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Newbie- Waiting For Blood Tests Results

kellbeth

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kellbeth Newbie
kellbeth
Posted

Hi! This is my first time to ever post in a forum, hope i am doing it right.

I am the one who finally asked my doctor to do a Celiac panel after stranger and stranger symptoms over the last 3 years. I have no known family members with Ceiacs but I don't think any of them have ever been tested either. There is however lots of autoimune disease on my mom's side of the family, IBS type symptoms, and everyone has had their gall bladders out.

I was not aware of celiac disease until I kept getting these strange rashes last year and while googling my symptoms Dermatitis Herpetiformis kept coming up and looked very much like my rashes.

Some of the symptoms I have been experiencing.

I will try to make this a short as possible :)

Nausea-typically in the afternoon or evening

Dizziness

Joint pain-hands, knees, left shoulder, neck and hip

Fatigue- at times i feel like if i closed my eyes my haed would roll right off my shoulders

IrritabilityMild anxiety

Increased headachesIrregular bowel habbits- I go from normal to diarrea(or just very loose) to contipation. I have been noticing a need to go but then...nothing, just lots of cramping. A couple of years ago i would experience some bleeding when i went. I think it was do to a fissur(SP?)

Possible DH- last May i broke out back behind my left knee and then in several other locations over the next several months till it setled on my left elbow for 3 months. It returned this April on my elbow and then exploded at the end of May. Doctors didnt know what it was so they put me on steroids. Cleared it up but the day i stopped taking them left elbow flared back up and now i have ithchy blisters on my hands and right elbow as well.

Bloating and indegestion- started when the rashes started

Brain Fog

Innability to consentrate

Tingling and pins and needles-these symptoms started in January and come and go on both sides of my body.

Gallbladder pain-started a couple of months ago

I think that is about it :)

Is Celiacs or Gluten Sensitivity a reasonable thing to suspect?

I do plan to go Gluten free weather the results are positive or negative, just to see.

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      Is it gluten?

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      Thanks for the reply. 
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      nothing has changed

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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Is it gluten?

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