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When Will Symptoms Disappear?


shellb65

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shellb65 Newbie

Im 3 1/2 weeks gluten-free. The burning I'm my stomach and under my right rib is finally gone but I'm still having some pain in my back (indigestion?). When can I expect to feel normal again? Ive heard 3 months and I've heard it may take an entire year? Anyone else have upper back pain from heartburn or indigestion?


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~**caselynn**~ Enthusiast

Im 3 1/2 weeks gluten-free. The burning I'm my stomach and under my right rib is finally gone but I'm still having some pain in my back (indigestion?). When can I expect to feel normal again? Ive heard 3 months and I've heard it may take an entire year? Anyone else have upper back pain from heartburn or indigestion?

Welcome! That's a good question that unfortunately there is no hard and fast answer to. At 3.5 weeks your body is still adjusting to gluten free, some people heal quicker than others, it depends on how long you have gone without diagnosis. Your body has to work to undo all of the damage incurred, and recovery can be a slow process, some say years. I,myself am over a year gluten-free and feeling pretty good but not quite there yet! I do wonder, given your right upper quadrant pain, do you still have your gallbladder? Those little suckers can be troublesome! Good luck to you!! :)

shellb65 Newbie

Thank you for your reply. I had my gallbladder removed many years ago and last time we checked liver and pancreas function were normal. I'm not sure what is in that area that could be bothering me. I'm seeing my doc today. Hopefully he can figure it out.

quincy Contributor

Im 3 1/2 weeks gluten-free. The burning I'm my stomach and under my right rib is finally gone but I'm still having some pain in my back (indigestion?). When can I expect to feel normal again? Ive heard 3 months and I've heard it may take an entire year? Anyone else have upper back pain from heartburn or indigestion?

I had what you describe for several months maybe 6 mos after going gluten free. My guess is the throbbing pain in my right back was duodenitis? I never got an answer from any doctors about it but I assume inflammation in the intestine. For me it was very uncomfortable because I sleep on my right side and it felt like something was always "pulling" on my gut there.. and it went to the back.

3.5 weeks very very early in your healing process. I am 2 years out but first year was just long haul..... hang in there though it will get better. I assume you had endoscopy. Did you find out what level of celiac damage you had? ie marsh level I II III

Christine0125 Contributor

I have been gluten-free since April and I am now having more good days than bad. I believe I was glutoned on vacation a couple weeks ago and have developed dh but the nausea and headaches are greatly improved and the brain fog seems to be lifting. Hang in there... I was disappointed when I wasn't seeing immediate improvements but I can now tell a marked change and hoping for even more in the next few months.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
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    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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