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Should I Stay On A Strict Gluten Free Diet?


fanner

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fanner Newbie

Hello,

I think I may have a mild case of gluten sensitivity. My doctor recommended I try a few things out since I have had a mild headache all the time for the past 3 months. I tried a gluten free diet for almost 2 weeks, which did nothing for my headache, but I had to go to the bathroom less often. I usually went at least 4 times a day, but was not constipated or had diarrhea. When I went gluten free, I pooped 1-2 times a day. Should I be on a gluten free diet? Can I have a little gluten in my diet from asian sauces? Can I still take wheat grass? I read that wheat grass was good for you and stockpiled it for the summer since it has probiotics. For my headache, I am going to see a neurologist next month, if you were wondering.

Thanks


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fanner Newbie

I left out some info. I am 29 years old. I did get tested for wheat/gluten allergy, which came back negative. When I have been gluten free, it seems the amount I poop is less for the day. I have been taking probiotics to help with my pooping. Sorry about talking about poop so much.

GFinDC Veteran

Hi Fanner,

Welcome to the site! If you are already gluten free it is too late to be tested for celiac disease. Unless you do a 3 month gluten challenge first and then you may have enough damage show up to be diagnosed. If you have NCGI ( non- celiac gluten intolerance ) though they are no tests for that currently. Either way, if you feel better off of gluten it is better not to eat it. It sounds like your body is reacting to not having gluten in your diet. Some people have no GI symptoms from celiac disease, so they don't feel sick from gluten. But they still have damage to their intestines going on. Nobody can tell you exactly what is happening to your system when you eat gluten, but it is possible there is something bad happening from your description. People sometimes go years without symptoms and then suddenly develop very bad GI symptoms and other autoimmune disease. I suppose there is some kind of a breaking point or accumulated damage that happens, not sure.

Anyway, the gluten-free diet is not hard after you stick with it for a while. It takes some time to adjust but that does happen. Ant then it is much easier and it can be a very healthy diet also.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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