Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Endoscopy......


roxieb73

Recommended Posts

roxieb73 Contributor

I am so glad all the actual testing is over and I can be gluten free. Took biopies and one in the stomach to look for bacteria. Also told I have a hiatal hernia and now get to do the lovely Upper GI seires and delayed gastric emptying tests. However they do not provent me from being GLUTEN FREE!!!!! :D I am so happy. Starting off easy so I don't mess up. Oranges for Breakfast and baked potato for lunch. ;) Now I just wait for the results of my many biopies out there.

Roxie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Razzle Dazzle Brazell Enthusiast

I am so glad all the actual testing is over and I can be gluten free. Took biopies and one in the stomach to look for bacteria. Also told I have a hiatal hernia and now get to do the lovely Upper GI seires and delayed gastric emptying tests. However they do not provent me from being GLUTEN FREE!!!!! :D I am so happy. Starting off easy so I don't mess up. Oranges for Breakfast and baked potato for lunch. ;) Now I just wait for the results of my many biopies out there.

Roxie

Yay! Make sure you dont go to simple though roxie. Try to eat a varied gluten free diet. I know it is tempting not to eat different things when your tummy hurts. Good luck once again on your results ;)

roxieb73 Contributor

Yay! Make sure you dont go to simple though roxie. Try to eat a varied gluten free diet. I know it is tempting not to eat different things when your tummy hurts. Good luck once again on your results ;)

Oh I will I have a lot of awesome new receipies to try. :D I just haven't gone shopping yet. Trying to find something Gluten Free I could take to work!!!!!!!!!! lol All I could find were oranges and potatos. lol

squirmingitch Veteran

YAY Roxie! Onward & upward from here on out.

Wow, you sure are feeling chipper aren't you? Your endo was today wasn't it? And you're already home & feeling like being on the computer! Good for you.

Now, don't go hog wild on gluten-free processed foods yet. Try to stick to whole foods as much as possible for about 3 months.

To take to work? How about a cold chicken leg, an apple & a hard boiled egg? The rest of the chicken was dinner the night before.

roxieb73 Contributor

YAY Roxie! Onward & upward from here on out.

Wow, you sure are feeling chipper aren't you? Your endo was today wasn't it? And you're already home & feeling like being on the computer! Good for you.

Now, don't go hog wild on gluten-free processed foods yet. Try to stick to whole foods as much as possible for about 3 months.

To take to work? How about a cold chicken leg, an apple & a hard boiled egg? The rest of the chicken was dinner the night before.

My endoscopy was yesterday. I wasn't on at all yesterday. lol I have been googling gluten free receipies today. lol Tonight is steak, veggies and roasted garlic potatos. ;)

ravenwoodglass Mentor

Glad your celiac related testing is over and you can now give the diet a good strict go. You may find your issues resolve before the other tests are even done but if not do make sure your doctors orders gluten free barium for the upper GI series. The liquid will be thin and not at all chalky. They mixed mine with cranberry juice. Compared to the regular gluten filled solutions drinking it was nothing and I didn't have to stop in the restroom in a hurry on my way out the door.

I hope you heal quickly.

Razzle Dazzle Brazell Enthusiast

Oh I will I have a lot of awesome new receipies to try. :D I just haven't gone shopping yet. Trying to find something Gluten Free I could take to work!!!!!!!!!! lol All I could find were oranges and potatos. lol

Haha! I know how that is. Do you have access to a microwave so you can cook ahead of time and take it with you. I bought some glasslock containers that are freezable mkcrowavable and dishwasher safe! I take them with me to work and pop them in the microwave.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ker0pi Rookie

I'm so glad your through your testing. What was the endoscope like? Did they put you under general anesthesia?

roxieb73 Contributor

Glad your celiac related testing is over and you can now give the diet a good strict go. You may find your issues resolve before the other tests are even done but if not do make sure your doctors orders gluten free barium for the upper GI series. The liquid will be thin and not at all chalky. They mixed mine with cranberry juice. Compared to the regular gluten filled solutions drinking it was nothing and I didn't have to stop in the restroom in a hurry on my way out the door.

I hope you heal quickly.

Wow hadn't even thought about that! Thank you! I will call in advance tell them it must be Gluten free.

roxieb73 Contributor

I'm so glad your through your testing. What was the endoscope like? Did they put you under general anesthesia?

It was crazy there 2 hours to check in and prep for a 15 min procedure. lol Yes they put me out but not intubated. I had my IV in and in the room laying on my side. They put in a mouth gaurd (I am assuming to guide the tube down my throat). Then the I was told the medicine "may burn". Those are the last words I remember next second I was in recovery. I didn't even know they did anything. I looked around and I was in another room by myself and everyone was gone. lol

roxieb73 Contributor

Haha! I know how that is. Do you have access to a microwave so you can cook ahead of time and take it with you. I bought some glasslock containers that are freezable mkcrowavable and dishwasher safe! I take them with me to work and pop them in the microwave.

Kind of like making my own tv dinners. :D I like it! That is an awesome idea!

Razzle Dazzle Brazell Enthusiast

Kind of like making my own tv dinners. :D I like it! That is an awesome idea!

Lol yeah something like that. Im gonna make some potato salad tonight. Also one trick i learned with pastas, rice and things is to put a little water in it ( it will evaporate) and put a wet papertowel over it and steam it in the microwave. Every little bit helps.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    2. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      GI DX celiac despite neg serology and no biopsy

    3. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

    5. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    kygirlsusan
    Newest Member
    kygirlsusan
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.