Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Enough?


cmom

Recommended Posts

cmom Contributor

Finally got my sons to get the blood tests. I am agitated b/c I specifically stated that I wanted them to have the full celiac panel. When they went to the lab, they also stated they wanted it. Our local hospital sends the blood to a hospital in a larger city to be tested. They DID NOT do the full panel b/c they said the first part of the test did not indicate any celiac so it was not necessary. Here is what Dusty's lab report says (sorry for the length):

"Celiac Disease Panel Reflex to Titer

IMMUNOGLOBULIN A. Serum 162 mg/dL Reference Interval:68-378

Endomysial Antibody,IgA with reflex to titer (00-50734) to follow:

Client Comments:m00067501

LIS#: 20221418/GCH

Endomysial Antibody, IgA with Reflex to Titer

ENDOMYSIAL Ab, IgA Screen None Detected

ENDOMYSIAL Ab, IgA Titer NOT DONE

Because the Endomysial Ab,IgA screen was negative, the Endoymsial Ab IgA titer was not performed.

TEST INFORMATION:Endomysial Ab, IgA

Endomysial antibodies are screened using an ELISA tissue transglutaminase (tTG) assay. All samples which are positive are titered by IFA. The endomysial antigen has been identified as the protein cross-linking enzym"e known as tissue transglutaminase."

(Darin's report said the same thing except his level was 95 mg/dL) Is this enough info for me to be satisfied that they do not have celiac or should more testing be done to be sure? Thanks so much for your help as this really concerns me. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Well, that's not the full panel. They didn't do the anti-gliandin IgG or IgA. As for the "test not done" bit - I think all that's saying is that because it was negative, they didn't to the test that would give you a number.

Carriefaith Enthusiast
Because the Endomysial Ab,IgA screen was negative, the Endoymsial Ab IgA titer was not performed.

TEST INFORMATION:Endomysial Ab, IgA

Endomysial antibodies are screened using an ELISA tissue transglutaminase (tTG) assay.

I would request the tissue transglutaminase (tTG) to be done. I'm assuming from the above statement, that it was not done. This test is highly specific for celiac disease and should most definatly be used to test for celiac. If your doctor and lab won't do it, then maybe find someone who will?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,660
    • Most Online (within 30 mins)
      7,748

    MandyK
    Newest Member
    MandyK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.