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Lactose Intolerance?


christianmom247

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christianmom247 Explorer

I'm newly diagnosed and trying to figure all this out without the help of a doctor. (Mine doesn't even know that celiacs can't eat any wheat, so I'll be searching for a new one :.)

How common is lactose intolerance for newly diagnosed patients? Should I just get rid of the wheat for now and see if I feel ok without also getting rid of dairy? That would certainly be easier, but I'm not sure if it's the best way. I've been gluten-free for about 10 days with moderate dairy intake and feel about 60% better already.


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kareng Grand Master

The tips of the villi that are damaged by Celiac are the part that digests dairy. Of course, some of your intestines likely are fine. It's not all or nothing for most people. I didn't give up all dairy when I first went gluten-free. I reduced it. I didn't have cheese and crackers for dinner or snack but I had some blue cheese on my salad or 1 slice of cheese on a sandwich. I think I did OK. You will have to judge your own body.

mushroom Proficient

When I was lactose intolerant I was still able to eat yogurt, and cheese, even sour cream. I just could not get anywhere near milk, cream, ice cream or frozen yogurt (not cultured). The other dairy products are made with cultures or enzymes that digest most of the lactose and some lucky people like me can tolerate the small amount of lactose that is left.

BabsV Enthusiast

I gave up all dairy for several months. I'm 9 months gluten-free and at this point have some hard cheese occasionally (just a little bit) but when I tried yogurt about a month ago it wasn't pretty. Never been a milk fan so that isn't a problem. I was in Italy at the end of February and ate a lot of gelato; it didn't seem to give me any trouble but I haven't tried ice cream. I can tolerate foods that include milk or lactose as an ingredient.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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