Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Out


cmoore

Recommended Posts

cmoore Apprentice

I have yet to get an official diagnosis but I had a question, Did some people fine it necessary to just not eat out at all in the 1st few months of going gluten free, as they got a handle on it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

That would be very wise. I was diagnosed four days before going to Italy. I should have waited to start eating gluten free after the trip! Looking back I had so much gluten there it is not even funny. Get this - my husband ordered this fabulous pasta soup. He picked out the pasta and I finished the soup!! Anyway, you learn from these mistakes so it is recommended that you do not eat out until you can ask the right questions and be okay with others around you eating gluten. That can be tough mentally. At least it was for me. Thankfully a few months is not long in the grand scheme of things!

I see you joined here May 2010. Have you been eating gluten all this time? Just curious. :)

Darn210 Enthusiast

We didn't eat out for a while (couple of months?). . . probably because I was knee deep in trying to figure it all out and quite honestly a little freaked out and self-conscious about the whole thing.

Gemini Experienced

I have yet to get an official diagnosis but I had a question, Did some people fine it necessary to just not eat out at all in the 1st few months of going gluten free, as they got a handle on it?

I was deathly ill when first diagnosed but started feeling better as each day went on that I ate gluten free. At least the gastric problems calmed down fairly quickly, which was good because I had booked a trip to London months before and if I did not get on that plane, I would have lost a whole lot of money. So, I decided to go. We had rented an apartment and we ate breakfast in so that wasn't a problem. For dinner I found a French restaurant that understood gluten free well and they cooked plain but delicious food for me and I did not get sick. I stuck with fish or chicken, potatoes and veggies and that seemed to work well. I am a cook so knew what I could and could not have to eat and knew about how not to CC food so it worked out better than expected. It wasn't the most adventurous eating I ever did on vacation but I did not get sick. It can be done if necessary but you have to eat plain at first so going out to eat won't be the fun it usually is. It did not impede my recovery at all and I am glad I went.

I actually got sicker on the vacation before that when I didn't know I had Celiac and ate a fancy French pastry one night. I was sick as a dog that night and thought it was the meat that made me sick! Who knew it was the wheat! ;)

Adalaide Mentor

I personally did not refrain from eating out. I did refrain from eating anywhere I wasn't 100% comfortable with. Since my local Wendy's has an adult staff I was comfortable there and they have a great variety to choose from. (Even adding more restrictions over the weekend I'll still be able to stop in occasionally, yay!) Other than that in the first 2-3 months I mostly stuck with a local gluten free bakery and a pizza shop that makes great effort to prevent cc. The key to eating out safely is knowledge and asking questions. Never be afraid to walk out of a place that makes you uncomfortable and find somewhere else to eat.

Juliebove Rising Star

We did dine out but less than before. And stuck to the same boring foods that we knew were safe. Like a hamburger patty, baked potato and fruit cup.

Stu Newbie

I have a few rules I follow for eating out:

1. Stay with places that you know, and know you. I am a regular at our local Carl's Jr., and the manager knows I can't tolerate gluten. I usually order the Low Carb burger combo meals or grilled chicken salad, and have never had a reaction to anything I've eaten there, (however I avoid the milkshakes because they use one blender to mix all flavors).

2. Inform the people waiting on you of your food sensitivities when you order, in my case wheat gluten, annatto, and FD&C yellow5 (tartrazine). That means no wheat or anything with yellow coloring added. Most places will check, or let you read the list of ingredients if you ask them nicely. Many places now actually have a gluten-free menu if you ask them, and many servers and cooks have gone the extra mile to make sure my food is prepared without gluten - remember to leave them a nice tip!

3. There are still times you find yourself in a strange town eating at a strange place, (toss out rule 1), and the servers listen to your explanation with a blank stare, or rolling eyes, (toss out rule 2). Play it safe, order a salad with grilled meat, ranch dressing or cottage cheese, or a baked potato with sour cream. If the salad arrives with croutons on it, (for example), dump the dressing on it before sending it back to the kitchen, that way you'll know if they made you a fresh one instead of just picking out the gluten bits. Yes, this has happened to me.

4. Don't feel guilty or intimidated about asking for special treatment. If you ordered a burger without onions or a pickle, they wouldn't bat an eye. Ordering one without a bun should be no different! You're going to pay them good money for good food, it's their job to serve you what you want. I just had a wonderful meal with friends at a great restaurant I've never been to before despite the fact they had nothing on the menu that was particularly gluten free. The waiter was very professional about my requests, and made sure everything was right before he served me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.