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Celiac Day 1

amcam17

By amcam17
in Coping with Celiac Disease

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amcam17 Rookie
amcam17
Posted

Hello Everyone,

I'm new to all of this so I have no idea what to do. Yesterday I had an endo procedure done to confirm Celiac. Well,it turned out that I have Celiac. I have no idea where to go from here. All I know is I'm beyond fed up with feeling crummy all of the time. I have nothing really to go off of on what I can and can't eat all I know is my diet has to change today. Someone please help guide me, I'm scared and all I know is it is a huge life change.....

~Amie

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Ninja Contributor
Ninja
Posted

Hi Amie – Welcome to the board!

Here's an awesome thread that may help you: "Newbie Info 101"

Ask as many questions as you need/want to, we're all here to help! It will get easier, especially once you start to feel better. :)

GFinDC Veteran
GFinDC
Posted

Welcome Amy,

It can be kind of scary at first. After while you will find there are lots of foods to eat though. Staying away from dairy and soy may help you adjust. Cooking your food at home from whole ingredients is also very helpful. Limiting sugar and starch can help too. Many people end up with a lot of bloating at first due to the bacterial changes in the gut. Different food for you equals different food for them too. So limiting sugars and starches can help by discouraging overgrowth of gas making bacteria. Taking probotics and digestive enzymes may help too.

Think about eatting a simple diet of whole foods, rather than lots of processed foods. If you can find foods with 3 or fewer ingredients that is usually a good thing. As long as though ingredients aren't wheat, ray, barley or oats. Not all of us react to oats and soy but some do.

Dairy is often a problem but you may be able to eat it after you have healed a while.

Remember to bring your towel and don't panic. (Hitchhikers)

More threads to consume: :)

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Celiac Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Mateto Enthusiast
Mateto
Posted

Hi!

You are SO fortunate to have had an endoscopy to find this out. Welcome on the board, and watch out for triticale too. It's a cross of wheat and something else that I can't remember right now, but it's 100000% pure sickening gluten.

jigsawfallingintoplace Newbie
jigsawfallingintoplace
Posted

Welcome to the forum:P

...and welcome to the start of your brand new life.

Iam nearly 4 months in and apart from the odd crash and mistake, my life is better than I couldever imagine when I was feeling as you put it 'crummy all the time'.

Everyone on here is lovely and some are very wise and experienced at all this gluten-free stuff so read, read and some more.

I have found that sticking to food as nature intended has been the best start for me. So I am eating roast chicken, potatoes - jacket, boiled, mashed or chipped, veggies galore (although I am a fan of frozen pease lol) . I eat salmon, beef, all the meats really. I eat crisps (read the ingredients as many are naturally gluten-free) and I have the odd treat like a choc bar which i check is gluten-free (many are).

On the whole, I find I have to be more organised - can't just say sod it I will have a take away and not cook tonight lol but its not that difficult.Once this option for pizzas and chinese etc was gone I kinda just accepted it really - it's easier than trying to lose weight and being tortured with the should I or shouldnt I school of thought. The answer is well if it makes me sick then I cant have it and that is that.Infact I really dont want it as I remember how bad I feel if I eat gluten stuff.

A word on the dairy - yes, stay of it for at least a month. goats cheese and sheep cheese feta were fine for me but other stuff including yoghurt of all things made me feel rotten. Your tummy just can't handle dairy until it hashad a chance to heal and the syptoms can be very similar to gluten so it is confusing. I am just starting to have cheese and milk now and I seem to be okay.

Eat loads of fresh veg and salad and fruit if you can. I love olives and herby salads so I am really enjoying salads again.

I suggest you don't eat out for a bit until you have built up some confidence - it just isnt worth it. I ate out in the early days and guessed or was given poor info. I was ill as a result. Now I know what to ask and I double check. I dont care about being a pain in the butt because I do not want to be ill its as simple as that.

Bit by bit you will get used to it and the change in your health will be marked - I can virtually guarantee it.

wishing you lots of luck (((hugs)))

Jigsaw xx

Cara in Boston Enthusiast
Cara in Boston
Posted

Welcome -

We have been gluten free for 1 year and three months. It was hard and overwhelming at first, but once you start feeling better, you get really motivated to get it right. Now it is a piece of cake and I really don't miss out on much.

Here's what NOT to do: Don't just go to the store and buy all the Gluten Free food you see - you don't really need it and it is mostly just empty, starchy calories. We bought it all - bagels, waffles, bread, crackers, pizza crusts, etc. etc. and I quickly put on 20 pounds.

After a while, I stopped craving these food (and for the most part, they really were not as good as the original, so why bother?) are started concentrating on cooking really delicious, fresh, naturally gluten free food. Since we no longer go out to eat as much, it sort of balanced out in our budget. Now I buy really good oils, cheeses, etc. and really enjoy my food. The whole family is eating better and we all feel better because of it.

Hang in there - it gets easier with time and practice.

Cara

sharilee Rookie
sharilee
Posted

Welcome! I was diagnosed with celiac late February 2012. It is very overwhelming at first. But it does get easier with time. When I was first diagnosed I took my list of ingredients to watch for and checked everything. Would spend a long time shopping. Now I have learned the ingredients to watch for and it is easier and quicker to read the labels. At first (as others have said) it is best to avoid dairy and try to eat natural foods not processed foods while your body heals.

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txgal748 Apprentice
txgal748
Posted

Hi! Amie,

My neurologist told me I have Celiac disease May 21st because my IgA was 101. The gastroenterologist decided on a celiac panel to check for the celiac genes.

Anyhow, fortunately I am a Mexican. Traditional Mexican food uses very little flour. Flour tortillas are more of a modern Mexican food. As previous people have posted cooking meals from all natural ingredients is great. One thing to be mindful of in the beginning is condiments. You have to read labels. Worstesire sauce, Heinz 57, soy sauce, BBQ,sauce, and other marinades have gluten. Fortunately you can find substitutes for these such as gluten free soy sauce and BBQ sauce.

Chin up, at least with celiac you don't have to take any medications with terrible side effects.

Txgal

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
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    • knitty kitty
      My only proof

      By knitty kitty · Posted

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