Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Dairy, Lactose, Casein, Milk

GF Lover

Recommended Posts

GF Lover Rising Star
GF Lover
Posted

I've figured out that milk and ice cream don't agree with me. My question is where do these two items fit? Is dairy free everything in the dairy section at the store? Is just milk the problem? And where does lactose come in? Oh, and cheese, where does it fit?

I still do fine with colby/jack and sour cream. I'm really confused as what to cut. Any "instructions" are greatly appreciated. Be well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

I've figured out that milk and ice cream don't agree with me. My question is where do these two items fit? Is dairy free everything in the dairy section at the store? Is just milk the problem? And where does lactose come in? Oh, and cheese, where does it fit?

I still do fine with colby/jack and sour cream. I'm really confused as what to cut. Any "instructions" are greatly appreciated. Be well.

My suggestion is that you first is remove ALL dairy of any kind. Then once your symptoms are gone add back in just casein and see how that goes for a few weeks. If your fine with that, then add lactose. If not remove casein from diet and wait till symptoms are gone before trying lactose (which I am not even sure you can have lactose and not casein in a product?).

Through that process you will narrow down what the problem is. If you have problems with both lactose and casein then that means no dairy products of any kind. If it is just lactose then there are some dairy products you can have.

It is important you go slow and record everything to ensure accuracy of testing.

Razzle Dazzle Brazell Enthusiast
Razzle Dazzle Brazell
Posted

I've figured out that milk and ice cream don't agree with me. My question is where do these two items fit? Is dairy free everything in the dairy section at the store? Is just milk the problem? And where does lactose come in? Oh, and cheese, where does it fit?

I still do fine with colby/jack and sour cream. I'm really confused as what to cut. Any "instructions" are greatly appreciated. Be well.

Hey gluten-free Lover. I started having problems with dairy too in this is what i did. I eliminated all dairy products from my diet and then reintroduced lactose free dairy milk. When i still had problems i realized it was more than likely the protein in milk rather than the sugar. That would mean even cheeses and anything dairy I have problems with, lactose free or not.

However i do okay with solid dairy products too as long as i dont consume way too much or eat it too often.

Skylark Collaborator
Skylark
Posted

I've figured out that milk and ice cream don't agree with me. My question is where do these two items fit? Is dairy free everything in the dairy section at the store? Is just milk the problem? And where does lactose come in? Oh, and cheese, where does it fit?

I still do fine with colby/jack and sour cream. I'm really confused as what to cut. Any "instructions" are greatly appreciated. Be well.

I took the approach of eliminating everything for a few weeks, much like VydorScope suggested. Sometime you can have intolerance symptoms without even realizing them. I felt a lot better off all dairy.

Then reintroduce Lactaid milk and see if you feel any different.

GF Lover Rising Star
GF Lover
Posted
  • Author

Thanks for the replies. So if I take out all dairy, what does that all include? Is it everything that has milk in it? Including milk used as an ingredient? Does it include all cheese? I know these are probably silly questions but I just don't know what is all included in dairy free. Thanks.

Mom23boys Contributor
Mom23boys
Posted

Thanks for the replies. So if I take out all dairy, what does that all include? Is it everything that has milk in it? Including milk used as an ingredient? Does it include all cheese? I know these are probably silly questions but I just don't know what is all included in dairy free. Thanks.

Pretend that dairy is gluten. Take the same amount out that you take out for celiac.

Skylark Collaborator
Skylark
Posted

Thanks for the replies. So if I take out all dairy, what does that all include? Is it everything that has milk in it? Including milk used as an ingredient? Does it include all cheese? I know these are probably silly questions but I just don't know what is all included in dairy free. Thanks.

All milk and milk products. Milk as ingredients, cheese as ingredients, EVERYTHING from the dairy section of the supermarket including butter. All processed/packaged foods with milk, casein, whey, or lactose or that say "milk ingredients". It's best to be strict, remembering that you should have an answer in 2-3 weeks and you can always add foods back. :) If you're not strict and don't feel better you will just get confused, which is no fun.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Hi,

Dairy free means all dairy ingredients. Casein, whey, and lactose are common names for dairy ingredients in foods. Milk is one of the top 8 food allergens so if it should always be listed in the ingredients if present or called out in an allergy note at the bottom of the ingredients listing.

Open Original Shared Link

GF Lover Rising Star
GF Lover
Posted
  • Author

Okay. Thanks for the specifics, that's what I needed to know. Consider me dairy free until further notice. I feel better already just knowing what to do. I appreciate all your patience in helping me. :D be well.

Finally-45 Contributor
Finally-45
Posted

I agree with what everyone else here has said, but wanted to add that my dietician encourages lactose-free dairy since I am not lactose intolerant. (Thank God for one good thing.)

I have kefir, Cabot cheese, and Lactaid all the time, but again, I am not lactose intolerant.

She did mention that people who get easily constipated should avoid dairy all together. So if I think I'm getting constipated, I cut dairy just in case.

My husband is severely lactose intolerant and can't handle casein or whey AT ALL. When he suffers, we both suffer!

Pegleg84 Collaborator
Pegleg84
Posted

Hey. I'm going dairy/casein free too. It's taken a while for me to finally accept that I can't eat it anymore (suuucks!) I'm pretty sure my problem is casein since I seem to have trouble with goat's milk cheese too.

If you find out it's just lactose that bothers you, then you should be ok. If it's casein, then yes, just treat it like gluten and avoid all of it. Casein is a protein very similar to gluten, so for people with Celiac disease, our bodies sometimes react to it in similar ways as to gluten. Jury's still out on whether or not it causes intestinal damage same as gluten, but if it makes you feel crappy, then steer clear of it.

Recommendations for your milk-free weeks: almond milk is tasty. good olive oil can substitute butter (even on popcorn), and if you're ok with soy, then there's lots of fake cheese things out there. It's almost harder to avoid milk than it is gluten, so be careful

Good luck!

Peg

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks. Not a big thing, particularly because most likely it is "true" but not yet demonstrated.
    2. glucel
      - glucel replied to glucel's topic in Super Sensitive People
      16

      iron digestibility

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks for the thoughtful comment. You are right that the study’s main conclusion was cautious: the researchers found that inherited antibody-gene variants significantly shape the naïve B-cell receptor repertoire, including usage of some gene segments involved in celiac-related antibody responses, but they did not find strong evidence that polymorphisms in...
    4. knitty kitty
      - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      I have osteoporosis and have crushed three vertebrae. I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health). I tried Fosomax, but it tore up my insides. I prefer the supplements. I feel better and my bones feel stronger. References...
    5. knitty kitty
      - knitty kitty replied to Aileen Cregan's topic in Related Issues & Disorders
      5

      Coeliac And Cardio Vascular Disease

      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1. I am no longer on high blood pressure medication. I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine. The particular high blood pressure...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442
    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • glucel
      iron digestibility

      By glucel · Posted

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By knitty kitty · Posted

      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      Coeliac And Cardio Vascular Disease

      By knitty kitty · Posted

      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
    • gregoryC
      Walt Disney World Gluten Free

      By gregoryC · Posted

      Walt’s Hash
×
×
  • Create New...