Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's A "nogo" Week

BRCoats

By BRCoats
in Related Issues & Disorders

Recommended Posts

BRCoats Enthusiast
BRCoats
Posted

Hey all,

I'm sure you've all experienced a "NoGo" week, meaning never having a bowel movement. In fact, it's actually been more like two weeks. But here's the trick. I can't have fiber, no fiber supplements, no magnesium supplements, and no vitamin C. All of the above cause major problems with my gastroparesis (paralyzed stomach). Oh, and I can't do prune juice....or any juice for the matter. Nothing acidic at all. So....my question is.....is there anything out there that I'm missing that would cause me to actually go to the bathroom??? I even tried a castor oil pack last night, and it just made me sick all today. So i'm about ready to give up!! :angry:

Please help if you have ANY ideas. I'm up for anything at this point. :(

~Brenda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mstrain Rookie
mstrain
Posted

Wow - sorry to hear of your discomfort. I can't believe the things you cannot have! You said nothing acidic and no juice - would this include all fruits as well? Blueberries and raisins always seem to work wonders on my kids (grapes also) but are you even allowed these items? Wishing you well.

tarnalberry Community Regular
tarnalberry
Posted
Hey all,

I'm sure you've all experienced a "NoGo" week, meaning never having a bowel movement. In fact, it's actually been more like two weeks. But here's the trick. I can't have fiber, no fiber supplements, no magnesium supplements, and no vitamin C. All of the above cause major problems with my gastroparesis (paralyzed stomach). Oh, and I can't do prune juice....or any juice for the matter. Nothing acidic at all. So....my question is.....is there anything out there that I'm missing that would cause me to actually go to the bathroom??? I even tried a castor oil pack last night, and it just made me sick all today. So i'm about ready to give up!!  :angry:

Please help if you have ANY ideas. I'm up for anything at this point.  :(

~Brenda

<{POST_SNAPBACK}>

Senna? Senekot (OTC brand) was recommended to me by my doctor, and it did indeed work. It's not a fiber supplement, but it helps get the bowels moving. You might also look into dandelion root (in a tea) or aloe, from what I understand of herbal lore. I've also found that exercise helps - something high impact, like running.

Jen H Contributor
Jen H
Posted

Can you eat salad? That seems to work well for me. I've also heard that exercise can help with constipation. Hope you're feeling better soon.

Jen

Guest nini
Guest nini
Posted

apples seem to work for me...

BRCoats Enthusiast
BRCoats
Posted
  • Author

Wow. Thanks for all the replies...but....can't do any of them. I've tried senna before and thought I was gonna die (won't go into detail). :) Can't do salad, grapes, raisins, aloe....I tell ya'....I've tried everything. :( This has been going on for three years. No joke. I had a short period of time where I was actually going too much...but that has ended, and now I'm back to this clogged mess. I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

Sorry for the rant. But thanks for the concern. I crave all those good for you foods something terrible. I'm sure the fact that I eat meat and cheese all the time doesn't help. But it's all that agrees with my stomach. I homeschool three kids, so I don't feel like I can "afford" to be down for a day.

Ok, done with my pity party. :D Thanks again. Keep the ideas coming if you have them!

~Brenda

nogluten- Newbie
nogluten-
Posted
Wow. Thanks for all the replies...but....can't do any of them. I've tried senna before and thought I was gonna die (won't go into detail).  :) Can't do salad, grapes, raisins, aloe....I tell ya'....I've tried everything.  :( This has been going on for three years. No joke. I had a short period of time where I was actually going too much...but that has ended, and now I'm back to this clogged mess. I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

Sorry for the rant. But thanks for the concern. I crave all those good for you foods something terrible. I'm sure the fact that I eat meat and cheese all the time doesn't help. But it's all that agrees with my stomach. I homeschool three kids, so I don't feel like I can "afford" to be down for a day.

Ok, done with my pity party.  :D Thanks again. Keep the ideas coming if you have them!

~Brenda

<{POST_SNAPBACK}>

When I can't go Coca Cola works. :ph34r:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
Wow. Thanks for all the replies...but....can't do any of them. I've tried senna before and thought I was gonna die (won't go into detail).  :) Can't do salad, grapes, raisins, aloe....I tell ya'....I've tried everything.  :( This has been going on for three years. No joke. I had a short period of time where I was actually going too much...but that has ended, and now I'm back to this clogged mess. I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

Sorry for the rant. But thanks for the concern. I crave all those good for you foods something terrible. I'm sure the fact that I eat meat and cheese all the time doesn't help. But it's all that agrees with my stomach. I homeschool three kids, so I don't feel like I can "afford" to be down for a day.

Ok, done with my pity party.  :D Thanks again. Keep the ideas coming if you have them!

~Brenda

<{POST_SNAPBACK}>

Well, for me bananas, rice and cheese bind me something horrible. I can do citrucel, which you say you can't. How about dried apricots? Usually three in the morning for a few mornings works for me. When things are really bad there's always good ole Milk of mag. I have to be careful with that. One little sip and the next day I'm really loosened up, if you get my drift.

julie5914 Contributor
julie5914
Posted

What's in that Fleet stuff that you drink? I'm not sure if you can have it but it works....maybe too well. If you take it at night, you will be up all night, and if you take it during the day, let's just say avoid being around people. It will clean you out though.

tarnalberry Community Regular
tarnalberry
Posted
I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

<{POST_SNAPBACK}>

Just for reference, walking isn't high impact enough to "jar those nerves" in the intestinal system. (I'm talking jogging at least 5mph for at least 20 minutes, kind of thing.) I can understand if something that involves high impact is a problem with the energy restrictions, but walking is the "one tylenol" equivalent to treating a migraine that should be getting migraine medication. Sometimes, if it's all we have, though, it's what we have to work with. Sorry that those won't work though... That problem is NOT a comfortable one. :-(

skbird Contributor
skbird
Posted

Coffee works for me sometimes, doesn't have to be caffeinated. Also, you could look into those Fleet enemas - they are disposable and, well, at some point, ya gotta go, right? I'm sorry magnesium doesn't work for you, that is my secret weapon.

Lots of water. Very good because moisture in the gut is what you need to move things along. Is it you can't have fiber because of what fiber does (being tough to "stomach")?

I used to try aloe but found that every brand includes citric acid and I'm allergic to the mold that is used to make it.

Maybe you should look into the specific carbohydrate diet? That seems to cause initial diarrhea in people but then helps to heal their gut.

I hope someone has a good answer for you, sounds like a tough place to be!

Stephanie

BRCoats Enthusiast
BRCoats
Posted
  • Author

Stephanie,

I've actually tried the SCD. The reason it didn't work, is that I am unable to get enough carbs from it. So my energy level went down to ZIP!!! I mean, I was unable to do ANYTHING. It was incredible. They rely on honey and fruit sugars for carbs, both of which make me sicker than a dog. :angry:

As for coffee....I haven't really tried it. Before celiac disease and gastroparesis, I couldn't drink it, because it makes my heart flutter - yes, even the decaf (I've had open heart surgery and have a pacemaker also). So I guess I haven't even figured on trying that. But....I haven't really tried it since the heart surgery.....so maybe I'll give it a try (a very diluted try!). :lol:

To answer your question, yes, I can't have the fiber because it's too hard to digest. My stomach just can't handle it. :(

tarnalberry,

Well...I could start jogging for five minutes a day and work up from there maybe. Worth a try, eh?

nogluten,

Coca cola won't do it. Doesn't even phase me in that way. :( Thanks for the suggestion anyway!! As for dried apricots, I doubt that would work. I haven't been able to eat any dried fruit, so I'm not sure they would be any different. And any laxative that I've tried works well enough, but I'm deathly ill afterwards. I even run a fever. I mentioned trying the castor oil pack the other night, and I've been sick with a fever since. Weird......I still don't know why that is!!

Thanks everybody. I really do appreciate the time you spend in replying. And again, if there's any more ideas....I'd love to hear them!! :D Like coffee....hadn't thought of that. :o

~Brenda

P.S. Cute picture, Stephanie. :lol:

tarnalberry Community Regular
tarnalberry
Posted
Well...I could start jogging for five minutes a day and work up from there maybe. Worth a try, eh?

<{POST_SNAPBACK}>

That's a great idea! And you probably wouldn't have to work up for too long (maybe two weeks) to figure out if it will help you or not.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.