Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting A Bone Scan

AmandaD

By AmandaD
in Related Issues & Disorders

Recommended Posts

AmandaD Community Regular
AmandaD
Posted

All right. I posted earlier about my doctor being a dolt and not having seen a "sprue" in 30 years. He told me I needed to be supplementing and so I called my gastroenterologist. (The gastro doctor is so much more knowledgeable...whew...)

She explained that I need to make sure I'm eating dairy (which is hard isn't it? because i'm a bit dairy intolerant right now) and that I should be taking a multi-vit that includes A,D,E, and K because Celiac can cause significant deficiencies in those vitamins.

Would you all agree with this? My doctor also said they'd like me to have a bone density scan to see how my bones are doing? So, another question, have any of you been through this and is it a big deal...when should I be having that done? I was just diagnosed about 10 days ago...

All right. Enough from me. Many thanks to a :rolleyes: ll of you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

amanda-

those are often times deficiencies..so taking a multi for now is a good idea. is your dr going to test your levels for those vitamins also? the bone scan should also be done at some point. however, if you need to wait a month or so, that's not a big deal. it is bascially an x-ray of several points in your body, then measurements are averaged and scored. i had mine done a few weeks ago.

below is a description of the type of scan i had done:

The scan: During the scan, you'll be asked to lie very still on a table while a machine with an arm-like device supporting the gamma camera passes over your body and records the pattern of tracer absorption in your bones. This is painless. A scan of your entire skeleton takes about 30 minutes. Scanning a limited area of your body takes from 20 to 45 minutes.

AmandaD Community Regular
AmandaD
Posted
  • Author

Yes, I go back in a few weeks and they do blood tests particularly for D deficiency (all of my aunts and grandma's have osteoporosis (one of these aunts also has celiac) - many of them take supplements for it...I remember grandma actually giving herself shots! Ick!)

Have you had your blood tests done - curious to know, did any deficiencies actually really show up?? I'm wondering ...

Thanks again!!!!!!!

amanda-

those are often times deficiencies..so taking a multi for now is a good idea.  is your dr going to test your levels for those vitamins also?  the bone scan should also be done at some point.  however, if you need to wait a month or so, that's not a big deal.  it is bascially an x-ray of several points in your body, then measurements are averaged and scored.  i had mine done a few weeks ago.

below is a description of the type of scan i had done:

The scan:  During the scan, you'll be asked to lie very still on a table while a machine with an arm-like device supporting the gamma camera passes over your body and records the pattern of tracer absorption in your bones. This is painless. A scan of your entire skeleton takes about 30 minutes. Scanning a limited area of your body takes from 20 to 45 minutes.

<{POST_SNAPBACK}>

jenvan Collaborator
jenvan
Posted

iron was the only deficiency that came up positive thus far.

hez Enthusiast
hez
Posted

I have done the bone scan and it was easy and painless! It is good to do it now (sometime in the next six months) to get a good baseline of where you are at. That way they can look to future scans to see how your bones compare.

My doctor also did bloodwork for vitamins. I can't remember which vitamins but the bloodwork was good so I did not pay much attention.

Hez

AmandaD Community Regular
AmandaD
Posted
  • Author

Many thanks for the info! I think the bone scan's a really good idea - particularly with my family history - if I can prevent osteoporosis now that'd be nice (I'm 29 now)...good to hear it's painless...

As for the vitamin deficiencies, I'm sort of intrigued to see what those will tell me. I've been pregnant or nursing a kid for so long I'm sort of assuming I'll be at ZERO levels for just about everything :D )!!!

KaitiUSA Enthusiast
KaitiUSA
Posted

I had a bone scan done too to make sure celiac did not interfere with my bone growth and all that. It was not bad at all and was very quick.

I also had all my vitamins and mineral levels tested which all looked good too....I take supplements to keep those levels optimal too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AmandaD Community Regular
AmandaD
Posted
  • Author

Did it take you all long to get in to have it done? Was it a long wait (as far as scheduling at your hospitals was concerned...)?

laurelfla Enthusiast
laurelfla
Posted
Did it take you all long to get in to have it done? Was it a long wait (as far as scheduling at your hospitals was concerned...)?

<{POST_SNAPBACK}>

hi!

i just got one scheduled... my obgyn had a sign in her office about bone density and my gastro has not been very helpful as far as follow-up, so she set me up with it. i am having to wait about a month though to get in.

good luck!

oh, and how do you arrange to get vitamin levels tested? is it a blood test? and should i call up the gastro guy and ask for it? i'm not sure what to do. :(

CreativeCasey Newbie
CreativeCasey
Posted
I had a bone scan done too to make sure celiac did not interfere with my bone growth and all that. It was not bad at all and was very quick.

I also had all my vitamins and mineral levels tested which all looked good too....I take supplements to keep those levels optimal too.

<{POST_SNAPBACK}>

Kaiti,

How did you get your vitamins and mineral levels tested? I'm new and that seems like a logical first step but I've read conflicting information about how to test your levels accurately.

Thanks in advance for any reply,

Casey :D

KaitiUSA Enthusiast
KaitiUSA
Posted
Kaiti,

How did you get your vitamins and mineral levels tested? I'm new and that seems like a logical first step but I've read conflicting information about how to test your levels accurately.

Thanks in advance for any reply,

Casey :D

<{POST_SNAPBACK}>

My doctor ordered a blood test and it checked all my levels that way. He told me that celiacs have had a problem with nutrition levels so he checked them before I went gluten free and then I had another test like a year or more after I was gluten free...big difference that's for sure. I am sure there are other ways to check them but that's the way I had mine done.

AmandaD Community Regular
AmandaD
Posted
  • Author

I actually have a followup with my doctor in October and she said that at that time they wanted to check my levels of A,D,E, and K because those are the ones that kind of get swept easily through a Celiac's small intestine. I know that some doctors in some parts do and some don't. I'm here at the University of Wisconsin Hospital and their gastro department is pretty proactive, I'd say.

hi!

i just got one scheduled... my obgyn had a sign in her office about bone density and my gastro has not been very helpful as far as follow-up, so she set me up with it. i am having to wait about a month though to get in.

good luck!

oh, and how do you arrange to get vitamin levels tested? is it a blood test? and should i call up the gastro guy and ask for it? i'm not sure what to do. :(

<{POST_SNAPBACK}>

  • 1 month later...
WRowland Newbie
WRowland
Posted

Also do some research on calcium balance. Celiac is a good example of the intestinal tract not being a passive funnel. Just because it goes in the mouth does not mean it gets where it's needed. Bone scans and vitamin levels to confirm that absorbtion is actually taking place is valuable info.

Also consider learning more about calcium balance. And highly recommend great book with hated title, "Strong Women Stay Young"

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    yfuvhg
    Newest Member
    yfuvhg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.