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Hi

iamrose

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iamrose Newbie
iamrose
Posted

Hello. I found this site from the Glutino site. Wanted to say 'hello'.

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bartfull Rising Star
bartfull
Posted

Hi Rose. I'm glad you found us! Do you have celiac or gluten intolerance? How long? Tell us a bit more about yourself, then dig in and read. This is the coolest site on the web, filled with some of the smartest, most supportive people you will find anywhere. Glad you could join us, and I hope you stick around.

GFinDC Veteran
GFinDC
Posted

Welcome Rose! Glad you joined us. We like to talk a lot but we can pause once in a while for a few seconds to say hello to new members I guess. So hello! :)

Just in case you are celiac are NCGI or wheat allergic or diabetic or autistic, or have Crohn's or just trying the gluten-free diet out, here are some threads with stuff to fill your brain:

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

How bad is cheating?

  • 4 weeks later...
Trotski01 Newbie
Trotski01
Posted

Hi I am Helen,

I am new to this site too, only got diagnosed as coeliac 3 days ago.

jerseyangel Proficient
jerseyangel
Posted

Welcome Helen and Rose:). Glad you found us-- don't hesitate to let us know how we can help.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hello Helen and Rose! Welcome. There's tons of info here, so read around a bit. There's a search box near the top right of your screen if there's a topic you're especially interested in. Please ask any questions you may have. We allow venting if needed too. :D

  • 4 weeks later...
Gemme Rookie
Gemme
Posted

I am also new here , good, perfectplace for learning and making friends!

Good Luck

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luckyme2 Newbie
luckyme2
Posted

Hi everybody :) !

I'm new here,too. My name is Anete,and I'm from the other coast (Eastern Europe). I recognized this disease some 5 years ago,didn't understand what's going on with me. Doctors here avoid such thing as celiac. I started to avoid glutens and my health improved. I'm fighting secretly,because it's a shame here to have any disease. My relatives and "friends" still make bad jokes on this theme. Now my diet is much healthier because I make my meals myself (for my family,too). Hope I can help somebody with my experience.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hi everybody :) !

I'm new here,too. My name is Anete,and I'm from the other coast (Eastern Europe). I recognized this disease some 5 years ago,didn't understand what's going on with me. Doctors here avoid such thing as celiac. I started to avoid glutens and my health improved. I'm fighting secretly,because it's a shame here to have any disease. My relatives and "friends" still make bad jokes on this theme. Now my diet is much healthier because I make my meals myself (for my family,too). Hope I can help somebody with my experience.

Hello and welcome Anete. I'm so sorry you don't have the support of your friends and family..or medical people. I'm glad you figured this out for yourself though.

We're here for you! :D

GottaSki Mentor
GottaSki
Posted

Welcome Rose, Helen, Gemme and Anete!

Glad you all found this forum - it really is the best place to come to get information, gain support, ask questions are simply vent when needed.

Fantastic accomplishment Anete - sounds like you are very strong to have tackled living gluten-free without support from doctors, family or friends. I am sure your experience will help others that visit this site.

Best wishes and happy healing to you all :)

scaredblossom Rookie
scaredblossom
Posted

Hi all, fairly new here to. I haven't gotten a professional diagnosis, but with eliminating gluten I self diagnosed myself ;)

I have missed this site the last few months....lost it on my computer :huh: I'm back now though and look forward to actually getting to know some others out here that have the same issues and hear success stories...I'm much more positive these days!! Things are getting better everyday!!

SensitiveMe Rookie
SensitiveMe
Posted

Hi Rose, I am a Rose also. :)

I am fairly new here myself so Hi to others new...Helen, Anete, Gemme, scaredblossom. :)

GFinDC Veteran
GFinDC
Posted

Hi Rose, I am a Rose also. :)

I am fairly new here myself so Hi to others new...Helen, Anete, Gemme, scaredblossom. :)

Welcome to all the newbies! We have lots of room at the forum inn, so make yourselves at home.:D

Making-A-Change Newbie
Making-A-Change
Posted

Hello everyone. I am also new here. My name is Eddie. I am female lol. I also am self diagnosed right now. Maybe forever since my doc doesnt take this thing seriously at all. So here I am trying to get some good quality info under my belt to help me on this journey of becoming gluten free. :)

1desperateladysaved Proficient
1desperateladysaved
Posted

Hi to all, :)

Get better soon.

Not too many send flowers for Celiac, so here is my best.

* * *

*0* *0* *0*

! ! !

I am thinking some artist can do better, but those are the best flowers I got. I have much better ones in the garden, but I couldn't get them into the computer.

Diana

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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