Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Deficiencies - Doctors Appt.


AmandaD

Recommended Posts

AmandaD Community Regular

Hi again - Just returned from a regular general practitioner appointment where we we discussing my new Celiac status. I made mention that I'm feeling quite anxious about the whole process and that it's quite a life change. I also mentioned I'd been feeling like my muscles were twitching or that I would try to relax and I feel all trembly...like I was either having anxiety or dehydrated....

He said he was sure I had a calcium/magnesium or electrolyte deficiency and that I need to be on a good supplement (I'm also still nursing a baby and he said that can make the problem worse). He said that my body is probably not absorbing nutrients correctly.

Have any of you had experience with this or give me some advice? This doc also mention he hadn't seen a "sprue" in years. I felt totally weird when he said that!!!

Any advice would be really appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kvogt Rookie

First, I'd find a doc who has seen a sprue twice this week.

Second, you aren't absorbing vitamins and minerals very well. You should take a daily vitamin (choose carefully) and probably additional vitamins for nursing mothers.

AmandaD Community Regular

Thank you for that advice. I think I'm going to hang on tight to my gastroenterologist and only discuss Celiac with her. After that appt. and post I called my gastro office and left a message with the nurse about what my g.p. had said. The nurse said she didn't know exact amounts of supplementation and that she'd call me back.

This doctor said he hadn't seen celiac in almost 30 years. I was totally, totally stunned. And kind of pissed too, if I'm allowed to say that...

First, I'd find a doc who has seen a sprue twice this week.

Second, you aren't absorbing vitamins and minerals very well.  You should take a daily vitamin (choose carefully) and probably additional vitamins for nursing mothers.

<{POST_SNAPBACK}>

nettiebeads Apprentice
This doctor said he hadn't seen celiac in almost 30 years. I was totally, totally stunned. And kind of pissed too, if I'm allowed to say that...

<{POST_SNAPBACK}>

You're allowed to say anything you want here. ( Except the s**t word which automatically gets transposed to poop) If your doc hasn't seen celiac disease in 30 years I doubt he's been looking very hard. 1 out of 133 is est. to have it now.

luvs2eat Collaborator

And I'm thinking that the 1 in 333 will soon be 1 in way less than 333. It seems more cases are diagnosed every day... just look at the membership on this board! It astounds me how many new folks come every day with a brand new diagnosis.

  • 1 month later...
kelliac Rookie
This doctor said he hadn't seen celiac in almost 30 years. I was totally, totally stunned. And kind of pissed too, if I'm allowed to say that...

<{POST_SNAPBACK}>

Oh, they've seen it, they just didn't recognize it!

Ursa Major Collaborator
Oh, they've seen it, they just didn't recognize it!

<{POST_SNAPBACK}>

Yeah, like my doctor, who told me yesterday (after I told her I self-diagnosed myself with Celiac, and what an astounding difference the diet is making), that she knew I had all the symptoms, but she thought that it couldn't be Celiac, because I was gaining weight instead of losing it! And so she tested for everything under the sun, with the exception of celiac disease. :angry: And I was desperately ill all summer as a result of her ignorance.

But she knows now, our consultation turned into an information session for HER.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ryebaby0 Enthusiast

He said he was sure I had a calcium/magnesium or electrolyte deficiency and that I need to be on a good supplement (I'm also still nursing a baby and he said that can make the problem worse). He said that my body is probably not absorbing nutrients correctly.

Well, he's absolutely right. Think of your GI system as a carpet, but the damaged glutenated pieces as where the carpet has worn straight thru to the wood floor. If you spilled water, is the floor gonna absorb anything? Definitely take a multi!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.