Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help!


tams676

Recommended Posts

tams676 Newbie

I have been gluten free since December of 2011. My mom is celiac and i am also, so i knew quite a bit about what i could and couldnt eat. I have had problems with eating any bread or bread type foods since April. Each time i try with in a few hours (2 or less) the food has completely gone thru me. I am so confused as to what to do or why this is happening. I am very very careful about what i eat. As my dr said i need to read every label, which i do. Please give me some advice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

It could be that you're sensitive to soy or one of the gums used in gluten-free baked goods (xanthan gum and guar gum)....or, alternatively, you may be sensitive to one of the gluten-free grains used in baked goods.

eatmeat4good Enthusiast

I did about 4 strict months on Paleo/Primal where all you eat is meat, veggies, fruit, nuts, eggs and some dairy. Around my birthday I started cheating and eating icecream with gluten free brownies to "celebrate". Then I started adding some gluten free bread. It's been about a month of "experimenting" with gluten free products and I can honestly say I feel like crap. I don't think I can handle grains. It sucks cause I didn't really wanna do the Paleo thing the rest of my life, but I have got to tell you that I felt better than I ever have in my life. No chance of cross contamination except in sourcing the nuts on the Paleo/Primal diet. Now, I crave breads and sugar and think about treats all the time. I didn't do this when I was strictly Paleo. I was wondering myself if there are people who can't do any grains at all. I'm starting to think I am one of them. Ugh.

Try eliminating the gluten free breads entirely for a while and then try it again. I'm having the same reactions with gluten free crackers, desserts or breads. I am considering it may have been preservatives or as Rosetapper said maybe it's xanthan gum etc. I know I can't do soy. It makes me swell. Or maybe I'm one of those who just can't do many carbs at all. The more I eat grain, the more I want to eat grain. But when I ate meat and veggies I was fine as soon as I was full and no digestive problems or stomach aches at all. I'm sitting here with a tummy ache and regretting the crackers I ate today. Seems whatever the amount is...even small amounts...I can't deal with it physically. I hate feeling like crap. I guess I don't have any answers for you but have the same questions. Just wanted you to know you are not alone. Wow. This disease is such a challenge...you never know whether it was gluten or another food intolerance. I'm 2 years into it and still figuring things out. All I know is that when I was completely "against the grain" my body loved me for it. I wonder if others are like us too? I'm sure they are....that is why Paleo/Primal is so popular. If you are not familiar with it, Mark's Daily Apple is a good resource to read up on how to do it. I think Rosetapper does it too if I remember correctly!? Am I right Rose? ;)

Anyway, just trial yourself off grain for a few weeks then test again. That is going to be my approach. Also enzymes and probiotics might help you digest the grains. Try using them and see if it helps. Doesn't work for me...I still feel bad on grain with enzymes and probiotics...but when I ate meat and veg and took them...it was wonderful.

Hope this helps you. Sorry you feel ucky.

GFinDC Veteran

I have been gluten free since December of 2011. My mom is celiac and i am also, so i knew quite a bit about what i could and couldnt eat. I have had problems with eating any bread or bread type foods since April. Each time i try with in a few hours (2 or less) the food has completely gone thru me. I am so confused as to what to do or why this is happening. I am very very careful about what i eat. As my dr said i need to read every label, which i do. Please give me some advice.

OK, advice then. Cut the labels off all the packages and tape them in a note pad. Look them over and write down all the common ingredients of the ones that make you sick. One or more of those common ingredients is affecting your digestion. You can stop all the baked goods for a few weeks. Then trial the common ingredients one at a time for 3 days running. If zanthan gum is question mark then get some zanthan gum and mix it in some rice and eat it. You could leave the zanthan gum for last as it is harder to find and may be expensive. It would be cheaper and easier to trial things like potato starch, soy, or milk at the beginning. Don't stop after finding one troublesome ingredient though. Keep going until you have trialed all of them one at a time. With your reactions being so clear it shouldn't be too hard to identify the problem item/items.

If it turns out to be potato starch you may have a problem with other nightshades also, like tomato and peppers and eggplant.

~**caselynn**~ Enthusiast

OK, advice then. Cut the labels off all the packages and tape them in a note pad. Look them over and write down all the common ingredients of the ones that make you sick. One or more of those common ingredients is affecting your digestion. You can stop all the baked goods for a few weeks. Then trial the common ingredients one at a time for 3 days running. If zanthan gum is question mark then get some zanthan gum and mix it in some rice and eat it. You could leave the zanthan gum for last as it is harder to find and may be expensive. It would be cheaper and easier to trial things like potato starch, soy, or milk at the beginning. Don't stop after finding one troublesome ingredient though. Keep going until you have trialed all of them one at a time. With your reactions being so clear it shouldn't be too hard to identify the problem item/items.

If it turns out to be potato starch you may have a problem with other nightshades also, like tomato and peppers and eggplant.

Great advice, once the problem ingredient is narrowed down it can be eliminated. Good luck!!

mommida Enthusiast

Keep in mind that some reactions to food(S) or airborn allergens can last 12 days.

  • 1 month later...
cap6 Enthusiast

OK, advice then. Cut the labels off all the packages and tape them in a note pad. Look them over and write down all the common ingredients of the ones that make you sick. One or more of those common ingredients is affecting your digestion. You can stop all the baked goods for a few weeks. Then trial the common ingredients one at a time for 3 days running. If zanthan gum is question mark then get some zanthan gum and mix it in some rice and eat it. You could leave the zanthan gum for last as it is harder to find and may be expensive. It would be cheaper and easier to trial things like potato starch, soy, or milk at the beginning. Don't stop after finding one troublesome ingredient though. Keep going until you have trialed all of them one at a time. With your reactions being so clear it shouldn't be too hard to identify the problem item/items.

If it turns out to be potato starch you may have a problem with other nightshades also, like tomato and peppers and eggplant.

Excellent suggestion! Easier than a daily food diary

I haven' had a problem with breads until recently. Las couiple of months I have noticed that if I have bread for lunch (or gluten-free pizza etc) a coiple of hours later I have a major blood sugar crash...shaky, clammy. Like an overload of carbs or something. Funny how our guts change as we heal/


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Just because it says gluten free dosen't mean it is. It still has trace gluten in it. Under 5 PPM. You may be supersensitive and reacting to that trace of it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.