Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's A "nogo" Week


BRCoats

Recommended Posts

BRCoats Enthusiast

Hey all,

I'm sure you've all experienced a "NoGo" week, meaning never having a bowel movement. In fact, it's actually been more like two weeks. But here's the trick. I can't have fiber, no fiber supplements, no magnesium supplements, and no vitamin C. All of the above cause major problems with my gastroparesis (paralyzed stomach). Oh, and I can't do prune juice....or any juice for the matter. Nothing acidic at all. So....my question is.....is there anything out there that I'm missing that would cause me to actually go to the bathroom??? I even tried a castor oil pack last night, and it just made me sick all today. So i'm about ready to give up!! :angry:

Please help if you have ANY ideas. I'm up for anything at this point. :(

~Brenda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mstrain Rookie

Wow - sorry to hear of your discomfort. I can't believe the things you cannot have! You said nothing acidic and no juice - would this include all fruits as well? Blueberries and raisins always seem to work wonders on my kids (grapes also) but are you even allowed these items? Wishing you well.

tarnalberry Community Regular
Hey all,

I'm sure you've all experienced a "NoGo" week, meaning never having a bowel movement. In fact, it's actually been more like two weeks. But here's the trick. I can't have fiber, no fiber supplements, no magnesium supplements, and no vitamin C. All of the above cause major problems with my gastroparesis (paralyzed stomach). Oh, and I can't do prune juice....or any juice for the matter. Nothing acidic at all. So....my question is.....is there anything out there that I'm missing that would cause me to actually go to the bathroom??? I even tried a castor oil pack last night, and it just made me sick all today. So i'm about ready to give up!!  :angry:

Please help if you have ANY ideas. I'm up for anything at this point.  :(

~Brenda

<{POST_SNAPBACK}>

Senna? Senekot (OTC brand) was recommended to me by my doctor, and it did indeed work. It's not a fiber supplement, but it helps get the bowels moving. You might also look into dandelion root (in a tea) or aloe, from what I understand of herbal lore. I've also found that exercise helps - something high impact, like running.

Jen H Contributor

Can you eat salad? That seems to work well for me. I've also heard that exercise can help with constipation. Hope you're feeling better soon.

Jen

Guest nini

apples seem to work for me...

BRCoats Enthusiast

Wow. Thanks for all the replies...but....can't do any of them. I've tried senna before and thought I was gonna die (won't go into detail). :) Can't do salad, grapes, raisins, aloe....I tell ya'....I've tried everything. :( This has been going on for three years. No joke. I had a short period of time where I was actually going too much...but that has ended, and now I'm back to this clogged mess. I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

Sorry for the rant. But thanks for the concern. I crave all those good for you foods something terrible. I'm sure the fact that I eat meat and cheese all the time doesn't help. But it's all that agrees with my stomach. I homeschool three kids, so I don't feel like I can "afford" to be down for a day.

Ok, done with my pity party. :D Thanks again. Keep the ideas coming if you have them!

~Brenda

nogluten- Newbie
Wow. Thanks for all the replies...but....can't do any of them. I've tried senna before and thought I was gonna die (won't go into detail).  :) Can't do salad, grapes, raisins, aloe....I tell ya'....I've tried everything.  :( This has been going on for three years. No joke. I had a short period of time where I was actually going too much...but that has ended, and now I'm back to this clogged mess. I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

Sorry for the rant. But thanks for the concern. I crave all those good for you foods something terrible. I'm sure the fact that I eat meat and cheese all the time doesn't help. But it's all that agrees with my stomach. I homeschool three kids, so I don't feel like I can "afford" to be down for a day.

Ok, done with my pity party.  :D Thanks again. Keep the ideas coming if you have them!

~Brenda

<{POST_SNAPBACK}>

When I can't go Coca Cola works. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
Wow. Thanks for all the replies...but....can't do any of them. I've tried senna before and thought I was gonna die (won't go into detail).  :) Can't do salad, grapes, raisins, aloe....I tell ya'....I've tried everything.  :( This has been going on for three years. No joke. I had a short period of time where I was actually going too much...but that has ended, and now I'm back to this clogged mess. I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

Sorry for the rant. But thanks for the concern. I crave all those good for you foods something terrible. I'm sure the fact that I eat meat and cheese all the time doesn't help. But it's all that agrees with my stomach. I homeschool three kids, so I don't feel like I can "afford" to be down for a day.

Ok, done with my pity party.  :D Thanks again. Keep the ideas coming if you have them!

~Brenda

<{POST_SNAPBACK}>

Well, for me bananas, rice and cheese bind me something horrible. I can do citrucel, which you say you can't. How about dried apricots? Usually three in the morning for a few mornings works for me. When things are really bad there's always good ole Milk of mag. I have to be careful with that. One little sip and the next day I'm really loosened up, if you get my drift.

julie5914 Contributor

What's in that Fleet stuff that you drink? I'm not sure if you can have it but it works....maybe too well. If you take it at night, you will be up all night, and if you take it during the day, let's just say avoid being around people. It will clean you out though.

tarnalberry Community Regular
I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

<{POST_SNAPBACK}>

Just for reference, walking isn't high impact enough to "jar those nerves" in the intestinal system. (I'm talking jogging at least 5mph for at least 20 minutes, kind of thing.) I can understand if something that involves high impact is a problem with the energy restrictions, but walking is the "one tylenol" equivalent to treating a migraine that should be getting migraine medication. Sometimes, if it's all we have, though, it's what we have to work with. Sorry that those won't work though... That problem is NOT a comfortable one. :-(

skbird Contributor

Coffee works for me sometimes, doesn't have to be caffeinated. Also, you could look into those Fleet enemas - they are disposable and, well, at some point, ya gotta go, right? I'm sorry magnesium doesn't work for you, that is my secret weapon.

Lots of water. Very good because moisture in the gut is what you need to move things along. Is it you can't have fiber because of what fiber does (being tough to "stomach")?

I used to try aloe but found that every brand includes citric acid and I'm allergic to the mold that is used to make it.

Maybe you should look into the specific carbohydrate diet? That seems to cause initial diarrhea in people but then helps to heal their gut.

I hope someone has a good answer for you, sounds like a tough place to be!

Stephanie

BRCoats Enthusiast

Stephanie,

I've actually tried the SCD. The reason it didn't work, is that I am unable to get enough carbs from it. So my energy level went down to ZIP!!! I mean, I was unable to do ANYTHING. It was incredible. They rely on honey and fruit sugars for carbs, both of which make me sicker than a dog. :angry:

As for coffee....I haven't really tried it. Before celiac disease and gastroparesis, I couldn't drink it, because it makes my heart flutter - yes, even the decaf (I've had open heart surgery and have a pacemaker also). So I guess I haven't even figured on trying that. But....I haven't really tried it since the heart surgery.....so maybe I'll give it a try (a very diluted try!). :lol:

To answer your question, yes, I can't have the fiber because it's too hard to digest. My stomach just can't handle it. :(

tarnalberry,

Well...I could start jogging for five minutes a day and work up from there maybe. Worth a try, eh?

nogluten,

Coca cola won't do it. Doesn't even phase me in that way. :( Thanks for the suggestion anyway!! As for dried apricots, I doubt that would work. I haven't been able to eat any dried fruit, so I'm not sure they would be any different. And any laxative that I've tried works well enough, but I'm deathly ill afterwards. I even run a fever. I mentioned trying the castor oil pack the other night, and I've been sick with a fever since. Weird......I still don't know why that is!!

Thanks everybody. I really do appreciate the time you spend in replying. And again, if there's any more ideas....I'd love to hear them!! :D Like coffee....hadn't thought of that. :o

~Brenda

P.S. Cute picture, Stephanie. :lol:

tarnalberry Community Regular
Well...I could start jogging for five minutes a day and work up from there maybe. Worth a try, eh?

<{POST_SNAPBACK}>

That's a great idea! And you probably wouldn't have to work up for too long (maybe two weeks) to figure out if it will help you or not.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.