Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy, Lactose, Casein, Milk


GF Lover

Recommended Posts

GF Lover Rising Star

I've figured out that milk and ice cream don't agree with me. My question is where do these two items fit? Is dairy free everything in the dairy section at the store? Is just milk the problem? And where does lactose come in? Oh, and cheese, where does it fit?

I still do fine with colby/jack and sour cream. I'm really confused as what to cut. Any "instructions" are greatly appreciated. Be well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

I've figured out that milk and ice cream don't agree with me. My question is where do these two items fit? Is dairy free everything in the dairy section at the store? Is just milk the problem? And where does lactose come in? Oh, and cheese, where does it fit?

I still do fine with colby/jack and sour cream. I'm really confused as what to cut. Any "instructions" are greatly appreciated. Be well.

My suggestion is that you first is remove ALL dairy of any kind. Then once your symptoms are gone add back in just casein and see how that goes for a few weeks. If your fine with that, then add lactose. If not remove casein from diet and wait till symptoms are gone before trying lactose (which I am not even sure you can have lactose and not casein in a product?).

Through that process you will narrow down what the problem is. If you have problems with both lactose and casein then that means no dairy products of any kind. If it is just lactose then there are some dairy products you can have.

It is important you go slow and record everything to ensure accuracy of testing.

Razzle Dazzle Brazell Enthusiast

I've figured out that milk and ice cream don't agree with me. My question is where do these two items fit? Is dairy free everything in the dairy section at the store? Is just milk the problem? And where does lactose come in? Oh, and cheese, where does it fit?

I still do fine with colby/jack and sour cream. I'm really confused as what to cut. Any "instructions" are greatly appreciated. Be well.

Hey gluten-free Lover. I started having problems with dairy too in this is what i did. I eliminated all dairy products from my diet and then reintroduced lactose free dairy milk. When i still had problems i realized it was more than likely the protein in milk rather than the sugar. That would mean even cheeses and anything dairy I have problems with, lactose free or not.

However i do okay with solid dairy products too as long as i dont consume way too much or eat it too often.

Skylark Collaborator

I've figured out that milk and ice cream don't agree with me. My question is where do these two items fit? Is dairy free everything in the dairy section at the store? Is just milk the problem? And where does lactose come in? Oh, and cheese, where does it fit?

I still do fine with colby/jack and sour cream. I'm really confused as what to cut. Any "instructions" are greatly appreciated. Be well.

I took the approach of eliminating everything for a few weeks, much like VydorScope suggested. Sometime you can have intolerance symptoms without even realizing them. I felt a lot better off all dairy.

Then reintroduce Lactaid milk and see if you feel any different.

GF Lover Rising Star

Thanks for the replies. So if I take out all dairy, what does that all include? Is it everything that has milk in it? Including milk used as an ingredient? Does it include all cheese? I know these are probably silly questions but I just don't know what is all included in dairy free. Thanks.

Mom23boys Contributor

Thanks for the replies. So if I take out all dairy, what does that all include? Is it everything that has milk in it? Including milk used as an ingredient? Does it include all cheese? I know these are probably silly questions but I just don't know what is all included in dairy free. Thanks.

Pretend that dairy is gluten. Take the same amount out that you take out for celiac.

Skylark Collaborator

Thanks for the replies. So if I take out all dairy, what does that all include? Is it everything that has milk in it? Including milk used as an ingredient? Does it include all cheese? I know these are probably silly questions but I just don't know what is all included in dairy free. Thanks.

All milk and milk products. Milk as ingredients, cheese as ingredients, EVERYTHING from the dairy section of the supermarket including butter. All processed/packaged foods with milk, casein, whey, or lactose or that say "milk ingredients". It's best to be strict, remembering that you should have an answer in 2-3 weeks and you can always add foods back. :) If you're not strict and don't feel better you will just get confused, which is no fun.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi,

Dairy free means all dairy ingredients. Casein, whey, and lactose are common names for dairy ingredients in foods. Milk is one of the top 8 food allergens so if it should always be listed in the ingredients if present or called out in an allergy note at the bottom of the ingredients listing.

Open Original Shared Link

GF Lover Rising Star

Okay. Thanks for the specifics, that's what I needed to know. Consider me dairy free until further notice. I feel better already just knowing what to do. I appreciate all your patience in helping me. :D be well.

Finally-45 Contributor

I agree with what everyone else here has said, but wanted to add that my dietician encourages lactose-free dairy since I am not lactose intolerant. (Thank God for one good thing.)

I have kefir, Cabot cheese, and Lactaid all the time, but again, I am not lactose intolerant.

She did mention that people who get easily constipated should avoid dairy all together. So if I think I'm getting constipated, I cut dairy just in case.

My husband is severely lactose intolerant and can't handle casein or whey AT ALL. When he suffers, we both suffer!

Pegleg84 Collaborator

Hey. I'm going dairy/casein free too. It's taken a while for me to finally accept that I can't eat it anymore (suuucks!) I'm pretty sure my problem is casein since I seem to have trouble with goat's milk cheese too.

If you find out it's just lactose that bothers you, then you should be ok. If it's casein, then yes, just treat it like gluten and avoid all of it. Casein is a protein very similar to gluten, so for people with Celiac disease, our bodies sometimes react to it in similar ways as to gluten. Jury's still out on whether or not it causes intestinal damage same as gluten, but if it makes you feel crappy, then steer clear of it.

Recommendations for your milk-free weeks: almond milk is tasty. good olive oil can substitute butter (even on popcorn), and if you're ok with soy, then there's lots of fake cheese things out there. It's almost harder to avoid milk than it is gluten, so be careful

Good luck!

Peg

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - McKinleyWY replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Accuracy of testing concerns

    2. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

    4. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Healthy Gluten Free Foods low sugar that you found?

    5. - Scott Adams replied to lizzie42's topic in Traveling with Celiac Disease
      1

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,245
    • Most Online (within 30 mins)
      7,748

    Christine Ranalli
    Newest Member
    Christine Ranalli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • McKinleyWY
      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those who are just beginning the journey like me. Marilyn 
    • Scott Adams
      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      This article is a few of years old, but my still be helpful.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.