Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

At What Age Did You Develop Neuropathy, Joint, Muscle Pain?


n1c0le

Recommended Posts

n1c0le Newbie

Hey everyone!

I'm curious at what age everyone experienced neuropathy, joint, and or muscle pain. I'm 23 years old and my doctors and I suspect Celiac, however my doctor recently told me these symptoms wouldn't come out until further down the road in undiagnosed Celiac!

Was this true for you? Did you experience these symptoms at a younger age? Did you experience them before or after other symptoms? Any details about these symptoms will help me! Even a description of what it's like for you!

Thanks, and hope everyone is feeling great today :).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mnicole1981 Enthusiast

Well, I am 31 and I experience muscle and joint pain. I have a hard time going up stairs at times because my knees hurt so bad. I was 30 when that started.

MrsAcE Newbie

I have not been diagnosed yet however my joint pain, knees, shoulders, lower back pain with spasms started when i was 26 i am now 29

codetalker Contributor

I started experiencing bone and joint pain right around your age (about 22-23 YO). In particular, my knees gave out. It was necessary to give up jogging and any activity that involved running. Even a few seconds would cause my knees to lock up.

mushroom Proficient

It seems more reversible if you get it early. I got it in my sixties and am on permanent RA meds for it (psoriatic arthritis).

jnh380 Rookie

I didn't even think of it until now, but I had physical therapy 18 months ago for upper back & neck pain. Just believed it was bad posture, but now looking back and at the same time I developed neuropathy in my fingers it now all makes sense... BTW i am now 33 so this started when I was 31.

squirmingitch Veteran

I began to get back pain around 30 & knees were about 5 years before that. Shoulders around 30.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MitziG Enthusiast

For my son, he had full blown neuropathy by the age of 8.

NoKittyNo Newbie

Hmm.

I still am an, "Unknown" case, as I went for a screening last Friday, still waiting on results (expecting negative, as that seems to be the case for tests), but this is an interesting topic. If I have any sort of Gluten-Intolerance, or Celiac issues, I never would have put two and two together with joint pain.

How does one know what is normal wear and tear, and something brought on I wonder? I have had knee issues since I was 19ish, but I suspected it was overall from running, as I would run a few days a week, about an hour a time. I tried so many methods to alleviate the pain from: Hot Water Bottle, Icing, cutting down my running, taking Omega 3's, Glucosamine (always) and I began weight lifting to negate any muscle imbalances that could occur from over-development of my Quadriceps. But the pain ALWAYS came back, it could be so painful if I was working (in retail, standing) I had to hunch over and sometimes showering hurt, just standing, but then it would go away.

I haven't run actually in over a month or two, I have a Sole Treadmill cost us well over 2,000 dollars I couldn't run on, my knees, my shins - it hurt. I bought a Spin Bike (love of my life) and have been doing more Stiff-Legged Deadlifts and other hamstring exercises to maintain a balance (along with Squats, Back/Front) and my knees haven't felt this great in years, I can't even recall.

So It's hard to tell if laying off Gluten is a culprit.. or just changing my muscle structures..Honestly, if tests come back negative, this is a life-style chance I will do my damnedest to adapt to, because if I can feel normal, like other people, by just following a stricter regime? I think it's well worth it - difficult maybe, but well worth it. If it takes weeks to break a habit, I hope it takes as short of time to break this illness and reverse any ill effects.

Ahhh.. If its Celiac it's just insane isn't it? How one tiny intolerance can just.. ruin your life.

n1c0le Newbie

Thanks everyone! Wow, so many symptoms at young ages. I too went to physical therapy for 4 months for suspected symmetrical knee sprains. Then my neuropathy kicked in and that's what lead me back to what doctors have suggested to me many times - celiac!

ravenwoodglass Mentor

For me those problems developed in childhood at around age 7 or so. It got worse as years went on and became very severe by the time I was in my 30's. Most of the problems resolved within a couple years gluten free but some nerve damage remains (no pain though) and is likely permanent as I have been gluten-free for almost 10 years now.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    2. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    3. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Healthy Gluten Free Foods low sugar that you found?

    5. - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,252
    • Most Online (within 30 mins)
      7,748

    Kahuna
    Newest Member
    Kahuna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.