Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did I Do The Right Thing?


bartfull

Recommended Posts

bartfull Rising Star

I'm not sure if this is the right place to post this, but here goes...

I have a guitar student who is the sweetest, most wonderful little girl I have ever known. Her entire family has been one of my greatest blessings. She has a sister who I believe has celiac. She gets stomach aches when she eats gluten, and she also gets "spots" which sound like DH. She has a cousin with celiac and she has given up gluten because of these things, but she hasn't been vigilent. She doesn't check for CC, nor does she read every label, so it is only the obvious things like bread and cookies that she has given up.

Yesterday I talked to her like a Dutch uncle. I told her how serious this is. I told her about cancers and lupus and diabetes, and a lot of the other things that can happen to people who continue to eat gluten, even in small amounts. I even mentioned celiac crisis, and while I told her it was very rare, I stressed that she could be killing herself if she doesn't become more strict.

Well, I think I scared the daylights out of her. She left here looking so depressed it broke my heart. I DID tell her that sticking to the diet is not that difficult once you get used to it, and I told her about the great tasting breads she can get right here at our healthfood store. We talked about some of the great recipes for flourless cookies and cakes. I gave her the addy to this website and strongly encouraged her to come here and read as much as possible.

I'm worried that it might have backfired though. I'm worried that she may think it's too hard and she will give up. Or maybe that I scared her so much she will go into denial. I offered her as much help as she needed, but now I'm wondering if I gave her too much info at once. Maybe she'll never even want to talk to me again.

I love this sweet young girl (She's 13), and I love her family. I told the other kids that they and their parents should all be tested too. I want them well and healthy and happy.

Did I do the right thing? And if I went overboard, how should I fix it? I'm afraid that I, with my big mouth, did more harm than good.

(If you are reading this honey, please forgive me if I scared and depressed you. It's only because I love you so much.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Don't be too hard on yourself - you were trying to help this young girl understand how serious Celiac Disease is. I completely understand that what you told this girl was out of concern.

I do think a conversation with her parents is your best bet. Explain exactly what you said and why. Teenagers often take part of the conversation away with them without grasping the whole conversation. Given time she will likely process everything you said, but it can't hurt to have her folks know what was said and from where your concern stems.

If she mentions it to them without them being aware of the context, they could be upset. If she doesn't mention it to them - perhaps knowing of it will start a conversation this family needs to be having.

Hang in there.

IrishHeart Veteran

I cannot imagine you scaring anyone so much that she will not speak to you anymore, Barty....and I know your intentions are pure and motivated by genuine concern.

That said, do not feel bad about trying to help. You did a good thing here.

Here's the thing:

We all want to help others.

Do we sometimes press too hard with family and friends? maybe.

Do we want to spare them all the horror we have lived through? Most definitely.

But here is what is also true:

Even when we give our best advice out of love and concern, people can shut down, ignore us, say we are wrong, tell us we do not know what the *&^% we are talking about, say we are "wrong" because they do not feel "that bad" if they have a little, etc, etc, etc. There are members right on here who have insisted (at times) that whatever help we offer is wrong and they refute it. All any of us can do is offer our best info, based on the truth of following a gluten-free diet as we understand it, and let it go.

You helped because you care. :) Let it be now. She'll probably have questions for you in the weeks to come--and you'll be there for her.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,057
    • Most Online (within 30 mins)
      7,748

    CanadianBren
    Newest Member
    CanadianBren
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.