement that may indicate Non Celiac Gluten Sensitivity, which is 10 times more prevalent than Celiac Disease. Deficiencies in vitamins B6, B12, D, and C can manifest as skin rashes.  Virtual guaranty you are deficient in vitamin D.
    • cameo674
      So those rs numbers tell researchers where the dbSNP is located in a Genome so that other reasearchers or an AI system can look in that specific spot for that Snip of information.  You can look those rs # s by pasting the numbers after rs into the lookup on this page https://www.ncbi.nlm.nih.gov/snp/ right under the Blue header bar at the top of the webpage.  Since you are not a researcher, I do not know how this will help you though.
    • cameo674
      So I posted here once before, and everyone advocated that I get into a GI doc.  I finally got into my functional health appointment on 6/16 to get my blood results evaluated and get the Gastro referral. I was told that I would be fortunate to see a gastro doctor by December, because of the number of people waiting to get in, but they did believe that I needed to see a GI doc among others.  Well, the stars aligned. I got home. I looked at MyChart and it showed an appointment available for later that same day. I never clicked so fast on an appointment time. The gastro doc ran some additional blood work based off the December values that had confirmed my daughter's suspicion that I have undiagnosed stomach issues.  Gastro has also scheduled me to get an upper endoscopy as well as a colonoscopy since it has been 8 years since my last one. She said it would rule out other concerns if I did not show Celiac per the biopsies.  Those biopsies will not occur until August 29th and like everyone here stated, Gastro wants me to keep gluten in my diet exactly as everyone suggested. To be honest, I was barely eating any gluten since I figured I would have plenty of time to do so before testing.  Doc is also looking for the cause of the low level heartburn that I have had for 30 years.  I have mentioned the heartburn to PCPs in the past and they always said take a tums or other OTC drug.  The upper endoscopy is for ruling out eosinphilic esophagitis, h. pylori, and to biopsy the duodenal bulb and second portion to confirm or exclude celiac. The colonoscopy will have random biopsies to rule out microscopic colitis. I didn't really catch her reasoning for the bloodwork.  Doc looked at the December numbers and said they were definitely concerning for Celiac.  She also said, “Hmm that’s odd; usually it’s the reverse”, but I did not catch which result made her say that. She seems very through.  She also asked why I had never bothered to see a GI before.  To be honest, I told her I just assumed that the heartburn and loose stool were a part of aging.  I have been gassy since I was born and thought constantly passing gas was normal?  Everyone I know with Celiac have horrible symptoms that cannot be attributed to other things.  They are in a lot of stomach pain.  I do not go through that.  I attribute my issues to the lactose intolerance that comes with aging, but have slowly been eliminating foods from my diet due to the heartburn or due my assumption that they did not agree with a medication that I was prescribed. I have already eliminated milk products especially high fat ones like ice cream; fats like peanut butter; acids like citrus and tomatoes; chocolate in all forms; and breads more because it is so hard to get in 100 grams of protein if I eat any foods that are not a protein.  I would not have even done the testing if my daughter had not brought up the fact that she thought I might have an undiagnosed condition since she has issues with bloating and another sibling has periodic undiagnosed stomach pain that GI docs throw pills at instead of helping.  Who knew that Bristol scale 5 and 6 were not considered normal especially multiple times a day? I watched my MIL go through basically the same bowel changes starting at 50 so to be honest, I really did think it was normal before this week's appointment.   December 2024's blood tests ran through Quest Labs were:  Deamidated Gliadin (IgA) 53.8 U/mL Above range >15.0 U/mL; Deamidated Gliadin (IgG) >250.0 U/mL Above Range >15.0 U/mL; Tissue Transglutaminase (IgA) 44.0 U/mL Above range >15.0 U/mL; Tissue Transglutaminase (IgG) <1.0 In range <15.0; Immunoglobulin A (IgA) 274 mg/dL In range 47-310 mg/dL 6/16/25 bloodwork:  Until today, I did not really know what all the four tubes of blood were for and since I did not understand the results, I got into the clinical notes to see what was ordered, but it did not exactly explain why for everything. Immunoglobulins IGG, IGA, IGM all came back in range:  IGG 1,010 mg/dL In range 600-1,714; IgA 261 mg/dL In range 66-433 mg/dL; IGM 189 mg/dL In range 45-281.  How do these numbers help with diagnosis? Google says she checked these to see if I have an ongoing infection? I do have Hashimoto's and she did say once you have one autoimmune disease others seem to follow. Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies? Comprehensive Metabolic Panel: Everything was in the middle of the normal range.  Google says this just says I am metabolically healthy. Tissue Transglutaminase ABS test results – Done by the Mayo Clinic’s Labs –  T-Transglutaminase IGA AB --Value: 3.1 U/mL – Normal Value is <4.0 (negative) U/mL; Tissue Transglutaminase, IgG -- Value: 15.3 U/mL High -- Normal Value is <6.0 (Negative) U/mL – Interpretation Positive (>9.0) – These are the only labs the GI did that have been labeled Abnormal.  I am confused at how/why these came back different than the December labs? Because these numbers seem to be the opposite of what the were in December and I know I have eaten less gluten.  They were definitely measured differently and had different ranges. This must be why she said they are usually opposite? Molecular Stool Parasite Panel said I was Negative for Giardia Lamblia by PCR; Entamoeba Histolytica by PCR and Cryptosporidium Parvum/Hominis by PCR.  So at least I do not need to do a parasite cleanse like everyone on TikTok seems to be doing. So I guess, I am just really asking why the Tissue Transglutaminase numbers are different.  Was it because they were truly different tests? Is it because I have not consumed the crazy amount of gluten one is suppose to eat prior to testing? To be honest, I thought that was only for the biopsy testing. I generally only eat twice a day, and the thought of eating the equivalent of 6 slices of bread is daunting. Even in my youth, I probably only consumed the equivalent of maybe 3 slices a day. Like I said before, now I usually focus on trying to eat 60 gram of protein.  I am suppose to consume 100 grams, but have failed to succeed. I will focus on eating gluten starting in July now that I know my procedure date.
    • Scott Adams
      I agree with @trents and wiping down the spot you eat your lunch, and eating the food your brought from home should be safe for even sensitive celiacs. Gluten can jump on your food, so it would likely better better for you to continue eating where you prefer.
×
×
  • Create New...