Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Guess This Is It?

gatita

Recommended Posts

gatita Enthusiast
gatita
Posted

Soooo.... my blood test came back negative but my doc (who is a nice version of Dr. House and never gives up) suspected gluten intolerance and put me on an elimination diet. After two weeks, my D was almost gone and joints were feeling better. Then I accidentally drank something made from wheat berries and had a big, bad reaction.

My doc thinks that's enough for him to diagnose "gluten intolerance" and says as long as I don't mind staying gluten-free, I should just continue with the diet and leave it at that.

I'm okay with being gluten-free forever as long as I keep feeling better.

He says if I really need to know more I could try eating another gluten food and see if I react again, but he doesn't recommend it and says it's not necessary.

My question is: Is there any important reason I should try to definitively confirm/rule out celiac?

Or should I just stay on the diet and leave it at that?

ps. Been lurking here for a couple weeks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

Soooo.... my blood test came back negative but my doc (who is a nice version of Dr. House and never gives up) suspected gluten intolerance and put me on an elimination diet. After two weeks, my D was almost gone and joints were feeling better. Then I accidentally drank something made from wheat berries and had a big, bad reaction.

My doc thinks that's enough for him to diagnose "gluten intolerance" and says as long as I don't mind staying gluten-free, I should just continue with the diet and leave it at that.

I'm okay with being gluten-free forever as long as I keep feeling better.

He says if I really need to know more I could try eating another gluten food and see if I react again, but he doesn't recommend it and says it's not necessary.

My question is: Is there any important reason I should try to definitively confirm/rule out celiac?

Or should I just stay on the diet and leave it at that?

ps. Been lurking here for a couple weeks — great forum! Y'all are so helpful :)

At this point, if you can commit to staying gluten free, there wouldn't necessarily be a point to undergo gluten challenges and testing.

On the other hand, if you still have symptoms, you would want to pursue that just to make sure you don't have something else. Also, if there are special needs such as dining plans in college (or assisted living, for that matter, LOL) you do need a doctor to give a firm diagnosis so they can send a letter to the institution. So, it really depends on your personal circumstances.

Sounds like you are better without gluten, and for many that is enough of an answer!

Welcome to the forum, by the way!

lovegrov Collaborator
lovegrov
Posted

If both your doctor and you become convinced that gluten was indeed the problem, I don't see a reason for anything else.

richard

GottaSki Mentor
GottaSki
Posted

Welcome!

Happy to hear you have a great doctor - not enough doctors understand the havoc gluten can play in the body.

Since you are improving and ready to stay gluten-free, I'd say there is no need for further testing. It can be very tough to go back on gluten for testing as it is recommended that you eat substantial amounts for at least three months. Even then the testing can be negative, which would be extremely frustrating not to mention potentially harmful.

gatita Enthusiast
gatita
Posted
  • Author

Thanks for the welcome and all your insight.

I can probably get a letter from my doc saying "severe gluten intolerance"... for the nursing home or jail or whatever LOL...

Yes, my doc is a good one!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    2. Celiacpartner
      - Celiacpartner replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough!
    3. trents
      - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    4. Rogol72
      - Rogol72 replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or...
    5. Scott Adams
      - Scott Adams replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,351
    • Most Online (within 30 mins)
      7,748
    GiGinger
    Newest Member
    GiGinger
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Could this be a new intolerance

      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      Could this be a new intolerance

      By trents · Posted

      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      Could this be a new intolerance

      By Rogol72 · Posted

      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      Could this be a new intolerance

      By Scott Adams · Posted

      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
×
×
  • Create New...