Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleepovers?

rami

Recommended Posts

rami Apprentice
rami
Posted

So my newly diagnosed 8-year old would like to spend the night at his friend's house this weekend and I don't know how to feel about it. I hate to deprive him of some of the things I loved the most as a kid but I am terrified about this. I figured I could prepare his dinner and breakfast so there are no concerns but don't want to scare his friend's parents. Any thoughts for those with experience?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mizzo Enthusiast
Mizzo
Posted

I would emphasize hand washing , no sharing of foods or anything that goes in the mouth ie: lip gloss, instruments , lollipops .

Provide all the food , and don't stress about it. (although we all did and do still ) LOL

Roda Rising Star
Roda
Posted

Ditto what Mizzo said. Both my boys spend the night with their friends and I send them their dinner and breakfast. I also send snacks that they can share. They both are pretty good at knowing what they can and can't eat. If offered they are allowed to eat fresh fruits/raw veggies, cheese sticks and known safe yogurts/fruit snacks/candy. I have explained the CC risk and the need to wash the fruits/veggies and hands before they are given to them.

Darn210 Enthusiast
Darn210
Posted

My daughter usually eats supper before she goes. Takes dry cereal (chex) that she can add milk to for breakfast. She takes a snack to share (microwave popcorn and sometimes fruit chew snacks). She knows she can eat prepackaged safe items (string cheese sticks, yogurts, etc) but if your son isn't ready for that yet, tell him to only eat what he brings.

Whenever it is a "new" friend, I tell the parents what my daughter's reaction is (she gets nauseous and if really bad, vomits) so they don't freak out about the possibility of an anaphylaxis type event.

kvanrens1 Explorer
kvanrens1
Posted

My daughter has a sleep over tonight. I checked with the Mom and they are having pizza and doughnuts (her daughter did not want birthday cake) so I made a gluten free pizza last night and pulled a gluten free doughnut out of the freezer and will send them with my daughter. I will also send lots of snacks and gluten free cereal bar for the morning (they are having monkey bread). Have not tried to make a gluten free version of monkey bread so the cereal bar will have to do :)

My daughter already feels "different" because of her diet. For her, it is important to have the gluten free version of the food they are having. Extra work and planning for me but so worth it for her health and happiness.

MitziG Enthusiast
MitziG
Posted

My kids stay over all the time, they know the drill. They take a cooler full of snacks (I include extra for the other kid) and I usually make something kid friendly that can be microwaved- mac and cheese, pancakes, spaghetti..etc) I send a loaf of bread, some PB&J, gluten-free cereal and a bunch of fruit. Make sure to send the hot food in a micro safe dish so you don't have to worry about cc. Yes, its a pain, but the good friends' mmoms get used to it and understand. They appreciate not having to worry about poisoning my kid, and my kid loves all the gluten-free goodies that I don't usually buy (like expensive gluten-free chicken nuggets or ravioli!)

GwenO Apprentice
GwenO
Posted

My daughter goes on sleepovers. She takes food with her and shares it with her friend No problems so far.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Juliebove Rising Star
Juliebove
Posted

My daughter usually eats supper before she goes. Takes dry cereal (chex) that she can add milk to for breakfast. She takes a snack to share (microwave popcorn and sometimes fruit chew snacks). She knows she can eat prepackaged safe items (string cheese sticks, yogurts, etc) but if your son isn't ready for that yet, tell him to only eat what he brings.

Whenever it is a "new" friend, I tell the parents what my daughter's reaction is (she gets nauseous and if really bad, vomits) so they don't freak out about the possibility of an anaphylaxis type event.

That is pretty much what we do too. If she does eat dinner there, I usually send something for her. She used to have one friend whose household was not only gluten-free but she and her dad shared many of their food intolerances. That mom and I had no problems with the other person preparing food because we didn't even keep stuff in the house that could be a problem. But other people don't always get it. One person was going to serve taco salads for dinner which would have been fine, but the corn tortilla bowls she was going to serve them in, also had wheat. People who don't have to avoid this stuff don't always get it. In the end, she opted for something else. I can't remember what. But I made the same thing for my daughter and sent it over.

One thing that my daughter has always been careful about is food that would be safe but it shared. She got upset at a party because they put out a lovely vegetable tray but there were also wheaty things that people were eating with their hands. So she couldn't eat the baby carrots and olives that she really wanted.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,892
    • Most Online (within 30 mins)
      7,748
    Evagaline
    Newest Member
    Evagaline
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      MY BIOPSY WAS NEGATIVE!!!  HOW?? Obviously I'm thrilled it was negative, but I'm so confused now.  
    • trents
      Virus, celiac disease or both?

      By trents · Posted

      First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten Sensitivity).  Second, though I think your question other question has already been answered. Since the tTG-IGA antibody test is only 90 to 98% specific, elevated values for this test will be have non-celiac disease causes in 2 to 8 out of 100 cases. I realize that is addressing your question in a general way but the non-celiac causes have also be covered in this thread, though not to  the granularity of giving percentages to each non-celiac cause. Not sure why that is important to you at this point. First, you need to separate whether it is due to celiac disease or not. If not, then start sorting out what the other cause is. But as I stated above, by far the most likely cause is celiac disease so that is the place to start. Sure, we get it. Having  to eliminate gluten from your life spells huge culinary and social changes and challenges. But it's still better than facing cancer or host of other diseases that less definitive antidotes and outcomes. With celiac disease you don't even have to worry about taking medications because, as of now at least, there are none. The treatment is very straightforward. Avoid gluten.
    • Shining My Light
      Virus, celiac disease or both?

      By Shining My Light · Posted

      @trents This info is so helpful and I’m absorbing it all. My blood tests were almost a month ago and I feel like it came out of left field. I never even heard of term “silent celiac.” I thought celiac gave you violent diarrhea when you consumed a tiny bit of gluten. That’s it. Not that it damages your small intestine, not that it made the absorption of vitamins and minerals compromised. None of it. To me it was just an allergy to gluten.  My close family and friends think I’m crazy for even giving it a second thought because “no symptoms, no worries.”  It’s unfortunately hard for me to let something go that I don’t know enough about. Therefore all the research came into play.  I’m glad I’ve joined this forum. It’s more helpful to talk things through with people than looking through cases studies without being able to ask questions. I’m on the fence right now on what my odds are. I don’t know enough about the other variables and probability of why a TTG level would be raised.  The questions I still have lingering are:  -what are the odds that these levels are raised in something other than celiac? For instance of all positive TTG tests that have been done how many of those are from celiac? I know it’s a big ask but to me that’s something that is super unclear to me.  - what are the TTG levels in something other than celiac? (I.e. in things like type 1 diabetes, rheumatoid arthritis, hepatitis, viruses, NCGS, etc, are the TTG levels the same as those that have celiac, higher or lower?)  - even if it’s not celiac and it’s NCGS, if my body is “responding” to gluten, and creating antibodies to it, wouldn’t that be something to avoid anyway? Maybe not doing the damage but still my body doesn’t like it?  -could I really possibly follow a gluten free life as close as I follow Jesus?  Definitely understand now that key piece of needing an EGD. It’s looking at things from another angle. Also with all the other associated blood work, more angles.  I would like to say please forgive me if any of my questions seem as though I’m trying to be difficult. Making lifelong decisions is hard.  I do have decisions to make as you have said. I clearly will need convinced in order for this to be something to be committed to.  I would hope that there will be something in the future that comes out that will offset gluten in bodies the same was it does for sugar in diabetics.  My compassion is far greater for anyone carrying the burden of celiac than it was a month ago knowing what I know now.  I appreciate you helping me work this out, in real time. It’s been lonely up to this point. Only me talking about what I’ve read to people who don’t think I should be bothering with it any further. 😆 So thank you! 🙏            
    • trents
      Probably celiac but also confused

      By trents · Posted

      Lot's of folks would trade places with you with regard to the unintentional weight loss. Seriously, though, I would be concerned about vitamin and mineral depletion due to malabsorption in the small bowel. One thing you can do now to address that which will not jeopardize the accuracy of further testing for celiac disease would be to start taking some high potency vitamin and mineral supplements. Make sure they are all gluten free if you will continue to use them - after diagnosis, that is. Wheat starch is sometimes used as a filler in pills. A multivitamin may not be potent enough. So, I would go for a B-complex, magnesium glycinate (the form of magnesium is important for good absorption and to prevent a laxative effect), zinc picolinate, and D3 (around 5000IU daily). These are supplements we routinely recommend on this forum to newly diagnosed celiacs and in view of your dramatic weight loss it would likely be appropriate for you as well. It often takes around 2 years for the villous lining of the small bowel to fully heal after going gluten free and until then, nutrient absorption will be compromised. The small bowel is the section of the intestines where all of our nutrition is taken up. Keep us posted.
    • terrymouse
      Probably celiac but also confused

      By terrymouse · Posted

      I'm 5'2" so it's weight I could afford to lose. I guess what's concerning is that it's not on purpose, I haven't been active because I don't have much energy, and it's been steadily going down since I started keeping track of it. So I'm not too worried about where I'm at right now, but it's something I'm keeping an eye on.
×
×
  • Create New...