Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Crying Mess


GFreeMO

Recommended Posts

GFreeMO Proficient

What is it in gluten that can take a happy girl who is feeling pretty well to a crying mess with severe cramping, joint and muscle pain and cracked and bleeding lips. I feel like I have the flu. Is this the autoimmune reaction and my body fighting off gluten. I was either CC'ed or corned because I feel horrible. I just took a shower and got so weak that I had to sit down and I just sat there and cried. I don't have anything to be depressed about right now.

It's so hard when you are active to just sit here and suffer. I have so many things to do but I don't feel up to any of them today.

Is there anything to do for the intestinal pains other than water? Also- would my bleeding and cracked lips have something to do with being dehydrated.

I hate this crap so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kirstie Apprentice

What is it in gluten that can take a happy girl who is feeling pretty well to a crying mess with severe cramping, joint and muscle pain and cracked and bleeding lips. I feel like I have the flu. Is this the autoimmune reaction and my body fighting off gluten. I was either CC'ed or corned because I feel horrible. I just took a shower and got so weak that I had to sit down and I just sat there and cried. I don't have anything to be depressed about right now.

It's so hard when you are active to just sit here and suffer. I have so many things to do but I don't feel up to any of them today.

Is there anything to do for the intestinal pains other than water? Also- would my bleeding and cracked lips have something to do with being dehydrated.

I hate this crap so much!

I'm sorry you are feeling so bad, I understand as I feel the exact same right now. (Literally just woken up after passing out for 2 hours after accidentally eating gluten!)

You need to be patient with your body and not beat yourself up! Its so hard and frustrating because it seems so difficult to pin down what's actually wrong with you and to find out if gluten is really causing all of these problems!

As far as cracked lips go, that's something I always suffer from even though I drink tons of water, so maybe that is a gluten symptom! I haven't really thought about it :huh: My lips have improved after biting the bullet and buying this rather expensive lip balm, but it really helps! Open Original Shared Link I presume its gluten free (I know not all makeup is :angry: ) but it's never caused me problems :)

The best thing to do is rest, enjoy yourself and take it easy! Drink tons of water, peppermint tea is very soothing for your stomach, as is ginger tea and regular sweet milky tea :)

Eat nice but bland foods that are definitely gluten free, maybe go for a walk or a swim, give your body time to prepare and DON'T feel guilty!

I really hope you feel better soon :) I just discovered this website with tons of helpful tips Open Original Shared Link

Good luck, relax and feel better!

K x

GFinDC Veteran

Hmm, water, rest, Pepto Bismol, pro-biotics, more water, maybe some peppermint tea, some marshmallow root, some aspirin and a very bland and sugar free diet.

bartfull Rising Star

And a great big ((((((HUG))))))!

KMMO320 Contributor

I am so sorry. I wish I had an answer to help you. I am still being tested. I just wanted to say that I knew how you felt only I never knew it was likely Gluten doing it to me. For the last year, I have felt weak and dizzy and unmotivated every day. I look around my house and see it a mess and I cant even stand up still long enough to wash dishes each night. I sit when I shower, and I nearly pass out when I reach my apartment (3rd floor). I thought it was because I have gained so much weight in the last year, or my thyroid out of whack again. (when I gain or lose weight my meds need to be adjusted) but then I find out..its this.

Its good to have a reason for it...but for someone like me who wants to go go go and CANT..its devastating.

I am so sorry you got glutened, I wish I knew of a way to make it easier.

MitziG Enthusiast

Braggs apple cider vinegar. A tsp in a glass of water does wonders for the stomach pain- works within seconds! Take as often as needed. The rest, well..it will pass. Hang in there, we have all been there! It gets better!

GFreeMO Proficient

Thanks everyone for the ideas, hugs and website! I am feeling better today. I appreciate it so much! It's so comforting to know that people do understand. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,325
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.