Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Who Gave Up Dairy...


Christine0125

Recommended Posts

Christine0125 Contributor

How long did you avoid dairy before reintroducing it and were you successful?

I've been officially gluten free since April but semi gluten-free since the beginning of the year (had to go back on for a challenge). I'm at the point I need to admit dairy is causing issues. I was in denial and ate gluten free pizza last night (don't worry - not dominos) and am now paying for it; same issue with a bowl of ice cream a week ago. Up until a few weeks ago I was enjoying dairy without significant issues (maybe a little heaviness in my stomach but very manageable and frankly worth the mild discomfort). Trying to look at the positive side, I'm hoping this is a sign that my system is healing as I've heard dairy intolerance is common early on after diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

The first time I went off cow dairy it was at the same time as I went off gluten. It took a year until I could eat it again without a stomachache, though I'm not sure I tried sooner. I tolerated goat and sheep dairy that time.

I have been feeling poorly overall and went back off dairy again after eating it five years. I've been off dairy since last October. This time the reaction is fatigue and sometimes stomach trouble. I did OK with a little goat cheese last month and I can cook with ghee so that was six months. I tried some regular cheese yesterday and it made me nauseous though.

benXX Rookie

Google for "dangers of milk" and get shocked. You might not want to go back on dairy products now you have learned to do without.

Skylark Collaborator

Google for "dangers of milk" and get shocked. You might not want to go back on dairy products now you have learned to do without.

Look in the legitimate medical literature (which does not show up on Google) and you will get an entirely different picture. Most of the health information on the Internet is garbage.

Gemini Experienced

I hate to say this but I am still at the dairy "very light" stage and it ain't coming back for me. I do fine with small amounts like milk in my tea and a little cheese sprinkled on food but if I eat ice cream, pudding or any large hit of dairy, I may as well have taken a laxative. :huh: It's been 7 years so I no longer am upset about it. Going dairy light feels better for me anyway.

At least I can eat a little, where it counts.

benXX Rookie

Look in the legitimate medical literature (which does not show up on Google) and you will get an entirely different picture. Most of the health information on the Internet is garbage.

oooops our info on celiac is on the internet too ...

FWIW Asians and Africans seem to do very well without dairy

Skylark Collaborator

oooops our info on celiac is on the internet too ...

FWIW Asians and Africans seem to do very well without dairy

Yep and a fair amount of wrong/inaccurate answers on the forum too. ;) There are quite a few of us who spend a lot of time and effort correcting misconceptions.

Agreed that some people seem to have a better genetic background to eat dairy than others.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

How long did you avoid dairy before reintroducing it and were you successful?

I've been officially gluten free since April but semi gluten-free since the beginning of the year (had to go back on for a challenge). I'm at the point I need to admit dairy is causing issues. I was in denial and ate gluten free pizza last night (don't worry - not dominos) and am now paying for it; same issue with a bowl of ice cream a week ago. Up until a few weeks ago I was enjoying dairy without significant issues (maybe a little heaviness in my stomach but very manageable and frankly worth the mild discomfort). Trying to look at the positive side, I'm hoping this is a sign that my system is healing as I've heard dairy intolerance is common early on after diagnosis.

So, if I understand right you have gone 2-3 months gluten-free, then tried milk and had a problem with the milk. My suggestion is that you wait another 2-3 months and try again. Assuming you do not have a problem with milk, you still will need your gut to heal before it can handle it. Depending how bad you were, and how quickly you normally heal that could be as much as a year or two. (base on my reading of others experiences on this board) Every one is different.

Mom23boys Contributor

I tend to agree with the no dairy crowd.

GFinDC Veteran

I can do a just a small amount of dairy but don't eat it regularly and don't buy it. It just doesn't work out too well for me. But there are plenty of options for dairy substitutes around these days. Some studies have said up to 18 months for healing of the villi. There is also the issue of gut flora being re-establsihed to process dairy. Probiotics can help with that. But everyone has to test for themselves to see how their own bodies react. We are not all the same.

Christine0125 Contributor

So, if I understand right you have gone 2-3 months gluten-free, then tried milk and had a problem with the milk. My suggestion is that you wait another 2-3 months and try again. Assuming you do not have a problem with milk, you still will need your gut to heal before it can handle it. Depending how bad you were, and how quickly you normally heal that could be as much as a year or two. (base on my reading of others experiences on this board) Every one is different.

Yes... About 2 months gluten free since my last gluten challenge. I seemed to tolerate dairy without issue until the last 2 weeks. Of course it's right before vacation and gluten-free and dairy free will be even more challenging. Bummer! I am ready for a break thru without these roller coaster symptoms. The endoscopy showed subtotal villous atrophy but I am just not a patient person by nature.

deb445 Rookie

I'm not saying this to create conflict...I have found with personal experience breast feeding my children...what you eat, ends up in your milk. One little slip up in MY diet, would result in vomiting, rashes, gi distress in my son.

And I think with that being said, all the grain sludge that cows consume, inevitably ends up in their milk.

IF you are sensitive ( I think it has been established that some are more sensitive than others...) then I would recommend coconut milk or almond milk as opposed to dairy.

But, I fear this is not a popular belief or topic.

Sorry - had to share.

If you're concerned about not getting enough calcium, isn't it funny how the countries that eat the MOST dairy (for calcium) have the lowest bone density? It is very curious.

lucky28 Explorer

I haven't given up dairy BUT I rely heavily on lactose enzyme pills and probiotics. I am very, very sensitive and usually have to take at least 1 pill even for a little butter on a potato or a cup of yogurt etc. But after 10 months gluten-free I was pleasantly surprised last night when we made gyros with feta cheese and greek yogurt sauce, didn't take any enzyme and I was fine!! No reaction what-so-ever! A small step, I know I can't do more than that yet (last week I ate a yogurt pop and had horrible pain!) But hoping I'm on my way! ;)

Skylark Collaborator

I'm not saying this to create conflict...I have found with personal experience breast feeding my children...what you eat, ends up in your milk. One little slip up in MY diet, would result in vomiting, rashes, gi distress in my son.

And I think with that being said, all the grain sludge that cows consume, inevitably ends up in their milk.

IF you are sensitive ( I think it has been established that some are more sensitive than others...) then I would recommend coconut milk or almond milk as opposed to dairy.

But, I fear this is not a popular belief or topic.

I'm a little surprised that you would post false and frightening rumors in a thread where we are talking about misinformation on the Internet. <_< Maybe you were trying to help my point? Cows have a wildly different digestive system from humans and they fully digest grains and grasses. Studies have shown that there is no trace of the grains cows eat in their milk.

love2travel Mentor

It took six months for me. I still limit my dairy to aged cheeses (or goat's cheese).

deb445 Rookie

Enzymes only seemed to work for a few months.

Christine0125 Contributor

I haven't given up dairy BUT I rely heavily on lactose enzyme pills and probiotics. I am very, very sensitive and usually have to take at least 1 pill even for a little butter on a potato or a cup of yogurt etc. But after 10 months gluten-free I was pleasantly surprised last night when we made gyros with feta cheese and greek yogurt sauce, didn't take any enzyme and I was fine!! No reaction what-so-ever! A small step, I know I can't do more than that yet (last week I ate a yogurt pop and had horrible pain!) But hoping I'm on my way! ;)

YAY! Thanks for sharing. I am happy for you.

deb445 Rookie

I'm a little surprised that you would post false and frightening rumors in a thread where we are talking about misinformation on the Internet. <_< Maybe you were trying to help my point? Cows have a wildly different digestive system from humans and they fully digest grains and grasses. Studies have shown that there is no trace of the grains cows eat in their milk.

Truly, my experience is not false.

If I slipped up in my diet while I was breastfeeding, (I kept a journal) I would spend the night rubbing tummies, backs, cleaning up vomit and changing diapers that couldn't contain what they should have.

I haven't intended to offend - I just wonder if there is still science that hasn't been discovered yet, because this has been my experience.

And since I thought the thread was about dairy - not misinformation on the net - I maintain that coconut milk and almond milk has been a great subsitute in our house.

Skylark Collaborator

Truly, my experience is not false.

If I slipped up in my diet while I was breastfeeding, (I kept a journal) I would spend the night rubbing tummies, backs, cleaning up vomit and changing diapers that couldn't contain what they should have.

I haven't intended to offend - I just wonder if there is still science that hasn't been discovered yet, because this has been my experience.

And since I thought the thread was about dairy - not misinformation on the net - I maintain that coconut milk and almond milk has been a great subsitute in our house.

Yes, stuff comes through human breast milk. You can't extend it to grains coming through cows milk though. Cow dairy is completely safe in terms of being gluten-free, even if the cow is being fed wheat.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,134
    • Most Online (within 30 mins)
      7,748

    Driver
    Newest Member
    Driver
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.