Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brand New, Need A Few Answers


stacyisgf

Recommended Posts

stacyisgf Newbie

Hi to all gluten-free's out there, I was just diagnosed with Celiac Disease-- +Iga after so many misdiagnosis of IBS. I'm 2 weeks knowing now and I feel soo much better!! I can't believe it! I have soo many questions...but first up, is there a good book source ( 1 book) that is like the bible of gluten-free that is good to have to flip and get the answer to anything gluten-free?? Also, I'm having a hard time knowing which seasonings are a problem, is there terms to look for like (garlic-powder) "powder" being the problem. Over all where is the best place to shop just gluten-free?? Help and thanks... :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Powder, as in garlic powder, means dehydrated. The moisture is removed--nothing is added. Powdered or dehydrated plants are gluten-free, as long as they weren't gluten grains to begin with. I have never seen wheat, barley, rye or oats sold as a "powder," and wheat would have to be explicitly declared in the US and in Canada.

Things like "garlic salt" may contain other ingredients besides dehydrated garlic and salt, so read the ingredients carefully. Again, wheat can not, by law, be concealed.

GottaSki Mentor

Welcome Stacy!

I think you've found the best place to get answers when newly gluten free. I read a few books when I was first dx'd, but really learned much more here. I can tell you that there are some good books, but definitely not one book that will tell you everything. You will learn as time passes - while the learning curve is tough, living gluten-free becomes much easier with time.

Check out the FAQs thread:

https://www.celiac.com/gluten-free/forum-5/announcement-3-frequently-asked-questions-about-celiac-disease/

The best place to shop gluten free is the outer perimeter of the grocery store - sticking to whole foods and avoiding processed foods during the early days is the best way to heal. That being said you can find "gluten free" items at any store - I like Trader Joe's, Amazon for cereals, pasta and baking supplies. Udi's bread is probably the easiest good gluten-free bread to find - there are some other very good ones, but some taste like drywall -- I know that dropping $5 on a loaf of inedible bread really ticked me off when first gluten-free. Many processed and snack foods are gluten free even if not labeled "gluten free" - when in doubt google the item -- the search usually brings you back here. The best way to assure something is gluten free is the website of the company that produces the item - if still in doubt - call or email them.

Good Luck to you :)

Adalaide Mentor

A note about bread. If you try gluten free bread and decide it sucks, don't have any for like 3 or 6 months and try again. While I didn't think it sucked, I was unimpressed with it. After not having any sort of bread for several months, when I finally had some again last week it was like mana from heaven. I prefer Rudi's to Udi's but apparently it isn't available everywhere. Be sure to check your stores for what is then like them on facebook and check their websites, you can find coupons that way.

Oh, and I guess I'll add that I was already a couponer shopping with a 3-ring binder but I printed out a list of ingredients to watch for. I also printed out lists for my favorite fast food places (and threw them all away except Wendy's) and a few other "survival" things I felt I needed. I keep that with me still in my Jeep and never leave home without it. I'll refer to it sometimes but after a few months you'll be a old hand and hardly need a list of what to look for on an ingredients list.

stacyisgf Newbie

Thank you all so much! It's so nice to know I have other's that are looking for the same things I am when shopping. Im getting there, I just bought rice milk for the first time, I must say it's not bad at all!! I think what happens is.....after you have been off the old way, you start liking th new way just because you need something to take it's place. I like the Udi's hamburger buns. I have chicken salad on it and that was a nice treat! I love Dr. Lucy's chocolate cookies. I haven't attempted any fast food yet, have no idea what I can get and where....if anyone has a tip...please share. Thank you all

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

    2. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    5. - oscarbolduc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Advice while waiting for testing


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,882
    • Most Online (within 30 mins)
      7,748

    Nicole King
    Newest Member
    Nicole King
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • oscarbolduc
      Hello, I'm relatively new to this, so I'm hoping to get some advice. I went gluten-free for most of April and felt the best I've ever felt. I’ve been experiencing strange symptoms since last August, but they all disappeared when I eliminated gluten. However, to get accurate blood test results, I’m back on gluten for a month (all of May), and I’m honestly feeling miserable. I’ve been dealing with joint pain, bloating, diarrhea, and just overall discomfort. Does anyone have tips on how to manage these symptoms during this month? What has helped you with joint pain? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.