Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Fellow Cd's In Nc

Lisa

By Lisa
in Introduce Yourself / Share Stuff

Recommended Posts

lizard00 Enthusiast
lizard00
Posted

I'm another Raleigh-ite :)

Momma Goose, we had some friends that used to live in Edenton. It's beautiful there. I grew up in southeastern VA, Suffolk. It's about a hour to Edenton (if I remember) and about an hour and a half to the OBX. I miss being so close to the ocean...

Liz

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
  • Author
I'm another Raleigh-ite :)

Momma Goose, we had some friends that used to live in Edenton. It's beautiful there. I grew up in southeastern VA, Suffolk. It's about a hour to Edenton (if I remember) and about an hour and a half to the OBX. I miss being so close to the ocean...

Liz

Yup, that would be us. :D PM me about your friends, perhaps we know them. Raleigh really is a small town, you know. We send our kids to go to school there and they never want to leave. Well, some appreciate "home".

lizard00 Enthusiast
lizard00
Posted

Where do your kids go to school?

When I first moved here from Suffolk, I though this place was HUGE!! But my husband and I have been here 4 years now and doesn't seem so big anymore. It's big enough for me... of course everything is very compartmentalized, so you really never have to go more than 5 miles from your home if you don't want to. I have two groceries within walking distance, a drug store and a gym... along with quite a few eateries. What else do you need? lol

Your kids will appreciate home as they get older. It probably seems small to them now, but there's nothing quite like home. :)

lmthoma Newbie
lmthoma
Posted

Those living in Hendersonville, NC- I am the manager at Potenza, an italian restaurant downtown, and we just started a gluten-free menu that includes pastas. My younger brother has celiac so I know how difficult it can be to go out to eat. I am not trying to shamelessly promote my restaurant but I do want to let people know that there are options out there and more and more people are becoming aware of celiac disease. I would love feedback on what peoples needs are when they are dining out.

  • 3 months later...
nikken007 Rookie
nikken007
Posted

Hi,

I live in Cary and have been gluten free for at least 3 months. My husband has a gluten intolerance and I highly suspect I do as well. I have no proof, except I feel a lot better! I do have 2 genes for celiac/gluten intolerance. I also have a sister who diagnosed herself with Celiac. We both had the enterolab test. The results were very surprising to us.

I want to let you Raleigh area people know there is a Celiac group that meets once a month at Rex hospital. It's the third thursday of each month. There will be a break for a month and then start back up July 17.

Breila Explorer
Breila
Posted
Hi,

I live in Cary and have been gluten free for at least 3 months. My husband has a gluten intolerance and I highly suspect I do as well. I have no proof, except I feel a lot better! I do have 2 genes for celiac/gluten intolerance. I also have a sister who diagnosed herself with Celiac. We both had the enterolab test. The results were very surprising to us.

I want to let you Raleigh area people know there is a Celiac group that meets once a month at Rex hospital. It's the third thursday of each month. There will be a break for a month and then start back up July 17.

Hi, I was at the meeting last night, were you there?

I'm in Garner, btw.

nikken007 Rookie
nikken007
Posted

Yes, I was there. I was on the end of the table. I have brown, below the shoulder hair. I had a brown sweater and an olive green shirt. I was a little late and sat next to the new lady in pink.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Breila Explorer
Breila
Posted
Yes, I was there. I was on the end of the table. I have brown, below the shoulder hair. I had a brown sweater and an olive green shirt. I was a little late and sat next to the new lady in pink.

Ah yes, I was new, sitting at the other end of the table, short hair and a blue tank top.

Guest digmom1014
Guest digmom1014
Posted

Hi-

Just chiming in, I live in Matthews, south of Charlotte. There is an active Charlotte celiac group that I have not been able to meet with yet.

Has anybody been to the Celiac Cookie House in Cornelius? I am trying convince myself to make the drive. I have been sugar-free, dairy-free, egg-free for 4 months and am not sure I feel comfortable introducing those items again. I went gluten-free in Jan. after many years of being sick.

  • 2 months later...
Stormycubs Newbie
Stormycubs
Posted
Hi, I was at the meeting last night, were you there?

I'm in Garner, btw.

Hi all-

My name is Brandy and I just met Amy at the mall today and she was talking about the rex group. My daughter is 6 and we found out she had celiac when she was 3ish. I have been looking for others around so I am so interested in the rex group. We live in Holly Springs. Can you give me all the info as to where the group meets and the time. I know the next meeting is tonight and I hate that I wont be able to make it. But hopefully I can make the next one. Thanks so much and its so nice to know there are others around going through the same stuff. I can't wait for Kendall to get home from school so I can tell her about the group!!!! :D :D :D :D

Ridgewalker Contributor
Ridgewalker
Posted
Hi all-

My name is Brandy and I just met Amy at the mall today and she was talking about the rex group. My daughter is 6 and we found out she had celiac when she was 3ish. I have been looking for others around so I am so interested in the rex group. We live in Holly Springs. Can you give me all the info as to where the group meets and the time. I know the next meeting is tonight and I hate that I wont be able to make it. But hopefully I can make the next one. Thanks so much and its so nice to know there are others around going through the same stuff. I can't wait for Kendall to get home from school so I can tell her about the group!!!! :D :D :D :D

Well, I got all excited seeing Holly Springs at first... There is a little town called Holly Springs that's just a hop, skip, and a jump from us- We live in Pilot Mountain/Pinnacle. I have two boys, ages 5 and 7. But then I remembered there's a bigger town called Holly Springs down near Raleigh. I bet that's the one you're referring to... Oh well. There are a handful of Raleigh members here, so others should chime in soon! :D

MinRalph Rookie
MinRalph
Posted

Hi everyone :)

I live in Jacksoneville, NC and have celiac disease. I have just recently heard of more people who have or know someone who has celiac disease or wheat allergies. It seems to be becoming much more well known, which I find pretty cool. Our local stores actually have a few gluten-free products in them!

Anyway, I just wanted to throw myself out there :D

  • 1 month later...
Guest elysealec
Guest elysealec
Posted
I am also in Wilmington and would love to meet other celiacs in the area. I was just diagnosed this week.

Holly

I live in Kure Beach and am in Wilmington every day. I know of one other celiac in the area. I am sure there are many more. We were talking about getting a gluten free dinner club together. Any interest?

Vicki

  • 6 months later...
KristynRCP Newbie
KristynRCP
Posted

Hello I was Dx with celiac disease at end of December. I am from Rocky Mount, NC... there is no gluten-free stuff here.. no restaurants or anything.. I have a birthday coming up and I am looking for a gluten free cake.. any ideas from anyone? Im not good at the gluten-free cooking yet..so im looking for a bakery or something like that.....There is no support group here either.. wish i could get one started .....

Kristyn

Lisa Mentor
Lisa
Posted
  • Author

Kristyn,

I am not from Rocky Mount, but I'm not far. Do you have a Food Lion, if so they have a health food section which carries Pamela's Cake Mixes. Make them as you would a regular cake and I would dare anyone to tell the difference. Pillsbury Frosting often has gluten free choices, you just have to read the label. Wal Mart has many options for gluten free. It's out there, ya just have to find 'em.

The best support you will find in your area is right here on C.com.

bear6954 Apprentice
bear6954
Posted

For anyone in Jacksonville, NC, White Oak Bakery makes gluten free cakes and cookies. You need to call and special order and they are expensive. However, I got a gluten-free cake for my son and it was wonderful. He was so happy to eat cake with everyone else. It brought tears to my eyes!

  • 4 weeks later...
sedkins Newbie
sedkins
Posted

Hello. I am new to this board, but have been gluten-free/CF for about 3 years. My son (11) was recently diagnosed as likely having celiac disease, although he has been gluten-free off and on for about 3 years. We are looking for a support group, particularly one where he might be able to meet some other kids his age because he is really struggling with being "different." We are located in Lumberton, south of Fayetteville.

  • 2 months later...
TotalKnowledge Apprentice
TotalKnowledge
Posted
Dear Lisa B.,

I am celiac in Wilmington, NC. Have you heard of any fellow celiacs in this area. I have only been gluten free since Aug 2006 and really haven't found anyone to relate to.

Thanks for your help!

Have a Happy 4th!

Mary Katherine Talley

There is a relatively new support group that is held and Lovey's once a month. I have only been to one meeting, but there were a several people there. They have a sign-up sheet there at the information table right when you come in next to the cafe seating.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.