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Newbie- Waiting For Blood Tests Results


kellbeth

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kellbeth Newbie

Hi! This is my first time to ever post in a forum, hope i am doing it right.

I am the one who finally asked my doctor to do a Celiac panel after stranger and stranger symptoms over the last 3 years. I have no known family members with Ceiacs but I don't think any of them have ever been tested either. There is however lots of autoimune disease on my mom's side of the family, IBS type symptoms, and everyone has had their gall bladders out.

I was not aware of celiac disease until I kept getting these strange rashes last year and while googling my symptoms Dermatitis Herpetiformis kept coming up and looked very much like my rashes.

Some of the symptoms I have been experiencing.

I will try to make this a short as possible :)

Nausea-typically in the afternoon or evening

Dizziness

Joint pain-hands, knees, left shoulder, neck and hip

Fatigue- at times i feel like if i closed my eyes my haed would roll right off my shoulders

IrritabilityMild anxiety

Increased headachesIrregular bowel habbits- I go from normal to diarrea(or just very loose) to contipation. I have been noticing a need to go but then...nothing, just lots of cramping. A couple of years ago i would experience some bleeding when i went. I think it was do to a fissur(SP?)

Possible DH- last May i broke out back behind my left knee and then in several other locations over the next several months till it setled on my left elbow for 3 months. It returned this April on my elbow and then exploded at the end of May. Doctors didnt know what it was so they put me on steroids. Cleared it up but the day i stopped taking them left elbow flared back up and now i have ithchy blisters on my hands and right elbow as well.

Bloating and indegestion- started when the rashes started

Brain Fog

Innability to consentrate

Tingling and pins and needles-these symptoms started in January and come and go on both sides of my body.

Gallbladder pain-started a couple of months ago

I think that is about it :)

Is Celiacs or Gluten Sensitivity a reasonable thing to suspect?

I do plan to go Gluten free weather the results are positive or negative, just to see.


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    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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