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kingman

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kingman Rookie

I was diagnosed celiac as an infant. I had seemingly built up a tolerance but in my 20


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love2travel Mentor

I have 3 herniated discs in my lower back, disc degeration, myofascial pain syndrome, IT band syndrome and fibromyalgia. So, I understand pain. :( I did get several rounds of injections but they did nothing for my pain whatsoever. But that is partially because there are so many trigger and tender points on my body and I had to pick and choose the worst. How can I choose 5-10 sites when most of my body is riddled with pain? But I am thinking of giving it a try again, at least for the very worst sites. I'd be interested if you try it again, too. If so, I sincerely hope you find lasting relief! :)

  • 2 weeks later...
Kiwiwio Newbie

I used to be a professional athlete and had a ruptured disc in my cervical spine. After one round of cortisone, feeling returned to my hand and the pain subsided but never stopped completely. I recommend nightly (light) muscle relaxers and IBuprofein several times in the day (unless you start to vomit blood). You can look into surgical options but I have had the fortune to speak to some of the best surgeons and sports doctors in the world from France, USA, Germany and New Zealand and the information I received from them and my fellow athletes with the same injury was AVOID surgery, if you can. Also, you can try stretches and rehab. Once you become gluten free, you may find the swelling goes down and life is more tolerable- I did.

I was diagnosed celiac as an infant. I had seemingly built up a tolerance but in my 20

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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