Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Balance


Danijela

Recommended Posts

Danijela Contributor

Hey Everyone!

I just had a celiac blood screening done on Monday I haven't received the results yet, however I was wondering if anyone else has experienced any issues with balance. I find at times (more often at night) I have a real problem with balance and find myself sort of swaying or feeling like i'm going to fall.

Has anyone else experienced this???

Thanks

Danijela


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

I used to get dizziness and ringing in my ear ..... seemed to be associated with my headaches, which, I now know, were caused by a gluten reaction. I'd like to see what others have to say as well. I hope it clears up for you!

tarnalberry Community Regular

I believe that there has been a reported connection between balance issues and the central nervous system manifestations of celiac disease in some people. Others on the board have discussed this before, and I'm sure they'll have some useful information for you soon! :-)

Nantzie Collaborator

If it does turn out that I have celiac disease, then balance would have been my first, most obvious symptom. I had an incident of heat exhaustion and then I got mono in the same 3-4 month period, then after that, I could only stand a certain way if I didn't have someone to hang on to. I thought it was secondary to the heat exhaustion. My balance got a little better over time, but it's still pretty bad.

Nancy

nikki-uk Enthusiast

Yes,my husband definitely had a problem with his balance.

After standing he would have to stand and 'sway' for a minute while he waited for the dizzyness and nausea to pass.Sometimes though it would come over him out the blue.My husband compared it to 'almost fainting'.

Now that he seems to be recovering on gluten-free diet he hasn't had any spells for ages.

Good luck with your results!

ravenwoodglass Mentor
Hey Everyone!

I just had a celiac blood screening done on Monday I haven't received the results yet, however I was wondering if anyone else has experienced any issues with balance. I find at times (more often at night) I have a real problem with balance and find myself sort of swaying or feeling like i'm going to fall.

Has anyone else experienced this???

Thanks

Danijela

<{POST_SNAPBACK}>

Yes, It is called gluten ataxia, this was my main symptom other than constipation and learning problems as a kid. It got so bad with me that I was thought to have MS. It is also the first sign that I have gotten into something I shouldn't have. The ataxia hits within minutes of injestion, depression and DH blisters the next day then the GI symptoms the next. Being gluten-free stopped the ataxia within a very short time. I was able to give up my canadian canes within 2 months. They are now a sculpture of sorts in the corner of my bedroom. And the best part is no one thinkds I drink anymore, people (including one neuro) thought I was hiding an alcohol problem. They never believed me when I told them I didn't drink more than 2 non-alcoholic beers on a Saturday night. Of course now I know I was geting drunk effects from the gluten in the beer. I can drink half a bottle of wine and not have the same hangover and drunkenness I used to get from 2 non-alcoholic beer.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,793
    • Most Online (within 30 mins)
      7,748

    Ann Marie 50
    Newest Member
    Ann Marie 50
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
    • Scott Adams
      Very interesting--thanks for sharing that study!
    • Scott Adams
      Let us know how things turn out, and good luck!
    • Wends
      https://onlinelibrary.wiley.com/doi/10.1111/joim.70025 Very recent (September 2025) Finland study may be of interest. Borderline negative and low positive ant-TTG, with negative and positive EMA tests in patients diagnosed with Celiac Disease.
    • nanny marley
      Thanks for the list too makes me realise why I still get symptoms after cutting gluten , all that reading has just made sense to why I'm still struggling , thankyou Scott Adams very insightful , I've been baking to and there is xanthum gum in the flour , I understand now why I still have issues with that too, and ive had to cut dairy also , i had a terrible flare few months ago and my throat also was very irritable and I had sinuses issues all makes sence 👍
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.