Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Not Sure What This Is, But Trying To Figure It Out...

josh052980

By josh052980
in Coping with Celiac Disease

Recommended Posts

josh052980 Enthusiast
josh052980
Posted

Ok, the really crappy part here is that it seems to happen only after eating at Five Guys. It's not a glutening, so I'm not sure what is going on.

If I eat at Five Guys (and I've been known to be a real ass there. The Five Guys in my neighborhood seems to be the worst of them. They have to be CONSTANTLY reminded about CC, to the point that I had them remake a burger and change their gloves. I know I'm not getting glutened for that reason, and this is just different symptoms than my glutening symptoms.

About 5 hours after I eat the burger, I get jittery. My joint begin to ache (when I'm glutened it's my entire body that aches) I'll get a bit of a headache, some heart palpitations and the most noticable of all, SWEATING. Last night for example. I had Five Guys for lunch, dealt with joint aches from about 7pm on, then I went to sleep. I was jolted awake for no reason around 2am, and the sheets had several sweat spots in them, where they were just soaked, but my body was dry. My heart wasn't racing, but it was pounding.

My first thought with all of this is MSG, but I'm not sure. I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Ok, the really crappy part here is that it seems to happen only after eating at Five Guys. It's not a glutening, so I'm not sure what is going on.

If I eat at Five Guys (and I've been known to be a real ass there. The Five Guys in my neighborhood seems to be the worst of them. They have to be CONSTANTLY reminded about CC, to the point that I had them remake a burger and change their gloves. I know I'm not getting glutened for that reason, and this is just different symptoms than my glutening symptoms.

About 5 hours after I eat the burger, I get jittery. My joint begin to ache (when I'm glutened it's my entire body that aches) I'll get a bit of a headache, some heart palpitations and the most noticable of all, SWEATING. Last night for example. I had Five Guys for lunch, dealt with joint aches from about 7pm on, then I went to sleep. I was jolted awake for no reason around 2am, and the sheets had several sweat spots in them, where they were just soaked, but my body was dry. My heart wasn't racing, but it was pounding.

My first thought with all of this is MSG, but I'm not sure. I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

Are you ok with peanuts/legumes? I know the ones I've been to fry the potatoes in peanut oil.

josh052980 Enthusiast
josh052980
Posted
  • Author

I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

I am fine with peanuts/legumes, and it wouldn't matter anyways, I didn't have any fries.

jerseyangel Proficient
jerseyangel
Posted

I am fine with peanuts/legumes, and it wouldn't matter anyways, I didn't have any fries.

Whoops, my mistake. Can't think of anything else, I'm sure you are normally ok with the things you had on the burger or you wouldn't have ordered it that way. Sometimes I get reactions that I just can't pin to any one thing. It's frustrating, I know. Hopefully someone else will chime in with other ideas. :)

josh052980 Enthusiast
josh052980
Posted
  • Author

Whoops, my mistake. Can't think of anything else, I'm sure you are normally ok with the things you had on the burger or you wouldn't have ordered it that way. Sometimes I get reactions that I just can't pin to any one thing. It's frustrating, I know. Hopefully someone else will chime in with other ideas. :)

I'm still thinking it's MSG. I've heard they lace the burgers with it too, but I've never been able to find a way to substantiate that claim.

kareng Grand Master
kareng
Posted

Just a thought but, if everytime you eat there, you feel bad.....don't eat there? :)

josh052980 Enthusiast
josh052980
Posted
  • Author

Just a thought but, if everytime you eat there, you feel bad.....don't eat there? :)

I may just do that. I can't seem to narrow down the culprit. It's not every time I eat there though, that's the kicker. I guess it's going to have to be a once in a while thing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Salax Contributor
Salax
Posted

My first thought was a possibility of MSG as well. I wonder if you could get them to put no seasoning on it if it would help? Or even call the corporate office and ask if they use MSG? Or like someone else said, don't eat there LOL. B)

josh052980 Enthusiast
josh052980
Posted
  • Author

My first thought was a possibility of MSG as well. I wonder if you could get them to put no seasoning on it if it would help? Or even call the corporate office and ask if they use MSG? Or like someone else said, don't eat there LOL. B)

I HATE the possibility of not eating there; there's not many places near me that are safe to go out and eat, so it's yet another limitation. But waking up in a sweat kinda sucks too...

Salax Contributor
Salax
Posted

Understandable. So maybe see if they put seasoning on it while it's cooking and ask them not too and see what happens? Hopefully that will solve it. B)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,159
    • Most Online (within 30 mins)
      7,748
    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      EMA Result

      By trents · Posted

      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      Violent reaction to gluten after going gluten-free?

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • Scott Adams
      Seeking advice on potential gluten challenge

      By Scott Adams · Posted

      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      Violent reaction to gluten after going gluten-free?

      By Greymo · Posted

      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      EMA Result

      By trents · Posted

      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.