Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing Dermatologist Again Soon

Alwayssomething

By Alwayssomething
in Dermatitis Herpetiformis

Recommended Posts

Alwayssomething Contributor
Alwayssomething
Posted

I am going to my dermatologist in a couple days for a rash that doesn't appear to be DH like my other rashes have been. I have been gluten free for almost a year (October will be one year) if I understand things correctly I can not be tested for DH becuase it will not be accurate since I have been gluten free, is this information correct?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Yes, you are correct that the biopsy for dh will be negative having been so long gluten-free. However, IF you have been getting regular cross contamination then it could prove to be positive. But if that were happening then you would surely be having dh present.

Alwayssomething Contributor
Alwayssomething
Posted
  • Author

Since seeing your suggestion for eliminating Iodine as well I have been symptom free. Yahoo!!! How long do you suggest before I add it back a little at a time?

eatmeat4good Enthusiast
eatmeat4good
Posted

I have DH too and did not heal until I got the iodine as minimal as I possibly could. That is a very limiting diet so I "tested" it every month or so to see if I could add it back. For me, it was several months AFTER the healing before I could tolerate iodine without breaking out. The outbreaks were minor compared to a gluten outbreak, but I would suggest you wait at least a couple of months if you are sensitive to iodine. But if you are like me you will test it more often to see if you can vary your diet a little more. ;)I can use it now with no problem. My endocrinologist said it was ok to limit iodine for a few months until the sores healed so that is what I did.

pricklypear1971 Community Regular
pricklypear1971
Posted

I was gluten-free 2 months before figuring out iodone. Did no iodine 2 weeks and healed. Started with adding back half n half for coffee. I added milk products back first since they were hard to sub. I went slow. Big itchies for me were seaweed products and egg yolks. It took me about 3 months to be able to handle a "load" like a 2 egg omelet, half n half, and asparagus in the same day. And I didn't do it 2 days in a row:). I got an outbreak at about 2 1/2 months over thanksgiving. Somehow I managed to come up with a very iodine rich menu, then proceeded to eat it for 2 days. It got me.

squirmingitch Veteran
squirmingitch
Posted

I agree with eatmeat & Prickly. You just have to test it every once in a while & see where you stand. From what I've read of others reporting on here it seems that seafood is the biggest hurdle for iodine though. I'm guessing that's the last thing we will all be able to add back in our diets for those of us who have the iodine "connection".

eatmeat4good Enthusiast
eatmeat4good
Posted

Oh yeah, I still don't do seafood due to the iodine. I'm chicken to try it. Did have shrimp over New Year's and it did a real number on my DH, so I think I may be "all done" with seafood, but I handle milk products and eggs now with no problems.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Seafood, ok shrimp, was actually ok for me. I could even eat a bit of sashimi... I would make that my "iodine of the day" but still...I could do both around 2 months.

But seaweed, carageenan. Ut uh. It was my tipping point. And egg yolks. I think potato skins got me, too. Asparagus was a noticeable reaction too.

Everyone is different.

squirmingitch Veteran
squirmingitch
Posted

I like being an individual human being but sometimes I wish we were all clones so we could have a nice neat little rule book we could follow --- one size fits all sort of thing. Would make dh a lot easier to deal with!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748
    TDeb
    Newest Member
    TDeb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.