Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help, Major Stomach Issues

MATT1983

By MATT1983
in Coping with Celiac Disease

Recommended Posts

MATT1983 Rookie
MATT1983
Posted

Hello all, It's been a while since I have posted or asked any questions. Recently my wife and I went on vacation. We went to see her family and they understand my gluten-free & DF Celiac Disease. But the problem is that they don't think about all the cross contamination that can occur. We came back home and the day we left I started to feel extremely sick. I'm thinking that there was some cc involved and the bad thing is that we were there for four days. Since being home i have had nothing but a horrible week. I have been very sick. Nothing but laying down. If I get up I get extremely sick. I mean bathroom runs and coming from both ends. If anything makes it threw without coming back up, it just comes out as quickly from the other end. I have only been able to eat Applesauce. That is the only thing I can Stomach. My Question is, Is this normal with celiac disease? Or can it be something else? I don't have insurance and cannot really afford to see the Doctor. I have tried to eat more, but only results with bathroom visits and major stomach bloating/stiff stomach, cramping, etc.

Thank you for anyone's help.

Matt

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

Do you have a fever?

And yes, from what i know, it is.

MATT1983 Rookie
MATT1983
Posted
  • Author

Do you have a fever?

And yes, from what i know, it is.

Not that I have seen/caught yet. My temperature is running between 96.8-97.3.

shadowicewolf Proficient
shadowicewolf
Posted

Keep an eye on it. If it is a virus (i got hit with a nasty one a couple of weeks ago) then it might show up.

As for the stomach issues, at this point i'd say stay on a BRAT diet (bannanas, rice, apple sauce, and toast (or maybe not lol)). Keep drinking water. If you can, i'd also suggest drinking somehting like gatoraide for the vitamins.

GottaSki Mentor
GottaSki
Posted

If you don't have a fever, I'd guess it is gluten related. I've had "flu" like symptoms many times...sometimes just a few days, worst was several weeks.

Rest, drink as much water as you can and eat any whole food your stomach can handle. Good old chicken broth soup with vegies is my go to when these "flu" symptoms hit.

Hope you are feeling better very soon.

LauraB0927 Apprentice
LauraB0927
Posted

I second the gatoraide suggestion - from all the vomiting and D you are having (combined with the fact that you aren't eating too much) you are probably losing tons of electrolytes which will make you feel even worse and do terrible things to your body. Make sure you are having some intake of sodium, potassium, magnesium, calcium, and phosphate. If you start to notice changes like confusion or altered states of consciousness, get to the emergency room ASAP - it means you lost too many electrolytes. Can you tolerate things like rice and chicken broth? They help me when I get glutened.....feel better!!

MATT1983 Rookie
MATT1983
Posted
  • Author

I haven't tried to incorporate much food because anything I do just does't make it. I will deff. try those suggestions though. I have continued to take all the vitamins the doctor did tell me to take. I take everything twice a day. I was happy to find out that the doctor was able to tell me what I had before my wife changed jobs. We had ins. at that time and he did all the test to make sure it was celiac disease. Blood test and stomach biopsies confirmed both. It's crazy how this disease can affect so much in our bodies. Thank You to all.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I haven't tried to incorporate much food because anything I do just does't make it. I will deff. try those suggestions though. I have continued to take all the vitamins the doctor did tell me to take. I take everything twice a day. I was happy to find out that the doctor was able to tell me what I had before my wife changed jobs. We had ins. at that time and he did all the test to make sure it was celiac disease. Blood test and stomach biopsies confirmed both. It's crazy how this disease can affect so much in our bodies. Thank You to all.

If you are taking supplaments while you're sick, you may want to stop til you feel better. They can be very harsh in your stomach and contribute to the misery.

Once the sickness passes, ease back into them.

MATT1983 Rookie
MATT1983
Posted
  • Author

If you are taking supplaments while you're sick, you may want to stop til you feel better. They can be very harsh in your stomach and contribute to the misery.

Once the sickness passes, ease back into them.

I never thought of that. I was just trying to follow docs orders to hopefully get better. lol I notice sometimes the vitamins he has me taking make me sick if i don't eat. So that would make sense.

Not sure if this helps but these are the vitamins I take 2xs a Day:

These are all Wal-Mart or SAMS brand.

Vitamin C -1

Multi Vitamin -1

Fish Oil -2

Fiber Pill -3

Anti Acid 2- 150mg

I have two Ulcers also that don't like to help at all. And the meds the doc wants me to take are Extremely Expensive even without Health Ins. The bad thing is I can tell a major diff when I miss all these.

The bad thing is I Want to Sleep So Bad, but for what ever reason, Being Glutened Doesn't help in that. And since I got glutened on vacation I haven't been able to sleep except about 1 -2 hrs. On average, I get about 4hrs of sleep every night. This is not healthy and nothing helps. But thankful I get some sleep. I know that everyone here knows what I mean.

flowerqueen Community Regular
flowerqueen
Posted

It sounds like cross contamination, but you can't totally rule out bugs etc., I find when I've accidentally been CC'd my stomach can't cope with vitamins as the gut is already damaged. Being in England I don't know what is available where you are to stop you being dehydrated and this is more important than food when you've had such harsh symptoms for so long. Hope you are on the mend soon.

GottaSki Mentor
GottaSki
Posted

I agree with Prickly - stop all the supplements for at least a few days - until you are successfully getting food into you. When you feel stronger and are eating with no problem re-introduce them one at a time/no more than one a day - so you'll be able to identify if one sets you back.

GFinDC Veteran
GFinDC
Posted

Hi Matt,

It might help to take some probiotics. I suggest trying some deglysternized licorice (DGL) for the ulcers and mastic gum. Antacids are not real helpful for your condition. H.Pylori likes a low acid environment and that just lets it thrive. I take Betaine HCL for my H.Pylori to help kill it. And I sleep on my side that hurts so the stomach acid and DGL washes over the h.Pylori infected area of the stomach. It helps kill the bacteria and keeps the pain at bay.. It may hurt at first but if you can do it for 10 minutes at a time and build up it can help. It is important to keep your stomach acid at a high enough level to kill invading germs. Especially at night before going to bed, try the DGL.

I suggest avoiding sugar and carbs while you are getting over being glutened. Pepto Bismol may help some if your gut is irritated.

joolsjewels Newbie
joolsjewels
Posted

I am going through the same thing right now. Got cc from a favorite eatery. Boo! Yesteday was the first day i was able to eat solid foods. I spents several days consuming soup,, gatorade, and water. Finally the nastiness has stopped, but i am weak and abdomen is sore. Still just wearing jimjams. I hate that torn up feeling inside.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,348
    • Most Online (within 30 mins)
      7,748
    jimiiiii
    Newest Member
    jimiiiii
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.