Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Upside To Celiac

fisharefriendsnotfood

Recommended Posts

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted

I've been thinking, and I realize that being Celiac means we are very aware about what we eat. Like, we know every ingredient of every food item that enters our mouths. Here's a short story:

Me and two of my really, really good friends were at Baskin Robbins for ice cream. I got mint chocolate chip in a cup, obviously (mmmm...), my other friend got the same in a cone, and the other friend got chocolate chip cookie dough in a cone. We get out ice cream, and my friend who I'll call J for the purpose of this story, offers me a lick of her chocolate chip cookie dough ice cream. (By the way, she knows very well that I'm Celiac.)

J: Want some?

Me: Um, no thanks.

Other friend: She can't eat that!

J: Uh, why not?

Other friend: She's allergic to wheat! (lol that's what they think Celiac is... my oh my)

J: So?

Other friend: So, she can't eat chocolate chip COOKIE DOUGH ice cream, you idiot!

J: Why not?

Me: What do you think cookie dough is made of???

J: Cookie dough has wheat in it?

Me & Other friend: Yes!!!

J: Oh. Who knew? Sorry.

Yes, my friend isn't too bright about things like that.

So I was thinking, I was the only ten year old kid who knew what maltodextrin and wheat protein is. No one else knows what they're putting into their bodies. They don't even care or have a clue! I think I'm very lucky to have all this knowledge. Plus, I find food and how the body, especially the digestive system, works now.

Thanks for reading this long story!

Jackie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

Jackie,

I read your story and have to tell you until the end, I thought the friends were my age. (30 something) I have conversations like that all the time. You are right when you say you are better educated because of your Celiac diagnoses.

Laura

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted
  • Author
Jackie,

I read your story and have to tell you until the end, I thought the friends were my age. (30 something)  I have conversations like that all the time.  You are right when you say you are better educated because of your Celiac diagnoses.

Laura

<{POST_SNAPBACK}>

Oh, I'm not ten years old! I'm fourteen! Sorry about the confusion.

  • 2 weeks later...
Guest BellyTimber
Guest BellyTimber
Posted

I agree absolutely about this blessing

skoki-mom Explorer
skoki-mom
Posted

I actually had a very well educated person say to me "pasta's got wheat in it?? :blink:

frenchiemama Collaborator
frenchiemama
Posted

It's amazing how clueless some people are. I mean, even before I was diagnosed, I certainly knew that things like bread, pasta and cookie dough had wheat in them. But I'm constantly astounded by the number of people who don't seem to know anything about their food at all. What exactly do they think the stuff is made of??

PreOptMegs Explorer
PreOptMegs
Posted

If I had a dollar from every person who didn't know that "white flour" had wheat in it..............

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
If I had a dollar from every person who didn't know that "white flour" had wheat in it..............

<{POST_SNAPBACK}>

This thread makes me laugh at all the times I've had to educate people about what has flour/gluten in it. My office is right off of the kitchen. Several ladies will go next door to the grocery store (we're in a strip mall) and come back with lots of goodies (?) Like cookie dough ice cream AND cookies! They'll offer me one, and I'll say no I can't have that, then they'll offer me the other! Hello!! cookie dough and cookies have exactly the same ingredients! or offer crackers or something else and always surprised that they contain wheat. I can't get mad or anything, they are being generous, even if I can't eat what's being offered.

Rachel--24 Collaborator
Rachel--24
Posted
  Several ladies will go next door to the grocery store (we're in a strip mall) and come back with lots of goodies (?)  Like cookie dough ice cream AND cookies!  They'll offer me one, and I'll say no I can't have that, then they'll offer me the other!  Hello!! cookie dough and cookies have exactly the same ingredients!

<{POST_SNAPBACK}>

:lol::lol: That made me laugh!!!!

Funny thing is if I never had to learn about this diet I would probably be one of those people who says "pasta has wheat?" :ph34r:

I don't think I had ever read a food ingredient label in my life.

Nicolette Rookie
Nicolette
Posted

I had something similar to this just yesterday. My in-laws came to visit us and we live on an island on the south coast of the UK, so its a popular holiday place and for those of you who don't know, in England, fish and chips out of paper is quite a favourite here.

Well, my mother-in-law, a very educated lady and quite a cook, said "let's all have fish and chips for lunch"

I said, I can't, because of the fish being coated with flour before it's put in batter and fried.

So she said, "oh, well just have the chips then."

HELLO?

I then had to explain that the fish was fried in the same oil as the chips and i really didn't fancy doing that at all. Next, my father-in-law, also an educated man who ran his own business for many years said to me, "so, this coeliacs thing, I guess it's okay for you to have a little bit of gluten, isn't it? You know, like diabetics can have alittle bit of sugar"

I just stared for a moment. I just didn't know what to say. Eventually, I replied about it being totally different and tried to go into detail, but i could tell they just didn't get it.

It's quite sad really. <_<

Guest GITRDONE
Guest GITRDONE
Posted

I totally agree, people don't think before they open there mouths.

When people tell me that a ccrumb can't hurt you. I now reply that that crumb will make me vomit like you would if you had the flu and its not a 24 hour flu its more like a 10 day flu. If they don't get that then I start in on the deterating intestinal linning caused by that crumb.

Anyway along the same note. My neighbors grand kids came over (4 & 6) to my place with their parents. And the parents told the kids "that is where you Macdonold hamburgers come from and the milk for your cereal, while pointing at my steer. :lol::lol: Then they went to pig pen and told them this where bacon comes from. These poor city kids didn't have clue and the parents weren't much better.

I think we are genius's compared to most people when it comes to food. But I also know that I'm eating much better then most.

Susan

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted
  • Author

Today I went to a friend's birthday party and when I told them about Celiac when they saw I wasn't eating pizza, one asked if I could have whole wheat bread.

WHOLE WHEAT!!!

Oh my goodness. But this isn't very fair, since she isn't the smartest.

-Jackie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir.
    2. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

    3. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    4. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    5. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,359
    • Most Online (within 30 mins)
      7,748
    Atlanta GF
    Newest Member
    Atlanta GF
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.