Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crazy Amounts Of Energy


NewNicole

Recommended Posts

NewNicole Apprentice

When someone asks me what it's like to have celiac disease I tell them it's like being on the wildest roller coaster you could ever imagine. It's been a little over a year now that I have been gluten free. I started out in severe pain, incredibly hungry, massive headaches, every muscle aching, and sleeping 14 hours a day and still feeling like I got ran over by a truck. Now I can say that after the withdrawal symptoms subsided I no longer even want bread. Ok maybe somedays I pine for a small little taste of a nice soft piece of fresh italian bread. But for the most part I don't think twice about it. During this last year I have experienced so many new symptoms while getting rid of the old ones. I traded severe abdominal pain for wierd arm pains that doctors were baffled by. It was here on this forum that I figured out that it was probably a vitamin issue that was causing my problems. Now the crazy new experience I seem to have is this thing called energy. I've never experienced it before. I literally feel like I drank 12 cups of coffee in a row. I haven't figured out how to use this energy yet. I must look like a bug on drugs to people at this point. I just seem to ramble and run around like a chicken with it's head cut off. It used to be that I only had one day a month that I felt good enough to do much of anything. So I still run around doing all the housework and all my chores in one day anticipating that tomorrow I will be dead to the world. I can't tell you how many nights I went to bed before dinner making my husband fend for himself and taking care of all the kids. Now I can actually cook, (which due to the amount of work it takes to make gluten free food I need all this energy), and I can even clean up after. My iron has always been very low and my thyroid levels were high. I learned to function that way. I can't believe this is how normal people live. I don't know if this is actually my thyroid going the opposite way or if this is my new norm, but I figure I better do as much as possible now before my body realizes it needs to turn into that slug again. So although I wouldn't say that I'm 100% and I still have some issues, I am really happy with how much better my life is without gluten. So for all those newly diagnosed people out there I want them to know not to give up. It is a roller coaster, but in the end you too will be able to do laundry, cook, and do the dishes all in one day. lol.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

"Bug on drugs" *snort...

Very happy for you!

kittty Contributor

I had a similar energy burst about 6 weeks ago, and then got glutened and haven't got it back again yet. It felt good to be so energized, but it was also unnerving because I felt too energetic - almost like a mania. Maybe because normal feels so abnormal after all these years!

luvrdeo Apprentice

Thanks for giving me hope!! I've gotten past the massive headaches but a short 2 weeks in and I'm beyond exhausted, all the time! I love hearing that there is something to look forward to :)

squirmingitch Veteran

Always great to hear positive results! Good stories are wonderful.smile.gif

IrishHeart Veteran

You said:

"I can't believe this is how normal people live"

NewNicole, this is YOUR new "normal"!! :)

This is what healing feels like. This is how a body works as it is designed. (I get this part BIG time --because I am starting to feel it myself after a life time of wondering what "normal" felt like, too)

Congrats, honey!!

So happy for you.

Cheers, IH

tctwhite Apprentice

Its great reading someone's results after a year with the gluten-free life. Im only a month in and Ive had more energy this month than Ive had in YEARS! If it gets any better with time, I might have to take up marathon running! I do still have days where Im exhausted and just need to rest. But I believe that is because Ive been without energy for so long that I wear myself out. Im actually sleeping at night with NO medication. DH wonders why Im so tired at night. I said isn't that how normal people are? Im still bloated so much of the time, but the pains are disappearing as are the quick dashes for the bathroom.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

I didn't realize that it was normal to feel good and have energy. It was mind blowing. I went from feeling about 70 years old to feeling 20 (I was 42 when I went gluten free). Keep taking care of yourself and take your vitamins and you should continue to feel great. And to those just starting out, there IS a beautiful light at the end of the tunnel. Stick with it!

NewNicole Apprentice

Kitty, mania is a great way to describe it. It takes me forever to heal after being glutened too. I hope you bounce back soon. Lvrdeo, I'm so glad that I can give you hope. I know that it's hard to think you will ever feel better. But you will reach a point when you realized that you went up the stairs without needing to rest. I actually went up a few nights ago and did a dance of joy when I reached the top. Hey, it was exciting. Tctwhite, I told a friend of mine that next year I want to do a warrior dash marathon with her. I'm thinking I may be overguessing my physical abilities in this one. But the mere fact that I can consider it is huge. Who knows maybe in a couple years I can climb mount Everest....or maybe not. lol. Irishheart, it's great to feel a little human, isn't it? Who knew someone could feel like this? Srall, I have to tell you that up until about a month ago my 74 year old mother out ran me and she needs a walker. lol.

IrishHeart Veteran

I know that it's hard to think you will ever feel better. But you will reach a point when you realized that you went up the stairs without needing to rest. I actually went up a few nights ago and did a dance of joy when I reached the top. Hey, it was exciting.

This is GREAT news!!! I know what you mean. When I was very ill, I could not walk the length of my driveway (160 ft.) without being short of breath, just gasping for air and my whole body was shaking from the strain of this small activity. I was a burning mess of weak muscles and bone pain. I could not lift my arms over my head or dress myself at one point. Everything was painful and tiring.

A few weeks ago, I went kayaking. :)

This summer, for the first time since 2008, I could get in and out my pool (by myself) and swim around a little. I could not do that for 4 summers....a miracle? Nope, just the body "doing what it is made to do".

Continued healing to you and enjoy your "crazy energy"! ;)

Cheers, IH

NewNicole Apprentice

You went kayaking....that's fantastic. That's on my to do list to. And we just put in a pool so I'm hoping by next summer I will be able to enjoy it. It's almost like a kid in a candy store...you want to do it all right now. Good for IrishHeart. I hope you get to make up for lost time.

IrishHeart Veteran

You went kayaking....that's fantastic. That's on my to do list to. And we just put in a pool so I'm hoping by next summer I will be able to enjoy it. It's almost like a kid in a candy store...you want to do it all right now. Good for IrishHeart. I hope you get to make up for lost time.

You too!..go get 'em kiddo. It's all good now. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.