Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Crying Mess

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

What is it in gluten that can take a happy girl who is feeling pretty well to a crying mess with severe cramping, joint and muscle pain and cracked and bleeding lips. I feel like I have the flu. Is this the autoimmune reaction and my body fighting off gluten. I was either CC'ed or corned because I feel horrible. I just took a shower and got so weak that I had to sit down and I just sat there and cried. I don't have anything to be depressed about right now.

It's so hard when you are active to just sit here and suffer. I have so many things to do but I don't feel up to any of them today.

Is there anything to do for the intestinal pains other than water? Also- would my bleeding and cracked lips have something to do with being dehydrated.

I hate this crap so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kirstie Apprentice
Kirstie
Posted

What is it in gluten that can take a happy girl who is feeling pretty well to a crying mess with severe cramping, joint and muscle pain and cracked and bleeding lips. I feel like I have the flu. Is this the autoimmune reaction and my body fighting off gluten. I was either CC'ed or corned because I feel horrible. I just took a shower and got so weak that I had to sit down and I just sat there and cried. I don't have anything to be depressed about right now.

It's so hard when you are active to just sit here and suffer. I have so many things to do but I don't feel up to any of them today.

Is there anything to do for the intestinal pains other than water? Also- would my bleeding and cracked lips have something to do with being dehydrated.

I hate this crap so much!

I'm sorry you are feeling so bad, I understand as I feel the exact same right now. (Literally just woken up after passing out for 2 hours after accidentally eating gluten!)

You need to be patient with your body and not beat yourself up! Its so hard and frustrating because it seems so difficult to pin down what's actually wrong with you and to find out if gluten is really causing all of these problems!

As far as cracked lips go, that's something I always suffer from even though I drink tons of water, so maybe that is a gluten symptom! I haven't really thought about it :huh: My lips have improved after biting the bullet and buying this rather expensive lip balm, but it really helps! Open Original Shared Link I presume its gluten free (I know not all makeup is :angry: ) but it's never caused me problems :)

The best thing to do is rest, enjoy yourself and take it easy! Drink tons of water, peppermint tea is very soothing for your stomach, as is ginger tea and regular sweet milky tea :)

Eat nice but bland foods that are definitely gluten free, maybe go for a walk or a swim, give your body time to prepare and DON'T feel guilty!

I really hope you feel better soon :) I just discovered this website with tons of helpful tips Open Original Shared Link

Good luck, relax and feel better!

K x

GFinDC Veteran
GFinDC
Posted

Hmm, water, rest, Pepto Bismol, pro-biotics, more water, maybe some peppermint tea, some marshmallow root, some aspirin and a very bland and sugar free diet.

bartfull Rising Star
bartfull
Posted

And a great big ((((((HUG))))))!

KMMO320 Contributor
KMMO320
Posted

I am so sorry. I wish I had an answer to help you. I am still being tested. I just wanted to say that I knew how you felt only I never knew it was likely Gluten doing it to me. For the last year, I have felt weak and dizzy and unmotivated every day. I look around my house and see it a mess and I cant even stand up still long enough to wash dishes each night. I sit when I shower, and I nearly pass out when I reach my apartment (3rd floor). I thought it was because I have gained so much weight in the last year, or my thyroid out of whack again. (when I gain or lose weight my meds need to be adjusted) but then I find out..its this.

Its good to have a reason for it...but for someone like me who wants to go go go and CANT..its devastating.

I am so sorry you got glutened, I wish I knew of a way to make it easier.

MitziG Enthusiast
MitziG
Posted

Braggs apple cider vinegar. A tsp in a glass of water does wonders for the stomach pain- works within seconds! Take as often as needed. The rest, well..it will pass. Hang in there, we have all been there! It gets better!

GFreeMO Proficient
GFreeMO
Posted
  • Author

Thanks everyone for the ideas, hugs and website! I am feeling better today. I appreciate it so much! It's so comforting to know that people do understand. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.