Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Little Wins That Other People Don't Get

Adalaide

Recommended Posts

Adalaide Mentor
Adalaide
Posted

So I was in the kitchen this morning with my husband. He was microwaving his last breakfast sandwich (yay!) and I was getting my morning cottage cheese, flax and fruit. I looked at him and said I should have started eating flax a long time ago and he asked why. I was like, I've never pooped so much like a normal human being in my life. I said this with a huge smile on my face, genuinely excited. He looked at me as if I'd just been the victim of an alien abduction. :lol: I had to come here and share because at least you guys will get it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

Hey, first time I went a whole week with normal poo I had a party. I get it!

RonSchon Explorer
RonSchon
Posted

I will look forward to that day. I was just diagnosed last week, after about 14 years of ever increasing symptoms. The toilet was a first warning sign for me. My wife (ex wife now, yes, it cost my marriage) would be so upset at how much time I spent in the bathroom.

Adalaide Mentor
Adalaide
Posted
  • Author

It gets better Ron! My GI symptoms improved greatly over the 6ish months since my dx but it wasn't until I added the flax that have truly felt normal in that department.

I'm so sorry that it ruined your marriage. It's a real jerk-detector and the people who have relationships that have endured are truly lucky. I hope you find at least some symptoms resolve quickly for you.

sharilee Rookie
sharilee
Posted

So I was in the kitchen this morning with my husband. He was microwaving his last breakfast sandwich (yay!) and I was getting my morning cottage cheese, flax and fruit. I looked at him and said I should have started eating flax a long time ago and he asked why. I was like, I've never pooped so much like a normal human being in my life. I said this with a huge smile on my face, genuinely excited. He looked at me as if I'd just been the victim of an alien abduction. :lol: I had to come here and share because at least you guys will get it.

The first time I had a normal bowel movement after being diagnosed with celiac I was so excited and even more excited when I went several days in a row without an attack. I wanted to throw a party.

sharilee Rookie
sharilee
Posted

I will look forward to that day. I was just diagnosed last week, after about 14 years of ever increasing symptoms. The toilet was a first warning sign for me. My wife (ex wife now, yes, it cost my marriage) would be so upset at how much time I spent in the bathroom.

It does get better with time. I have been gluten free since late February and it took about three months for things to start to return to normal. I still have problems but not every day like I was, now I will go several days with no problems. I am sorry it cost you your marriage, any type of illness can put a strain on marriage.

KMMO320 Contributor
KMMO320
Posted

I went gluten-free for 3 weeks and during that time I felt like a real, normal human being. When I went to the bathroom it was normal, and I wasnt sitting there in agonizing pain with gut wrenching cramps like I am used to.

I would come out of the bathroom with tears in my eyes. It felt like the greatest accomplishment to have a normal movement.

I am now back on gluten because my dr said she did not see any reason to go gluten-free...needless to say, I am switching docs but that also means keepin gluten in my system for a few more weeks in case of further testing.

I miss those "normal" days. It is amazing how quickly the cramping comes back :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skittles Enthusiast
Skittles
Posted

Ohh my God I can only imagine how you must feel! I have been gluten free for 2 months and am having a little bit better bowel movements but I cannot wait until I am actually regular, I told my friends we are having a big party! haha.. I haven't tried the flax yet though but I am going to get on it asap! :)

goblue2014 Newbie
goblue2014
Posted

7 months gluten free and I still don

IrishHeart Veteran
IrishHeart
Posted

Well, I am doing the happy dance for you. :lol: I will, in fact, stand up and applaud you right now...hold on....(sounds of IH clapping wildly)

I know you were not super crazy about the ground flax seed idea, but we told ya it would do the trick! That stuff is full of fiber and omega 3's. It's a win-win.

And for what it is worth, I knew where every bathroom was within a 150 mile radius of my home. I have had D or C since I was a babe.

I have had to resort to a lined wastebasket and the side of the road in the great outdoors on occasion. Just peachy. :rolleyes:

When very ill from the celiac, I went and went and went and then... did not. For days. Pain? OY!

Until now. Between the flax, the probiotics and being gluten-free and healing from the celiac damage, I am right as rain for the first time in my entire life.

So, whoohoo and thank the universe for little victories (that are really pretty big indeed!) :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.