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Marie1976

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Marie1976 Enthusiast

I know I posted about this before but it's driving me crazy! Every once in a while this mysterious pain in my forearm/wrist flares up and I don't know what's causing it. Did I get glutened? Is this neuropathy? Is it rheumatoid arthritis? It's hard to describe the feeling. It's almost like it's my skin that hurts, an aggravating, burning achey sensation, like a flu body ache. From my elbow to my wrist and sometimes my fingers will hurt too. Anyone get this and know what it is?


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GF Lover Rising Star

I know I posted about this before but it's driving me crazy! Every once in a while this mysterious pain in my forearm/wrist flares up and I don't know what's causing it. Did I get glutened? Is this neuropathy? Is it rheumatoid arthritis? It's hard to describe the feeling. It's almost like it's my skin that hurts, an aggravating, burning achey sensation, like a flu body ache. From my elbow to my wrist and sometimes my fingers will hurt too. Anyone get this and know what it is?

Well, I can't tell you what you have but... I get the same sensation down half of my forearm thru my wrist and into the palm. It's that achy, burning, and a halfway numb feeling. It also goes into my thumb and the next couple fingers. It came on during a 6 month period or so, was kind of sneaky. Very shocking to me I was diagnosed with carpel tunnel. I guess you don't even have to be working to develop it. In fact I believe mine developed from hypothyroidism. Sorry I can't offer you more. Be well.

mushroom Proficient

Well, I can't tell you what you have but... I get the same sensation down half of my forearm thru my wrist and into the palm. It's that achy, burning, and a halfway numb feeling. It also goes into my thumb and the next couple fingers. It came on during a 6 month period or so, was kind of sneaky. Very shocking to me I was diagnosed with carpel tunnel. I guess you don't even have to be working to develop it. In fact I believe mine developed from hypothyroidism. Sorry I can't offer you more. Be well.

Seems like a lot of celiacs develop symptoms that appear to be carpal tunnel, but in fact are not. Do not give up hope that these symptoms will abate.

squirmingitch Veteran

I got that mostly before going gluten free & my arm would get red & the back of the hand &/or fingers would swell. Either arm --- sometimes both at once. Such PAIN! If a feather brushed my arm or wrist or hand or whatever it was all I could do not to scream. I also got that in my feet, lower legs, knees, hips, shoulders & upper arm ---- it traveled around my body.

I only get it once in a while now that I'm gluten-free & it is much less severe --- MUCH less. And it's occurring in fewer body parts.

sallyalewis Rookie

I get the same thing in my hips, knees, ankles, feet. Originally it was in my hands, but that seems to have gone away. This past week I've had the same feeling in my scalp! :blink:

squirmingitch Veteran

I get the same thing in my hips, knees, ankles, feet. Originally it was in my hands, but that seems to have gone away. This past week I've had the same feeling in my scalp! :blink:

In your scalp!???!!!! Oh horrors!mad.gif

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    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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