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Newbie- Waiting For Blood Tests Results

kellbeth

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kellbeth Newbie
kellbeth
Posted

Hi! This is my first time to ever post in a forum, hope i am doing it right.

I am the one who finally asked my doctor to do a Celiac panel after stranger and stranger symptoms over the last 3 years. I have no known family members with Ceiacs but I don't think any of them have ever been tested either. There is however lots of autoimune disease on my mom's side of the family, IBS type symptoms, and everyone has had their gall bladders out.

I was not aware of celiac disease until I kept getting these strange rashes last year and while googling my symptoms Dermatitis Herpetiformis kept coming up and looked very much like my rashes.

Some of the symptoms I have been experiencing.

I will try to make this a short as possible :)

Nausea-typically in the afternoon or evening

Dizziness

Joint pain-hands, knees, left shoulder, neck and hip

Fatigue- at times i feel like if i closed my eyes my haed would roll right off my shoulders

IrritabilityMild anxiety

Increased headachesIrregular bowel habbits- I go from normal to diarrea(or just very loose) to contipation. I have been noticing a need to go but then...nothing, just lots of cramping. A couple of years ago i would experience some bleeding when i went. I think it was do to a fissur(SP?)

Possible DH- last May i broke out back behind my left knee and then in several other locations over the next several months till it setled on my left elbow for 3 months. It returned this April on my elbow and then exploded at the end of May. Doctors didnt know what it was so they put me on steroids. Cleared it up but the day i stopped taking them left elbow flared back up and now i have ithchy blisters on my hands and right elbow as well.

Bloating and indegestion- started when the rashes started

Brain Fog

Innability to consentrate

Tingling and pins and needles-these symptoms started in January and come and go on both sides of my body.

Gallbladder pain-started a couple of months ago

I think that is about it :)

Is Celiacs or Gluten Sensitivity a reasonable thing to suspect?

I do plan to go Gluten free weather the results are positive or negative, just to see.

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      Concerning GP advice

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    • trents
      Concerning GP advice

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      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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