Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Days I'm Totally Lost


Indynut

Recommended Posts

Indynut Newbie

I'm sorta new to all this and currently I'm about 3 month's gluten free. I've arrived the hard way, through a process of elimination. I'm learning every-day and I'm currently having about one or two bad days a week. Today's been a bad a day and yesterday a friend brought me a lobster sandwich, without mayo. I only had a small piece of the bread and ate all the lobster. God it was good but I wondered what today would bring. For me I've already eliminated dairy products, eggs, and all the gluten things like bread and pasta.

I'm off the coffee, tea, pop, no liquor but I do drink the soya milk. Might that also be a problem for me?

I'm glad I found this site because I need to speak with people in my situation.

I'm a 6'2" male, age 53, and I just went from 236 to 207 in the last 3 months. No withdrawal symptoms at all during the change over. I have not missed a days work over this but somedays were close.

Thanks for any guidence I can pick up along the way here.

Gerard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Are you diagnosed with Celiac? Maybe some background info would help.

Obviously, you are not eating completely gluten free. Picking meat off of bread isn't eating gluten free and you ate the bread, too. I bet there are other ways you are getting gluten, too.

Not sure why you are eliminating all these foods. If you are only paritally eliminating them, like you are with the gluten, its probably not worthwhile.

Here's some basic info. Also, read around, lots of people asking questions that you may have.

https://www.celiac.com/gluten-free/forum-12/announcement-3-frequently-asked-questions-about-celiac-disease/

dani nero Community Regular

I'm sorta new to all this and currently I'm about 3 month's gluten free. I've arrived the hard way, through a process of elimination. I'm learning every-day and I'm currently having about one or two bad days a week. Today's been a bad a day and yesterday a friend brought me a lobster sandwich, without mayo. I only had a small piece of the bread and ate all the lobster. God it was good but I wondered what today would bring. For me I've already eliminated dairy products, eggs, and all the gluten things like bread and pasta.

I'm off the coffee, tea, pop, no liquor but I do drink the soya milk. Might that also be a problem for me?

I'm glad I found this site because I need to speak with people in my situation.

I'm a 6'2" male, age 53, and I just went from 236 to 207 in the last 3 months. No withdrawal symptoms at all during the change over. I have not missed a days work over this but somedays were close.

Thanks for any guidence I can pick up along the way here.

Gerard

Was the bread gluten-free? If not, even a crumb of bread will cause a reaction (if you have celiac).. You probably didn't get withdrawal symptoms because your body is still on gluten. Like kareng said more details are needed :-)

Aliciajoe Newbie

What are signs of gluten withdrawal? are they the same as say caffeine?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    2. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    4. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,228
    • Most Online (within 30 mins)
      7,748

    BethA25
    Newest Member
    BethA25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.