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Lactose Intolerance?


christianmom247

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christianmom247 Explorer

I'm newly diagnosed and trying to figure all this out without the help of a doctor. (Mine doesn't even know that celiacs can't eat any wheat, so I'll be searching for a new one :.)

How common is lactose intolerance for newly diagnosed patients? Should I just get rid of the wheat for now and see if I feel ok without also getting rid of dairy? That would certainly be easier, but I'm not sure if it's the best way. I've been gluten-free for about 10 days with moderate dairy intake and feel about 60% better already.


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kareng Grand Master

The tips of the villi that are damaged by Celiac are the part that digests dairy. Of course, some of your intestines likely are fine. It's not all or nothing for most people. I didn't give up all dairy when I first went gluten-free. I reduced it. I didn't have cheese and crackers for dinner or snack but I had some blue cheese on my salad or 1 slice of cheese on a sandwich. I think I did OK. You will have to judge your own body.

mushroom Proficient

When I was lactose intolerant I was still able to eat yogurt, and cheese, even sour cream. I just could not get anywhere near milk, cream, ice cream or frozen yogurt (not cultured). The other dairy products are made with cultures or enzymes that digest most of the lactose and some lucky people like me can tolerate the small amount of lactose that is left.

BabsV Enthusiast

I gave up all dairy for several months. I'm 9 months gluten-free and at this point have some hard cheese occasionally (just a little bit) but when I tried yogurt about a month ago it wasn't pretty. Never been a milk fan so that isn't a problem. I was in Italy at the end of February and ate a lot of gelato; it didn't seem to give me any trouble but I haven't tried ice cream. I can tolerate foods that include milk or lactose as an ingredient.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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