Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Going Gluten Free Help Me? (Add)

Dandelion123

Recommended Posts

Dandelion123 Newbie
Dandelion123
Posted

Hi everyone, this is my first post here. My husband and I just started a gluten free trial 3 days ago in the hopes that it will help our problems. My husband has been having bad digestive problems and pain in his abdominal area for probably about a year now. He has seen many doctors but none found a satisfying solution to his problems. He had an endoscopy done that revealed a little damage and an ulcer, but omeprazole hasn't worked to make him feel better.

As for me, I found out a few months ago I most probably have ADD. I am very forgetful, unmotivated, procrastinate a lot, etc. etc. I was reading about going gluten free sometimes helping people with ADD and am very hopeful this will work. I also ha be several other possible symptoms of gluten intolerance. My teeth are very, very bad, cavity prone, weak enamel, several root canals and pulled teeth, and I'm only 26. As a teen I used to get very sharp pains in my leg bones, and I occasionally get them now too. I have bad acne, a geographic tongue, and a few other scattered seemingly unrelated symptoms that have been associated with gluten intolerance.

Does it sound possible my husband and/or I could benefit from a gluten free diet? We could have gotten tested I guess but we just lost our insurance so we thought going gluten free for a few months would be the cheapest way to find out if it works for us.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Hi,

Your symptoms could be celiac related. there are 300 or so symptoms of celiac so there is quite a range of them. You could start the gluten-free diet without testing, but it might be worthwhile to look at LabCorp or some other testing source that might fit your budget. It would be no harm to try the gluten-free diet after testing, regardless of the results. The gluten-free diet is a pretty healthy diet compared to what most people eat.

Doing testing later could be difficult as the reactions to gluten can be more intense after being gluten-free a while. So it makes sense to do it first if you can swing it. There is a home test called Biocard in Canada.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.co...celiac-disease/

Newbie Info 101

http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?

http://www.celiac.co...reakfast-today/

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

Dessert thread

http://www.celiac.co...399#entry802399

Easy yummy bread in minutes

http://www.celiac.co...ead-in-minutes/

How bad is cheating?

http://www.celiac.co...t-periodically/

Short temper thread

http://www.celiac.co...per-depression/

Non celiac wheat sensitivity article

Open Original Shared Link

Guest
Guest
Posted

Hello, you really should know if you are gluten intolerant before totally going on a gluten free diet. After some time if you return to gluten you could have problems. Also you need to be eating gluten to be tested. So going off it beforehand could upset the balance.

If you just want to benefit from short spells of gluten free or low gluten that shouldn't affect you.

Janny

arian Apprentice
arian
Posted

Hi everyone, this is my first post here. My husband and I just started a gluten free trial 3 days ago in the hopes that it will help our problems. My husband has been having bad digestive problems and pain in his abdominal area for probably about a year now. He has seen many doctors but none found a satisfying solution to his problems. He had an endoscopy done that revealed a little damage and an ulcer, but omeprazole hasn't worked to make him feel better.

As for me, I found out a few months ago I most probably have ADD. I am very forgetful, unmotivated, procrastinate a lot, etc. etc. I was reading about going gluten free sometimes helping people with ADD and am very hopeful this will work. I also ha be several other possible symptoms of gluten intolerance. My teeth are very, very bad, cavity prone, weak enamel, several root canals and pulled teeth, and I'm only 26. As a teen I used to get very sharp pains in my leg bones, and I occasionally get them now too. I have bad acne, a geographic tongue, and a few other scattered seemingly unrelated symptoms that have been associated with gluten intolerance.

Does it sound possible my husband and/or I could benefit from a gluten free diet? We could have gotten tested I guess but we just lost our insurance so we thought going gluten free for a few months would be the cheapest way to find out if it works for us.

Yes, go gluten free! I had such a huge range of symptoms, and I'm only gluten intolerant . OCD, anxiety, rls, depression, brain fog, exhausted, couldn't concentrate, depersonalization, aches, other food intolerances . The list goes on and on, gluten is horrible if your body doesn't want it. I started feeling better weeks after going off of gluten. The first few days I felt really sick, and dizzy, but it went away after a few days. Good luck to you, you'll see how much it was worth doing :)

shadowicewolf Proficient
shadowicewolf
Posted

Might i suggest having your husband get off that med? I had to take it for a few months and it did nothing but make it worse. It does more harm in the long run.

cap6 Enthusiast
cap6
Posted

Might i suggest having your husband get off that med? I had to take it for a few months and it did nothing but make it worse. It does more harm in the long run.

I couldn't agree more! omeprazole/prilosec is nasty stuff. My doctor put me one it almost 2 years ago, 2 pills per day and it has taken me over a year to wean off of the stuff. I am stuck at 1/4 pill a day. Someone on this site warned me and said to wean off of it and they were so right. If you try to quit cold turkey the reflux will get worse. It's a no win situation. Do try to get off of the stuff if you can.

shadowicewolf Proficient
shadowicewolf
Posted

Eh, i was already bumped up to nexium and another pill by the point i decided to cold turkey it. Yes, the reflux was bad afterwards, but it was bad before i went off it as well. I now control it via diet. I noticed that i have to eat a starch with my meals or else it comes back, as well as avoiding greasy foods and spicy foods. Soda also for whatever reason makes it worse.

Additionally, i sleep with a pillow designed for those with acid reflux Open Original Shared Link . My Gi said it would help and it did. I used to wake up in the middle of the night feeling like i could not breath because my reflux was so bad.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,956
    • Most Online (within 30 mins)
      7,748
    Crismedin
    Newest Member
    Crismedin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.