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Someone To Talk To


anwen98

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anwen98 Newbie

hi, my name is Anwen and i am 13(nearly 14) years old. I was diagnosed with celiac about 3 years ago and have been gluten-free since then. But, even tho I have been gluten-free for so long I still find the temptation hard to deal with. My family and freinds are all very supportive but none of them have celiac so I feel they do not quite understand and I would love a penpal who also has celiac that I could talk to. Any replies would be appreciated.

Thanks :)


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rosetapper23 Explorer

I'm sorry you're feeling so alone with your celiac! The Gluten Intolerance Group of North America has a program for teens where you can be put in touch with teens throughout the U.S. with celiac or gluten sensitivity. Here's the link to Teen Advocates with Gluten Sensitivities (TAGS):

Open Original Shared Link

You should find lots of support there!

Laura

shauniscrazy Explorer

hi, my name is Anwen and i am 13(nearly 14) years old. I was diagnosed with celiac about 3 years ago and have been gluten-free since then. But, even tho I have been gluten-free for so long I still find the temptation hard to deal with. My family and freinds are all very supportive but none of them have celiac so I feel they do not quite understand and I would love a penpal who also has celiac that I could talk to. Any replies would be appreciated.

Thanks :)

Hey im shaun i am 16 and would like a pen pal too

  • 2 weeks later...
KatieL1321 Rookie

Hey! I'm Katie and I'm 15 years old. I was diagnosed this year in january and would love a penpal :)

kaitlynrose Rookie

Hey, I'm Kaitlyn :) I'm 17 and I've been gluten-free for a little over 2 years. I'd love a penpal :)

Gemme Rookie

Hello Anwen,

Just to say i feel so sorry for you , so young , I am 56 and feel alone in family as they all mix up and talk while eating. This is one hard fact we all have to face.

Hope you will find good friends here.

Take Care

  • 2 weeks later...
Ebonyjade93 Rookie

Heyy I'm Ebony, I'm 19 and the only one in my family who is gluten free, it would be good to have a penpal to talk to about everything :) xx


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Madilou7 Newbie

Hey I'm 13 and I've had celiac disease for 9 years. I would love to have somebody to talk to. It's really easy to feel alone in this and I highly suggest you find somebody to talk to.

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  • Posts

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      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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