Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To Sals, Or Not To Sals!


dani nero

Recommended Posts

dani nero Community Regular

I posted this thread here because my DH is the most prominent side effect that I get from consuming too large amounts of salicylates!

I'm experiencing some changes regarding my sals sensitivity, so I was wondering (for those who also react to sals) if they've experienced the same thing!

I've noticed that I can handle a bigger amount of foods that are high on sals, such as cherry tomatoes. I even tried to test this by eating frozen mangoes, frozen berries, and even a few fresh blue berries (which I'm immensely enjoying by the way) and I'm so far almost getting away with it!

I was feeling particularly greedy the past three days, cheating on my diet with unlimited cherry tomatoes frozen mangoes, and berries (most of them were frozen but I did also have a few fresh blue berries), and I'm not sure what's going on, but I haven't been getting any new blisters. My rash -does- get a little dry, and it burned a little two nights ago, but that was it. I tried pushing it again yesterday by spoiling myself, and I'm ok so far. I'm not getting bad DH reactions, and my throat and nose are not hurting either!

Could it be that I'm getting over the sals sensitivity? Is that possible?

Could this be due to the fact that sals sensitivity occurs when enough sals have accumulated in the body until they start causing reactions.. So going off them for a while means that the body can start handling them again, until another overdose occurs?

Or could frozen fruits contain less sals than fresh ones?

I don't know what this is.. but I'm very happy and thankful that it's happening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

It's not just that, but even the sugar in these fruits have not been bothering me. I've not been getting anxious or bloated from the sugar.

squirmingitch Veteran

I'm delighted to hear this but would give a word of caution Dani. Sals ARE cumulative. So take it slow & easy. Don't push the limits too hard.

That was my problem with sals in the first place. I was eating everything sal! I was doing fine too. And then one day --- BOOM! Sal overdose b/c of the accumulation.

I went low sal & was doing good again. I was able to add a few sals back into the equation. Fine. Then I pulled a muscle in my flank --- it's either that or the neuro --- toooooo excruciating --- no way not to take meds for it. I chose Tylenol b/c it seems to be less aggravating than Naproxyn. But I had to take a lot of Tylenol throughout the day for 4 days. Then it caught up with me. Sals overload again. So, the sals are getting out of my system again & my rash is getting better.

Just be cautious & don't od.

pricklypear1971 Community Regular

It could be that the longer you're off gluten the more you can take. Thats what happened with me. In the beginning certain sals set me off horribly - colorings, MSG, just odd things - coconut to a degree. Too many almonds.... Then, after a while, after my rash healed I was ok with most sals.

I have noticed I can't get them ON my rash - I was using almond oil/Shea butter salve on the spot on my hand and thought it was ok. Nope. I finally figured out it was making it worse, switched to Vanicream and it's finally healing. I also can't get fruit or vegetables on the rash or it triggers a new outbreak. Thus, the kitchen gloves.

Iodine was worse for me. I was much more sensitive to iodine with my DH. Still am. I can eat sushi and get a dry red spot immediately.

As your antibodies fall, the more you can take? That's good news.

dani nero Community Regular

Understood, and thanks for everything gals :-) This is so wonderful! I'll try not to overdo it :-D

Yay!

dani nero Community Regular

I have noticed I can't get them ON my rash - I was using almond oil/Shea butter salve on the spot on my hand and thought it was ok. Nope. I finally figured out it was making it worse, switched to Vanicream and it's finally healing. I also can't get fruit or vegetables on the rash or it triggers a new outbreak. Thus, the kitchen gloves.

Iodine was worse for me. I was much more sensitive to iodine with my DH. Still am. I can eat sushi and get a dry red spot immediately.

I did notice that when I ate seasoned chicken with my hands once.. The seasoning wasn't spicy but my rash felt burn-ie when some of it came in contact.. I guess these rashes reacts from both sides :-)

It's really amazing how fast reactions can be. I sometimes thought it's was all in my head because the moment I ate those extra portions of sweet potato or extra sips of carrot juice, my nose starts itching.. And I would think "Can't be that fast!"

dani nero Community Regular

But I had to take a lot of Tylenol throughout the day for 4 days. Then it caught up with me. Sals overload again. So, the sals are getting out of my system again & my rash is getting better.

Sneaky no good sals :-( I'm glad you're doing better now!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

You know what's weird? 99% of the time that I eat a meal --- no sal, low sal, no iodine, low iodine --- whatever --- I get some itchiness for about 10 or 15 minutes. Then it goes away. Not bad itchy just "little tingles". My hubs noticed the same thing. We were talking about it yesterday. We were wondering if it might have anything to do with the food hitting your intestines & the villi. And since we aren't fully healed yet maybe --- I don't know --- maybe something to do with the body having to work harder to deal with the food & so it has to let up on keeping the itch from happening??????

It's weird.

ciamarie Rookie

You know what's weird? 99% of the time that I eat a meal --- no sal, low sal, no iodine, low iodine --- whatever --- I get some itchiness for about 10 or 15 minutes. Then it goes away. Not bad itchy just "little tingles". My hubs noticed the same thing. We were talking about it yesterday. We were wondering if it might have anything to do with the food hitting your intestines & the villi. And since we aren't fully healed yet maybe --- I don't know --- maybe something to do with the body having to work harder to deal with the food & so it has to let up on keeping the itch from happening??????

It's weird.

I've had that happen too, though not as frequently lately. And if the Tylenol was bothering you after a few days, it might have been sulfites too. Corn starch has sulfites. I had a headache today and wanted to take an aspirin but didn't for that reason.

squirmingitch Veteran

I've had that happen too, though not as frequently lately. And if the Tylenol was bothering you after a few days, it might have been sulfites too. Corn starch has sulfites. I had a headache today and wanted to take an aspirin but didn't for that reason.

Thanks ciamarie! I had no idea about the sulfites. Sheesh! It gets harder & harder. How are we supposed to use pain relievers? what can we use?

Di2011 Enthusiast

Open Original Shared Link

This is a guide I've used to keep a track of sulphites.

Given that I eat very little processed food and I am iodine and sals low I tend to avoid them naturally.

My sals reaction is definitely cumulative like other posters have stated. The longer gluten free the less intense my DH reaction to sals - unless I go overboard. I'd say I am low-mid intake of iodine (but only compared to us DH folk - certainly not taking in mid-range iodine compared to general population.. I think that part of the world is forever beyond mine).

I do hope you take everyones advice and go a bit steadier. Have a small treat once a day, or every other day. If you are like many of us you only need a small glutening for that sals / iodine intake to send your DH into a major spin.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,585
    • Most Online (within 30 mins)
      7,748

    Josephine Minaudo
    Newest Member
    Josephine Minaudo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.