Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Afraid To Say It Out Loud

bartfull

Recommended Posts

IrishHeart Veteran
IrishHeart
Posted

Gemini and I have an understanding that she is to pick me up on the way to anywhere she goes... :) .... so, now, 2 of us are coming.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted
  • Author

YES!!! PLEASE come! I'll even close the shop for at least a day so I can be your sight-seeing guide. gluten-free restaurants in Hot Springs? Not a chance! But acutally, I HAVE eaten at Wolly's and gotten away with it. But Rapid City has lots of gluten-free places.

To get here, you would fly into Rapid City Regional airport. It's probably more expensive to fly into Rapid than it would be to fly to Denver and rent a car, but then you're looking at a six or seven hour drive to get to the Hills.

I used to live in Connecticut so I know what you mean by paved over cow paths. One thing I think you will like about the Hills is it is halfway between being "big sky" West, and rural New England. There are a lot more trees than the video showed, and our mountains are more like New England mountains than the Rockies. It's big and it's "West", but it is also small and cozy. Simply put, it's the most beautiful place I've been in my life, and I have traveled all over this country.

So, come visit. Gemini, Irish Heart, and EVERYBODY ELSE. I want to meet ALL of you and thank you in person for all you have done for me!!

lucky28 Explorer
lucky28
Posted

Yay! So glad to hear that your hard work and struggle is finally paying off!

IrishHeart Veteran
IrishHeart
Posted

I used to live in Connecticut so I know what you mean by paved over cow paths. One thing I think you will like about the Hills is it is halfway between being "big sky" West, and rural New England. There are a lot more trees than the video showed, and our mountains are more like New England mountains than the Rockies.

So, come visit. Gemini, Irish Heart, and EVERYBODY ELSE. I want to meet ALL of you and thank you in person for all you have done for me!!

This born and bred Bostonian and die hard NOO ENGLANDAH would love to meet you someday, too! I will remember your offer.

;)

love2travel Mentor
love2travel
Posted

YES!!! PLEASE come! I'll even close the shop for at least a day so I can be your sight-seeing guide. gluten-free restaurants in Hot Springs? Not a chance! But acutally, I HAVE eaten at Wolly's and gotten away with it. But Rapid City has lots of gluten-free places.

To get here, you would fly into Rapid City Regional airport. It's probably more expensive to fly into Rapid than it would be to fly to Denver and rent a car, but then you're looking at a six or seven hour drive to get to the Hills.

I used to live in Connecticut so I know what you mean by paved over cow paths. One thing I think you will like about the Hills is it is halfway between being "big sky" West, and rural New England. There are a lot more trees than the video showed, and our mountains are more like New England mountains than the Rockies. It's big and it's "West", but it is also small and cozy. Simply put, it's the most beautiful place I've been in my life, and I have traveled all over this country.

So, come visit. Gemini, Irish Heart, and EVERYBODY ELSE. I want to meet ALL of you and thank you in person for all you have done for me!!

What a tremendous thing to be able to say that about where you live. Unfortunately I cannot - it is not a pretty town whatsoever. Except for our park which I love but it is not very established so the trees are not large. However, our house in Croatia is a different matter. That is our piece of paradise. An old stone house nestled in thick forest surrounded by olive groves and vineyards and the Adriatic Sea - a far cry from our highly industrialized oil town!

Anyway, I believe I mentioned to you awhile ago that I have been to the Black Hills (saw the Passion Play) and really enjoyed the beauty of the area.

elleystar Newbie
elleystar
Posted

Hey, small world, I am a ways north of you up in Spearfish!

I still never got the MRI. Some friends were talking about a benefit party for me but when our local no-kill animal shelter burned to the ground (they lost 11 dogs and one cat), I put on a benefit party for them instead. Then smene else did too. And after that there was ANOTHER benefit party for them (Can you tell we lve animals here?) People are benefitted out, at least for a while.

But the way I'm feeling right now, I really think that whatever it is, it's going to go away and never come back.

This was really sad. People rallied to support them though, I heard donations were coming in from all over the world. That was very selfless of you to put on a benefit for the shelter instead of yourself!

sreese68 Enthusiast
sreese68
Posted

And I am HAPPY. I don't mean the kind of happy you feel when something good happens. I mean the kind of happy that has me waking up in the morning looking forward to the day, knowing it's going to be a good day no matter what happens.

Now, I think I'll go run a marathon or something. Maybe build a bridge, fight a forest fire, or invent something that will insure world peace. I've got to do SOMETHING with all this energy! :lol:

I love you all!!!

So thrilled for you!! I think finally being HAPPY after not having that for years was one of the nicest surprises I had! So glad it happened for you, too!

I took my new energy and went tandem skydiving. Twice. So much fun!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted
  • Author

Hey, small world, I am a ways north of you up in Spearfish!

This was really sad. People rallied to support them though, I heard donations were coming in from all over the world. That was very selfless of you to put on a benefit for the shelter instead of yourself!

Maybe one of these days we can get together. There is a really good Indian restaurant in Rapid that is gluten-free and most of their stuff is corn free too. I could meet you there and we can talk about our diets, and our beautiful Hills, and hey - we can even gossip about some of the folks on this forum! (Just joking :lol: )

Yeah, it was heartbreaking when Tonia's burned down, but the one good thing that came out of it is the raised awareness. I just hope that when she is done rebuilding people keep in mind that she ALWAYS needs donations. 90 dogs can go through a lot of food quickly!

So, when our friends come out to visit we can take them to the Needles Highway and to Spearfish Canyon. They are my two favorite places in the world. And some time when you make it down to Hot Springs, you'll have to stop and see me at the music store. I'll even share my lunch if you don't mind eating my lousy cooking!

bartfull Rising Star
bartfull
Posted
  • Author

So thrilled for you!! I think finally being HAPPY after not having that for years was one of the nicest surprises I had! So glad it happened for you, too!

I took my new energy and went tandem skydiving. Twice. So much fun!!!!

I'm too old to try skydiving now, but if I were younger...

But happy? Oh yeah. Between feeling lousy and the emotions involved with taking care of and then losing my friend, I haven't played much music in the past seven months. But last Thursday I wrote a new song and suddenly I feel REALLY alive again!

It feels so good to feel good!!

My wish is that every single member of this forum, and those who haven't even found us yet, will someday feel as good as you and I do now.

dani nero Community Regular
dani nero
Posted

My wish is that every single member of this forum, and those who haven't even found us yet, will someday feel as good as you and I do now.

Amen to that :-)

Gemini Experienced
Gemini
Posted

What a tremendous thing to be able to say that about where you live. Unfortunately I cannot - it is not a pretty town whatsoever. Except for our park which I love but it is not very established so the trees are not large. However, our house in Croatia is a different matter. That is our piece of paradise. An old stone house nestled in thick forest surrounded by olive groves and vineyards and the Adriatic Sea - a far cry from our highly industrialized oil town!

Anyway, I believe I mentioned to you awhile ago that I have been to the Black Hills (saw the Passion Play) and really enjoyed the beauty of the area.

OK folks...sounds like Croatia will be next on the bucket list! Sounds heavenly...... :D

Bartfull....I am in the midst of a move into my new home and it's supposed to happen by end of July so travel right now is not an option BUT there is always next year and I really want to come and see your home. What a great description and I can picture it very well. I like trees...... ;)

love2travel Mentor
love2travel
Posted

OK folks...sounds like Croatia will be next on the bucket list! Sounds heavenly...... :D

Yes, it is heavenly. Almost hard to imagine. Even more difficult to express in words! You will just have to come and see it. My cousin who was born and has lived in Germany his entire life has traveled to over 100 countries and he maintains Croatia is his favourite. :)

Gemini Experienced
Gemini
Posted

Yes, it is heavenly. Almost hard to imagine. Even more difficult to express in words! You will just have to come and see it. My cousin who was born and has lived in Germany his entire life has traveled to over 100 countries and he maintains Croatia is his favourite. :)

Well, if I knew that you and I would be cooking all the food, I'd be happy as anything to come to Croatia! My biggest fear when traveling to out of the way places is getting sick or lack of good food to eat. Not a problem in your kitchen! Bed and breakfast for Celiacs has got to be a HUGE, untapped market!

I should really do this in retirement.......

IrishHeart Veteran
IrishHeart
Posted
Bed and breakfast for Celiacs has got to be a HUGE, untapped market!

I should really do this in retirement.......

I am waiting for you to retire so we can do this.

Lawd knows we have enough talent in this group alone to run one, feed them well and entertain them nightly while we all sip our wine....

we have artists, musicians, cooks, bakers....O mama,

we could make a fortune, meet more wonderful celiacs and live happily ever after.

elleystar Newbie
elleystar
Posted

Maybe one of these days we can get together. There is a really good Indian restaurant in Rapid that is gluten-free and most of their stuff is corn free too. I could meet you there and we can talk about our diets, and our beautiful Hills, and hey - we can even gossip about some of the folks on this forum! (Just joking :lol: )

Yeah, it was heartbreaking when Tonia's burned down, but the one good thing that came out of it is the raised awareness. I just hope that when she is done rebuilding people keep in mind that she ALWAYS needs donations. 90 dogs can go through a lot of food quickly!

So, when our friends come out to visit we can take them to the Needles Highway and to Spearfish Canyon. They are my two favorite places in the world. And some time when you make it down to Hot Springs, you'll have to stop and see me at the music store. I'll even share my lunch if you don't mind eating my lousy cooking!

WaitWHAT? A gluten-free Indian restaurant in Rapid? Do you mean Curry Masala?

bartfull Rising Star
bartfull
Posted
  • Author

WaitWHAT? A gluten-free Indian restaurant in Rapid? Do you mean Curry Masala?

Yes! A while back there was a "gluten free festival" in Rapid and all of the restaurants that had gluten free menus were there with food. I was rather limited because of the corn intolerance, but I still ate well, and some of my favorites came from Curry Masala.

The festival was wonderful. There were several mini seminars, one with a compounding pharmacist, one on gluten-free kids, one on testing, all kids of informative stuff. I hope they do it again.

Gemini Experienced
Gemini
Posted

I am waiting for you to retire so we can do this.

Lawd knows we have enough talent in this group alone to run one, feed them well and entertain them nightly while we all sip our wine....

we have artists, musicians, cooks, bakers....O mama,

we could make a fortune, meet more wonderful celiacs and live happily ever after.

Don't hold your breath....at the rate this economy is going, it's going to be a while before I retire. However, when it happens, you'll be the first to know. Soemone will have to cover the breakfast because I am NOT a morning person. I can cover the wine hour in the afternoon...... ;)

dani nero Community Regular
dani nero
Posted

I am waiting for you to retire so we can do this.

Lawd knows we have enough talent in this group alone to run one, feed them well and entertain them nightly while we all sip our wine....

we have artists, musicians, cooks, bakers....O mama,

we could make a fortune, meet more wonderful celiacs and live happily ever after.

Don't let this just simple chitchat! :-O It sounds like the perfect place for a vacation! You should establish it in Croatia or italy! I would definitely come to it every year!

IrishHeart Veteran
IrishHeart
Posted

I can cover the wine hour in the afternoon...... ;)

Now see, this is the problem....ALL of you will want the afternoon wine hour shift and I'll be stuck with the breakfast shift. :angry:

I want WINE TOO!!!!!! :lol:

IrishHeart Veteran
IrishHeart
Posted

Don't let this just simple chitchat! :-O It sounds like the perfect place for a vacation! You should establish it in Croatia or italy! I would definitely come to it every year!

This is where we need LOVE2TRAVEL---she has the place in Croatia!!!!

bartfull Rising Star
bartfull
Posted
  • Author

I can't drink wine so I could take the breakfast shift - IF I were a morning person. But I can play guitar for you. :)

IrishHeart Veteran
IrishHeart
Posted

I can't drink wine so I could take the breakfast shift - IF I were a morning person. But I can play guitar for you. :)

That works, honey!!

I KNEW I'd get the breakfast shift anyway. :)

squirmingitch Veteran
squirmingitch
Posted

Awwwww, that's okay; I'll take the breakfast shift as long as someone else makes the pastries & breads. Then I'll be happy to serve them up as well as cook bacon, eggs, sausage, grits, ham...whatever. As long as the guests don't expect me to make morning chit chat. I tend to be on auto pilot in the morning. Than I'll go take a nap & join y'all for wine later.cool.gif

IrishHeart Veteran
IrishHeart
Posted

Awwwww, that's okay; I'll take the breakfast shift as long as someone else makes the pastries & breads. Then I'll be happy to serve them up as well as cook bacon, eggs, sausage, grits, ham...whatever. As long as the guests don't expect me to make morning chit chat. I tend to be on auto pilot in the morning. Than I'll go take a nap & join y'all for wine later.cool.gif

AHA!! Now,I'm all set. Here's my breakfast shift partner!

I'll take the pastries and breads, sweetie!

and Lawd knows, I've got the chit-chat. :lol:

I'll be sunning myself in the afternoon and joining you all for wine later, too.

Okay, we have the plan...who has the $$$$$$$$$ and the place?

elleystar Newbie
elleystar
Posted

Yes! A while back there was a "gluten free festival" in Rapid and all of the restaurants that had gluten free menus were there with food. I was rather limited because of the corn intolerance, but I still ate well, and some of my favorites came from Curry Masala.

The festival was wonderful. There were several mini seminars, one with a compounding pharmacist, one on gluten-free kids, one on testing, all kids of informative stuff. I hope they do it again.

Bummed that I missed that!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,877
    • Most Online (within 30 mins)
      7,748
    Christian Konig
    Newest Member
    Christian Konig
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.