Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Dq8 Toddler's Diet


faithforlife

Recommended Posts

faithforlife Apprentice

My toddlers genetic testing came back at moderate risk DQ8 gene-no antibodies to gluten. My son and I are DQ2 high risk diagnosed celiacs. The pediatric GI recommended a gluten-free diet for her but were wondering if it's necessary, if it would cause her to become gluten sensitive unnecessarily. We are gluten-free in the home, but it would be out and about she'd be exposed to gluten. Any thoughts? My concern is what would be best for her in the long run? When she's an adult how will this decision affect her?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Eating gluten free will not cause her to develop a sensitivity to gluten.

1desperateladysaved Proficient

I am mother to seven. I have discovered that the best way to prepare someone for their life ahead is to do it now. Like if you want to have them brush their hair everyday, begin by doing it for them. Develope the habits they will need now. If I could do it for my children, I would train them now. They hopefully, won't have to make huge diet changes in the future.

"Train up a child, in the way he should go, and when he is old he will not depart from it."

I have read that if you have one allele positive for gluten intolerance, you should follow the diet now. She can be spared physical suffering perhaps if she does it when young. I think there is also something to be said about protecting the other family members. She will learn to be careful for their sake.

Diana

faithforlife Apprentice

Diana that's how the doctor felt. He said teach her now the rigidness so she'll truly learn it. Plus her kids when she's grown could get celiac and then shed already know the diet. I'm not sure why I've just started questioning if I'm creating a gluten sensitivity unnecessarily. But your input is helpful! We're expecting # 6 and what u say is very true!

Mom-of-Two Contributor

It is easier than training a teenager to stop eating gluten! I am going with that thought, as I move my almost 8yo gluten free (pos bloodwork, neg biopsy, I have celiac). We are also moving toward gluten free home, my hubby already went gluten free when I did, and now my oldest, so my 4yo (who tested normal) will probably eat gluten free at home, but I am letting him eat whatever he wants outside the home, as recommended by the pediatric GI, and my own celiac dr, re-test blood regularly. If he becomes positive on bloodwork, I won't bother with a biopsy, just make him the same as the rest of us :)

A toddler is difficult, for sure, I know that my 4yo eats pasta for like every meal, waffles, cereal, etc that are gluten based and I have been trying to slowly move away from them to other things, in an effort to make the move for him slower, since he isn't diagnosed- not the same urgency. He doesn't like the gluten free mac and cheese or brown rice pasta, so it is taking some adjustment, but my oldest loves the brown rice pasta and quinoa/corn based pasta with no issues. Ian's chicken nuggets, Van's waffles, we do gluten free pancakes or Belgian waffles on the weekend. It helps that my oldest eats "real" food like meats, rice, beans, eggs, etc etc. where my youngest is SO picky, doesn't eat eggs or ANY meat. Which makes it hard as a parent to then cut a food group :)

Good luck with your journey!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,742
    • Most Online (within 30 mins)
      7,748

    MistyMoon
    Newest Member
    MistyMoon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.